Drain output, gross description something's wrong I think.

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Jadedjo
Jadedjo Member Posts: 469

Got bmx on Tuesday, on antibiotics.

Left side is over swelled but draining what appears to be normal fluid.

Right side (cancer side)different story

A little over 24 hours ago noticed thick white tissue coming through tubes, and now lots stuck in bulb. The fluid went from dark red to thick viscous milky pink. Imagine what a liposuction looks like and that's what it looks like going through the tubes. Little pieces of white mixed in with a thick clear and pink fluid depending where in the tubing it's at. Once it hits the bulb it's just milky pink. I think the best way to describe the fluid in the tubing is ..mushy...I feel like  the white clumps and strings in the tube and bulb are making the fluid milky.

I don't have a fever,like at all. I check daily. The site itself doesn't feel any different other then itchier then the other but I have a foreign object under my skin so bound to be itchy. Both sides hurt equally and the right has a larger area of sore cause that's wheee the node was taken.theres no smell to the fluid  as   Far as I can tell but I'm not about to shove my nose to the measuring cup either. It takes everything I have not to gag from what I'm seeing I don't need to add smellovision to it.

I'm not showing any other known signs of infection but all the places I'm looking say infection.

I do have adm pre pec and it was also a reduction.

I also got a nasty nasal congestion cold with a cough the day I came home. That's mostly faded except for an occasional runny nose,a  sense of smell not quite back online yet  and an occasional coughing fit. So there's that too.

I see the ps nurse Tuesday and have a homecare nurse coming in tommorow, Monday offices are closed due to holidays. I will ask tommorows nurse if this is supposed to be happening but wondering if anybody else experienced this?


Thanks to anybody who responds.

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Comments

  • KCMC
    KCMC Member Posts: 208
    edited October 2018

    Until someone chimes in I found this thread, it is quite old but may make your feel better. Keep on keeping on! I think about you daily.

    https://community.breastcancer.org/forum/91/topics...

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Hey Jade, I've replied over in the paleo thread too. Great link KCMC provided, and I'm hoping this is a common issue. You've done so well so far, crossing fingers it continues! Let us know what the nurse says today please!

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Egads007 

    Will do,thanks .

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Kcmc

    Thank you. Checked it out. Although mine is more then strings. It's pieces and now the fluid is thick.It looks like I'm getting liposuction out my tubing. Very gross.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - If you're still concerned after the nurse's visit today, call your BS's office and have a convo describing the output. If your gut is telling you it may be serious it's worth a quick chat with the BS.

  • beach2beach
    beach2beach Member Posts: 996
    edited October 2018

    I had a double mx last year. I had the light pinkish tissuey looking things along the tube and I would "milk" it into the drain. Most of the drain was filled with blood as expected. I never thought it wasn't normal and when I had gone to the PS a week after surgery to have drains removed, he never said anything about it either, it was still evident. Hope that makes you feel a little better. Can't hurt to call and ask.

  • illimae
    illimae Member Posts: 5,710
    edited October 2018

    I had tissue in mine too, it happens. Sometimes the strings and chunks had to be worked loose for proper draining. Yeah, it’s gross and I did call my nurses and emails pic, all normal stuff they said.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Homecare Nurse says she has never seen anything like it before.It's not the tissue that bothers me as much as it's discoloring  the fluid and making it look infected but I show no other signs of infection. Homecare nurse talked to in call surgeon and they said it sounds like it can wait to be looked at tommorow when I go for my follow up appt.Even the soreness and itchyness I been feeling recently was due to the wrong sized surgical bra.

    I felt some deep soreness yesterday and the bra felt really tight and I had thought that they changed the bra size up in surgery and I had swelled up a lot  and that they didn't freaking tell me AT ANY POINT so I could change the size of my back up so my second bra is too small and it also now has a stain from marker ( I can't reach all the places yet with a cloth) And then I just checked, the bra size in the bra and on the box are totally different but I talked to the nurse helping me and she says they are unlikely to change it due to the mark. So once again I pay the price for someone else's mistake.Everything happened so last minute due to lost paperwork I just washed/air dried them and put them back in the box and then it was surgery time.

    Just once I wish something would go right for me and just STAY THAT WAY.

    The aching and even the itching once I changed to the larger size faded so it was the constriction causing the extra soreness issues I was having.

    The only way around it I can think of is change to the smaller size for the amount of time it takes to hand wash and fan dry the big sized one so I'm only wearing it a few hours.

    To me it looks like fat tissue like from a liposuction mixed in with bloody drain fluid.

    So here's my expensive word of warning to others. Double and triple check to make sure the size on the box and the size on the actual product match.

    Thanks for responses.

  • kista
    kista Member Posts: 25
    edited October 2018

    I don’t have much for chunks in mine, aside from the occasional clots. But the pink color is normal. Mine started as red blood and has been getting to a dark pink and becoming light pink on one side and almost clear on the other.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Kista

    I suspect there is a complication where I am concerned, whether it is infection or something else I will find out tommorow.

    When you got two nurses saying that's something they haven't seen before you know the news isn't likely to be good though so for now it's wait and see until I get checked tommorow.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - get the Netflix rolling or the tunes humming..hopefully, for tonight at least, it will take your mind off all the BS that's been thrown your way. As usual, keep us posted pls...gentle hugs!


  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Egads007

    Thanks.Trying to keep my mind off it by killing time but it's hard when you look at the tube and you see sludge instead of fluid. Something is coming out of my body that shouldn't be.its also getting to the point I no longer want to touch the drains due to how disgusting the right side has become.

    With my luck I got a faulty implant.

    I'm also passing way more fluid in the right side then I should be at almost a week later and it's not a normal color at all.

    I'm hoping this doesn't end in me heartbroken but hope has always been a useless thing for me.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - Hoping to read good news from you about your appointment...let us know when you can.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Egads007 

    Thanks.

    It's so so news I guess, they say everything looks good with healing she was actually impressed by how good considering it's been only a week.( I wouldn't know I couldn't bring myself to look) but they are sending the fluid in the questionable drain in for a test to see what is going on. She thinks it's fat tissue but it's a lot more then What they are used to. I go back again this week and they will have the culture ready then to see if it's infection.i don't have cellulitis or any other signs of infection so if it is it's early stages. She put polysporin in the drain sites because my body being my  dang body the skin has decided it really don't like them and has become very red and irritated. Also she just put steristrips instead of strips and bandages and we are using loose abdominal pads to protect my chest in the surgical bra because as per usual my skin rejects the adhesive in the bandages.

    Sadly the drain on the other side that should have come out today decided to double the amount allowable in a 12 hour period so these damned tubes are still inside me. Looks like it might be another week.i stay on antibiotics another week just to be safe.

    So right now it's closely watch, wait and see.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - what a relief it’s not looking like infection so far (fingers crossed on good labs), and that they’re pleased with your progress!! Not so good you’re stuck with the drains longer that originally planned...I’m sorry! Not too much longer and another set of hurdles jumped. Hang in, you’re doing so well. Weather getting better

  • ksusan
    ksusan Member Posts: 4,505
    edited October 2018

    Well, better than having her blanch and call an ambulance.

    Drains are terrible. I hope you don't have them for too much longer.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Egads007

    Thanks I'm hanging in there. I'm hoping one is coming out at next appt at least. The right side ( the one with the gross issues) is still leaking like a broken faucet and has  gone down in output only a little not even close to what they want.

    Ksusan 

    Thanks.ya that wouldn't be good she said she said it looked like fat output but  more then she usually saw. I hope I don't either. Everybody says it feels like healing goes much quicker when they are out.


  • kista
    kista Member Posts: 25
    edited October 2018

    Good luck! Hopefully you’ll be done with them soon! 😃 Thankfully it doesn’t sound like infection

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018
  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited October 2018

    Hello, hope you are doing better! I saw your comment about skin reactions to bandages - yeah, I get those too sometimes. At the end of radiation I had new marks for the boosts and I developed a severely painful allergic reaction to the adhesive. Ugh, it was awful. Had to go back to the dr twice and finally the nurse fixed me up so I could get all covered up with no adhesive. The huge relief I felt at that moment was indescribable! As if there isn’t enough you’re dealing with. It sounds like you are getting medical attention though, so good! 😊

  • hapa
    hapa Member Posts: 920
    edited October 2018

    Hi Jo! Just checking in to see how things are going today. Has the swelling gone down at all? Are things starting to look more normal? IIRC, the longer I had my drains, the more fatty tissue would come out. It started getting really chunky in there towards the end. The swelling in my right side just went down maybe a week or two ago (5-6 weeks post surgery), it seemed to happen overnight.

    I also had almost no bruising a week after surgery, but by the second week my right side was all black and blue while the left was just a little black and blue. My PS said that was normal, clots that had formed to stop the bleeding when they removed the tissue were being reabsorbed by the body. Just FYI in case you start to see a lot of bruises show up.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Puzzlewoman

    Thanks.I'm so desperate to scratch sometimes but I can't.

    Hapa

    Thanks.Some has gone down. Pretty much it's been "chunky" for 3 days now but the liquid amount is barely going down it stays just above the allowable removal number on one side so I don't know what is going on. I also think one of the drains is literally dangling like a thread( the one just a scootch over) it looks like it's going to come out on its own. So if they are keeping it in longer like I think( probably Tuesday) they are going to have to do something about that. I can barely look at any of it right now but what little I do see in the right is getting bluish I hope it's bleeding and not skin dying.i am at the point where I just want these dang drains out of me. One of them popped open today, I guess it caught on the blanket, and it was only pure luck that had me hear it in time to make sure it didn't spill. I also want to be able to go out somewhere and not look like a kangaroo with a joey stuffed in my front.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    These drains ...this damned life...are driving me insane. 25 ml in a 24hr period is what your supposed to be at for them to yank the drains. Twenty seven, 20 freaking 7 is what the left side has been outputting for two days.the other side has been dropping around 15 to twenty a day for the past two days but isn't even close to 25 yet. So I got a damn body who's being a twat and is making sure it only outputs a couple ml more to keep the damn tubes in me.i can't even look at my body anymore and I could barely do it before I lost the boobs,the loss of the nipples mentally damaged me more then I thought it would I feel physically ill whenever something brings up the numbness to my notice.still sick not as bad but still coughing still runny nosethe antibiotics and Advil are taking its toll on my g.i system but I still need both for possible infection and obvious inflammation.

    Left side(the 27 side) popped a stitch and is barely hanging on and if you can't tell by the wording I AM barely hanging on because I can barely take care of myself,a visit to a bank a few minutes away left me aching enough I couldn't do anything else then to top off the crap pancake landlord sent a text saying one of the neighbors found a bedbug.

     I give up. I'm not even bothering to look although there was nothing when I last washed my sheets (two days before surgery)as I check every time due to the fear of bedbugs.but I completely give up.i can't bend over much without hurting.not even gonna try to look.

    I can't deal with anymore, if things don't start getting better real soon all the way around I don't need about to worry about the cancer killing me I will be taking care of it myself. At this rate I will be surprised if I see the new year.im not doing anything today or even tommorow but I can't take one more blow.eventually there are too many and you can't lift yourself up and I'm right on the edge of that.

    I need something good to happen but all I seem to be getting is bad. I hate to say it but Death is looking more and more inviting. 

    I now truly believe I am literally cursed and have been for close to five years.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Drains still in Monday for sure maybe even to wensday. :(

  • KCMC
    KCMC Member Posts: 208
    edited October 2018

    Jaded, I know this is hard, please hang in there and take one day at a time. I promise it does get easier, once you have those drains out there will be improvement each day. I know it s**ks big time. We are all pulling for you. You are on my mind daily.

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Kcmc

    Thanks. I appreciate it.

    I think it's just starting to be overwhelming for me, they pulled the almost last minute thing for surgery date, then they put the surgery on hold day of without letting me know until I went to nuclear medicine and they asked what the hell I was doing there since everything was put on hold, then I end up getting a full on cold day I am released so not only am I dealing with the aftermath of surgery I'm dealing with illness AND my monthly cycle all at the same time. Now these damn drains won't stop draining so I can get them removed. I'm so restricted in movement and strength I can't even do a simple grocery run across the street to pick up a couple items. 

    And now there is this bedbug incident which I hope is just a paranoid neighbor who doesn't know his bugs.


    It's at the point where I'm constantly muttering "when is it enough?! When is it going to end?!" Over and over. And I haven't even seen the oncologist yet but at this point  I don't feel like fighting anymore to stay alive in this hell.so chemo is mostly off the table.

    I'm just overwhelmingly tired at this point mentally, physically and emotionally.

    The only good news so far is the culture came back clear so no infection so far.


  • ksusan
    ksusan Member Posts: 4,505
    edited October 2018

    I'm so sorry it's taking so long.

    My surgeon wanted something like 12 ml before he'd pull my four drains. I NEVER had output even that high, but he kept the drains in for about 19 days. Finally one of the valves broke a 2nd time and his NP decided to go ahead and remove them.

  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited October 2018

    Jo, there’s nothing wrong with saying you’re not doing chemo. It’s your choice, and I would want to be strong enough physically and mentally before I even made a decision if I was in your shoes. 🐠

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Ksusan

    Mine is getting "chunky", honestly when it starts taking out tissue more then fluid its time to remove them. I'm hoping they both come out Monday but with my luck it will be wensday. By the gods I hope it will at least be wensday.


    Puzzlewoman 

    In all honesty I was never planning on making it to fifty with the way my life is going, making it worse with the helll of going through and the lifetime aftermath of chemo. No just no. Trying for an extra 20-30 years fighting this with everything means nothing when you have nothing to want to live those 20-30 years for. I try to explain that to people but nobody gets it.you need a reason to want to live to have the ability to fight to live.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - You wrote "I'm just overwhelmingly tired at this point mentally, physically and emotionally."......for very valid reasons. The struggles you've encountered before, during & after require the patience of a saint to pull through. Try not to let your utter exhaustion and frustration from allowing you at least a small ray of hope. Chemo, as Puzzlewoman wisely pointed out, is a matter of choice, definitely, but I have to agree that it shouldn't be a decision made while you're recovering from some pretty nasty post-surgery issues. You may feel much different once those damned drains are removed...which I am crossing my fingers happens sooner than later. Chemo, while not pleasant, is doable. Hang in, you have friends that care here and are rooting for you. I hope you find some comfort in that, and possibly help with that small ray of hope. It's rough n' tough times for you sweetie, but I know your strength of character will pull through! Hugs!

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