Hives on arimidex, severe joint pain on tamoxifen- what’s next?

Beaupeep
Beaupeep Member Posts: 1
edited October 2018 in Hormonal Therapy - Before, During, and After

I was diagnosed with breast cancer in May, 2018, had a bilateral mastectomy in June. Very blessed that all nodes were negative! Estrogen and progesterone +, Her neu 2 negative. Okay, I got this, right? Wrong! How hard can it be to add another pill to my regimen? At age 66 I dealt with thyroid removal for papillary carcinoma, now at 71, breast cancer( only one breast, but elected to have both removed). Had a total hysterectomy at age 45, so cleared for Arimedex. Wrong! Hives, swollen eyes and lips.next on the menu, Tamoxifen. Severe joint pain, cannot take nsaids r/t mild kidney dysfunction. Wanting to cry a river.Been off Tamoxifen 2 wks now. Nausea gone, but joint pain hanging in! Appt. with oncologist needed next Monday on. The 8th.feeling embarrassed. Any encourage mention a

So






· Share on FacebookShare on Twitter

Comments

  • CBK
    CBK Member Posts: 611
    edited October 2018

    Beaupeep-

    This is discouraging but not uncommon to have to find the right inhibitor for your body. I'm curious if maybe one of the fillers on Arimidex gave you reaction not the actual drug. Were you on the generic Anastrozole?

    I wonder why MO switched you tamoxifen and not a Femora or Aromisen?

    There are more options for you don't despair,but the last thing I would do is feel embarrassed. This is not your fault and a common, very common problem to find the correct inhibitor that you can tolerate. That's why there is such a high rate of women discontinuing because of intolerable side effects.

    Hang in there Beaupeep. You are not alone and in familarcompany!!

    · Share on FacebookShare on Twitter

Categories