Neuropathy flare ups?

I do but wonder if it is something other than chemo that caused it? I only had one dose of chemo 5 years ago and developed neuropathy right after and it has continued to get worse. I noticed if I ate anything with aspartame I would get a flare up. I also noticed it when eating red meat or pro inflammatory food I think.

I am now investigating the use of ciprofoxacin and flagyl since they can cause permanent neuropathy.

ETA statins can also cause pain in leg muscles (statin induced myopathy)

I hope you get some answers.

My sister and I both have neuropathy from chemo. Weather makes a huge difference in how we feel. Extreme heat and extreme cold make it worse. It is starting to get colder here in Ohio and my neuropathy is acting up much more than it did all summer.

Recently, my cardiologist increased my statin drug. That really did a number on the neuropathy. I could barely walk. He had to cut it back, and I was back to how I usually am.

search for coenzyme Q10. it is essential to take that with a statin because it outcompetes that pathway. my dietician told me doctors should write a prescription of conezyme Q10 when they write a prescription for a statin.

I have had severe weakness in my hands and neuropathy from TCH chemo and surgeries to the point that it significantly affects my ability to load and unload the dishwasher as I drop and break dishes. It has wrecked my career and nearly ended my marriage. I also have had severe numbness in my right foot for 2 years. I am only 45 so I am desperate and tend to be more willing to do ANYTHING and try ANYTHING. I also had high cholesterol. I chose to get some B12 testing and found out I was very low in that . I chose to get a Bcomplex shot ( methylated no folic acid ) as well as B12 shot and It improved my neuropathy and my pain significantly. Then I chose to completely eliminate coffee and animal products due to a study I read about neuropathy. It was a small study and based on diabetics but again I was desperate. I went 100% Vegan whole foods diet (google if you are interested pureplant nation and forks over knives Michael greger, john mcdougal ) After two months I now have just a twinge of neuropathy once or twice a day. My hands are still weak in that if I overuse them I feel tired at the end of the day. My feet are no longer numb and they are do not ache and wake me up with the pins and needle pain at night. I do not know if this is permanent

I post this not to convert anyone I would feel ashamed not to share my experience even though I am in the early stages of trying to make these changes and I have seen significant improvements. I will stay this course as my marriage and livelyhood are at stake. I don't want to derail this thread if someone wants to chat about this feel free to pm me.

I have not had a flare up so I can't tell if certain foods or drugs cause that and my cholesterol was astronomically high so I may still have to try a statin when I get tested in December. and I was prescribed statins but chose to try this first. I will get my cholesterol tested after 12 weeks of eating this way ( so far it is 6 week) but my liver enzymes all went back to normal even though I only lost 8 pounds so far)

The first thing I would try is cutting all fat. I have read that this may be why my new lifestyle is helpful.

Someone on another thread recomended Cymbalta.

Neuropathy is a terrible terrible condition. My heart goes out to anyone suffering from it.

Denise-G

I noticed the symptoms of neuropathy after my first treatment of Taxotere.

I have noticed that when there is a weather front moving in signaling a change, a day or two before it comes in my whole body will ache as if I've been beaten.

sbelizabeth

The more active my day is, the more my feet will burn that night. And leg and foot cramps galore too, ugh!

I have not noticed symptoms being worse with any particular food, seems to be activity related for me.

Does anyone else have weak jelly-legs after walking a while?

Wrenn

The first dose of Taxotere caused my feet to feel like puffy little tingling pillows, and then it went away in a few days. But with each dose it became worse, and the MO started cutting the dose, but I assume the damage was done. When I got home after chemo treatments I would lay on the sofa with my feet on an ice pack.

I had the nerve test with electrodes afterwards, and was told I had sensory, motor and peripheral neuropathy. I remember that doctor told me be careful about getting a cold or flu because I would feel worse than I used to; I asked him about the leg weakness and he said the nerves are not signaling the muscles properly, so they don't respond properly. I get tired much easier and he said yes, that's to be expected too.

The other thing I have learned is that no doctor seems to know a whole lot about nerve damage, they do know how to prescribe pills. I myself have learned that any pain is amplified. Smells are smellier too!

I do think it can be caused by one dose, since it happened to me too.