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  • ksusan
    ksusan Member Posts: 4,505
    edited September 2018

    Thanks for asking. My lovely wife is doing well and just brought in a hallock of organic veggies from our garden. Peas, tomatoes, tomatillos, broccoli, and kale. And just a few raspberries. We both like to cook and travel. It's hard to think of anyone I'd enjoy being with more.



  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018

    Thank you I appreciate the suggestions.

    My landlord actually brought me a 40 case of water and then talked to his wife about it and brought their extra water cooler with a big jug. So I don't have to worry about reaching the plug in to boil my water ,for awhile.water contamination issues in the past learned to double boil my drinking water. My fridge might not be all that full of food but it's definetly full with liquids, it's pretty much find a place there isn't a water bottle cause I got em crammed in every nook and cranny. Somebody I know from school said they talked to their church and will be checking in on me wensday night and will be bringing some groceries. Especially almond milk which I will be living on the first few days along with bit of yogurt until I shake off  the anesthesia aftermath.

    I might not have been lucky with doctors but I been real lucky with quite generous people the past couple of months. Some even strangers but kind enough to give a helping hand.Something I am both very grateful and appreciative of and I hope someday if I am financially able I can do the same for someone who is in my position. I may do what someone did and give a gift certificate to the BC center with a "use for someone who needs it" suggestion which is how I ended up with a new microwave.me, narcotics and a turned on stove. Not a good mix.

    Thanks again.

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2018

    That's lovely news!


  • vampeyes
    vampeyes Member Posts: 1,227
    edited September 2018

    Junie - Cogras on the good news! How wonderful to hear this. How are you feeling?

    Egads - I am just like your husband and my DH suffers like you. As much as DH would love to do what you plan on doing to your DH this am he would never be able to wake before me. hahahaha. You know the harder I try to be quiet the louder I seem to be.

    ME:

    image

    DH:

    image

    Jade - it's so wonderful to hear that you have a really great support system around you. Did the app work for you? Good luck with your surgery, is it a lumpectomy or mastectomy?

    JKL - so glad you are back to normal and back to the gym! It's a wonderful feeling being able to work out, even if you have to quit part way through like I just did! haha

    For exercise: Last month I have a recorded 3 days 16 hours of active time, 5 recorded workouts for the month according to my Polar Activity watch. This month I have 8 days and 11 hours if active time,12 recorded workouts for the month. I would say that is a definite improvement and hopefully continues on this way.

    Pain - My naturalopath put me on a vitamin called curcummatrix 2/meal 3xday, well it's expensive so I was doing 1/meal 3xday. With all the joint pain I have been having something clicked and reminded me that he had said the curcummatrix would help with pain, so I upped it to his recommended dose. I can honestly say I am noticing a HUGE difference! In fact I just did weights and step and am not in agonizing pain! Here is a link to the one he prescribed me: http://www.cyto-matrix.com/p_curcummatrix.php

    Have a good day all.



  • ksusan
    ksusan Member Posts: 4,505
    edited September 2018

    Vamp, great job on exercise AND on finding pain relief! "Curcummatrix" sounds like it's a turmeric extract. I take a daily turmeric (the brand is Thorne, recommended by my naturopathic doctor) and start my morning with this coffee:

    • Coffee
    • MCT or coconut oil
    • Heavy whipping cream
    • Dash of turmeric
    • Dash of black pepper (potentiates the turmeric's action)
    • Dash of ginger
    • Dash of cinnamon
    • (Stevia)
    It's anti-inflammatory chai!
  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018

    Vampeyes

    Double mastectomy with immediate implants if all goes well.

    Sadly no I couldn't find my library.

  • vampeyes
    vampeyes Member Posts: 1,227
    edited September 2018

    Jade - maybe it's because you're in a different province. Check your library to see what they offer for online services, they may over something similar.

    ksusan - that sounds delicious. How much MCT oil, heavy cream and stevia do you use? I bet all doctors have their own favorite brands to use. I tried once from the store the pills were HUGE! Personally I think they were working just as good, but I hated swallowing them.

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2018

    The turmeric I take is regular capsule size.

    I use about a T of MCT and a T or 2 of HWC. Individual preference, and individual MCT tolerance. You have to build up to that stuff!

  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018
  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Happy Vegas Monday Cave Chicks!!

    Nothing to report here, my squeaky clean streak is holding fast and I can happily report that I'm enjoying Paleo yumminess to the max. I guess I should relay that the one Greek dinner out that we've had (completely Paleo), was unfortunately full of salt, as is most restaurant food. I spent the wee hours of Sunday morning drinking enough water to fill an ocean! Besides that, all is good.

    KSuze – What you wrote about your wife touched my heart. It's 20 shades of awesome to read about peeps that share that depth of feeling……..THAT is what it's all about! I have to say though, I'm pea green with envy at your harvest!! Never mind getting a decent tomatillo here in NS, try even finding one!! I brought a dozen home from from my sister's garden on my last trip to Ontario and now I'm rationing them. Home gardening is near impossible with the wonky weather here. I wish I had read your post on the chai anti inflam before drinking my coffee this a.m…..it's on the agenda for tomorrow….sounds delish!!

    Vampriella – OMG I roared laughing at your gifs! Love it!! The next time we're in Ontario we'll have to meet up with our cavedudes….please bring enough baking pans so that you & my hubs can have a jam session, while your hubs & I can commiserate LOL!!

    Your exercise report: This was running through my head when I read your post....….

    I can't even describe my smile when I read about your exercise (and success with the turmeric) WAY TO GO GIRLFRIEND!!! Amazing work!! WHOOMP DER' IT IS!!!! :)))))))))

    Jade – I'll echo KSuze……wonderful to see you're getting some well deserved support!

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Once again interrupting your regularly scheduled program to bring you………..

    ONE CENT MONDAY – Does pink stink?

    Opinion day around the cave community is generally reserved for Tuesday, but as it's October 1stI thought it apropos to bring up what could be a controversial, yet fitting subject for the day. PINKTOBER…..aka Breast Cancer Awareness Month…..and to quote many BC organizations "celebrating life, spreading awareness, and going pink in support of the fight against breast cancer."

    The BCO boards are heavily laced with dismay/disgust/outright hostility towards Pinktober by a great many BCO members. Personally, I don't feel this way…..but completely get some of the negative reaction towards October. Many of us receive pink mementos & gifts from supportive friends and family during diagnosis and treatment….and many of us toss them in the trash as they are a constant reminder of the hell cancer visits on us, mind, body & soul. Very reasonable. Some feel the 'cause' pushed in our faces, and that is the last thing we need when trying to forge ahead in life........attempting to shove this dreaded disease behind us. Having your mortality dangled in your face changes you and, for me at least, am somewhat resentful at the loss of my 'blissful ignorance' as to when and where I might die. Any kind of reminder isn't appreciated as peace of mind is a hard fought goal. So yeah, I get that part. I'm also aware that some feel it's a cash grab by big Pharma and the various BC organizations they've partnered up with, which is yet another point that leaves a bad taste in peeps mouths, understandably so.

    Here is my 1 cent on the issue: If I chose to hate all things pink, and the month of October, I feel I'm allowing something to stick a finger in my eye. I've struggled over the years to get this far, why would I view a cause that is trying to 1. Raise awareness of just how large a problem BC is, and 2. Raise funds to find a cure, as something to upset me? If there is financial collusion happening I have to ask the question "wouldn't they be making SO much more money with a cure?" I seriously scratch my head at the animosity displayed and wonder why anyone would let a colour and awareness program piss them off so badly. Again, I get how the 'reminder thing' could be irritating, especially to those newly diagnosed and are early in the (dare I say it?) journey? It seems pretty futile to hate on something that in the end isn't working against my disease. Life is hard enough, why not just ignore the pink stuff, refuse to donate to what you think is a cash cow and carry on? Why waste your precious time on hate....don't we already have enough to bear on our shoulders?

    This certainly can be a controversial subject, and I'm not trying to stir up dust, nor am I trying to say that the negative feelings are wrong…there is no right or wrong on this subject. I'm just more curious than anything, and looking to better understand the negative feelings about Pinktober. So what say y'all? Ban or applaud Pinktober?


    image

  • vampeyes
    vampeyes Member Posts: 1,227
    edited October 2018

    Hello all, finally I am sitting in the waiting room to see my doctor or someone threat is in the medical field. It took almost 3 weeks since I booked the appointment, but it's here! Yay, maybe some answers!

    As for Pinktober, I happen to like the colour pink therefore find it hard to hate the month. It's good that it raises awareness, but maybe they need to go about it more - do they teach this in school? Start telling the boys/men that it's possible for them to, not just a female thing. As for the pink gifts, I don't have many friends and none would buy me pink stuff so no worries there for me. I have bought cash calendars in the past with 75% of the proceeds going to research.....so they say. Most usually donate a pitifully small skirtl amount from the sales. Anyway it's not worth my time to hate it, I see more Halloween and Christmas stuff right now than Pinktober stuff. My two cents.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Vamp, every time I post, and after our last convo, I kick myself for forgetting to ask about ‘the lump’...my very bad!! Let us know how the appointment goes please, and I’m sending good vibes for the all clear....which I’m sure it’s going to be!! Hugs!!

  • JKL2017
    JKL2017 Member Posts: 437
    edited October 2018

    I try not to waste time on negative emotions (except, of course, those generated by my ex-husband!). My problem with Pinktober is that many breast cancer charities pass on only a small percentage of the money they collect. Instead of funding research efforts, much of their money going towards administrative expenses. I think we currently have significant awareness; what we need is a cure! I just wrote a check to Metavivor (look it up on Charity Navigator if you're not familiar with it). BCO has convinced me that Stage IV research is where I want my donations to go!

  • JKL2017
    JKL2017 Member Posts: 437
    edited October 2018

    I should have mentioned earlier that I agree with Vamp's post. And, Vamp, I'm also sending positive thoughts that your news is all good! Keep us posted.

  • vampeyes
    vampeyes Member Posts: 1,227
    edited October 2018

    Thank you for the positive vibes, I actually never got a call for the ultrasound, it's only been 3 weeks though. Haha. I don't feel the lump so I figured it was muscle or something. Seeing as it took so long to see my GP, I have a HUGE list for him when I get in there. 😂🤣

    I am slowly going crazy 123456 switch. Crazy going slowly am I 654321 switch.

    Anyone remember that song from school? Sitting in the waiting room freezing my arse off! I will soon be getting up and start jogging in place. Haha. I could use once of ksusans keto chia lattes right now!

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    I just looked up " I am slowly going crazy '123456 switch' on youtube and don't remember it at all......it is VERY reminiscent of 'This is the song that never ends'....guaranteed to drive you bat poop crazy LOL!! Vamp, drop down and give me 10....that'll warm you up :)))))))))

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Egads007 

    That wasn't exactly something I wanted posted on the public forum.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Jade - my deepest apologies, I sincerely thought I had read the info on a post you made in this thread. I've edited the offending statement out of my post above. I'm terribly sorry if I've upset you!

  • Jadedjo
    Jadedjo Member Posts: 469
    edited October 2018

    Not really upset, I did mention first two weeks in October is when it's going to happen public ally just didn't specify a day except in private to a couple of people.

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    Thank you Jade, you’re a gracious lady. Another apology and big hug going your way!

  • vampeyes
    vampeyes Member Posts: 1,227
    edited October 2018

    I am HOME finally! The poor nurse practitioner, not only was it her first day, but she got me and all my issues. In the end I was sent for blood work - which I wanted to figure out why I am anemic and she also did a Chest X-Ray to see if there are any fractures causing me the chest pain. I honestly think it's all coming from cording, scar tissue, radiation and my job, BC the gift that keeps on giving.....

    Jade, Good luck with your surgery this month, will be thinking of you and sending positive vibes your way.

    It's wet and chili here soooo I am thinking Paleo Chili for dinner! I'm Chili Willy the Penguin.....

    Edited to add - picked up my new memory vitamin from my Naturopath today, can't wait to see if there is a difference!!!!

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    …...as she forgets to make the chili :))))))))

    Couldn't resist Vamp! Mwaaahhhh!! Crossing fingers you get definitive answers soon....keep us posted darlin!

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    JKL - THANK YOU for posting about the website 'Charity Navigator'...….a darned useful resource!! The cavedude and myself were looking to validate our charity last year and all the googling in the world didn't come up with that site. They'd been sending rather expensively produced mailings and it got us to thinking.

    Thankfully my charity scored very well.....if not I would have been in a real mess.....cancelling wouldn't be an option because it would cut off my 'daughter'....

    I'd like you all to meet my sponsor child Sadhana.....isn't she a peach !?!?!?!

    image

    We've been lucky to sponsor her since she was 3 years old (now 8 yrs old). Sadhana and her family were suffering desperate poverty, and at age 3 her health was poor. Now she is attending school, an excellent student and her family have enough to eat and decent clothes on their backs. With an education she'll stand a fighting chance of a brighter future and a way out of poverty. We just love her, she sends beautiful drawings and letters. Kids.....pull at the heart strings don't they?

    So I'm posting JKL's charity validating website in the original post. I highly recommend.....never can be too careful of how your funds are being used.

    https://www.charitynavigator.org/

    (link also in original post)

  • JKL2017
    JKL2017 Member Posts: 437
    edited October 2018

    Love that, Egads! She is a cutie - you & your cavedude are generous people to make a commitment like that.


  • vampeyes
    vampeyes Member Posts: 1,227
    edited October 2018

    Egads - she is a sweetie. I always worried those charities were a hoax, so glad to know they really aren't!

    I checked my charity on that website it couldn't find it. Uh oh.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2018

    I was diagnosed with breast cancer on September 27 and almost immediately faced the onslaught of Pinktober 2010. I literally could not leave my house without seeing pink everywhere, the grocery store, the pharmacy, my own oncology office, etc. Commercials on TV, the radio - it was relentless. Having this so in my face at the time of diagnosis has caused me to reflect on my feelings about it over the years, so here is my interpretation of the hostility of some breast cancer folks feel toward the Pinktober phenomenon. I am not angry, just frustrated by the state of affairs. I feel that Komen - since they were one of the first organizations to take up the mantle of "awareness" and bring it into societal consciousness - is where people first started to become disenchanted. Komen started off with noble intentions as they vowed to pursue an end to breast cancer but IMHO lost sight of that goal to an extent and became something else. They sued other organizations who dared to use the phrase "for the cure" since they trademarked it, formulated a carcinogenic perfume to raise funds, and still only give 15% of the revenue raised through its many channels to research. That 15% is a lot of money, but much more is spent on the bureaucratic machine that is Komen, than goes to actually fighting the disease that the organization claims to want to cure. I think the time has passed for awareness - you have to be residing under a rock (in a cave...hmmm...lol!) not to be aware of breast cancer - and now we need to focus much more on understanding the causes of breast cancer and how we can stop it from killing so many of us. The percentage of money spent on metastatic breast cancer is woeful, and needs to be upped in a major way. The manipulation of early detection statistics have painted a nice picture of survival, but it is skewed - partly because DCIS stats are mixed in with later stage to come up with the 98% figure - which those of us with breast cancer know is not accurate - but the rest of the world does not. Eyes need to be opened to the number of people who die each year from breast cancer because that is not pink or pretty - a number that is largely unchanged at roughly 50,000 annually - and equal to the number of names on the Vietnam Memorial in Washington, D.C., and more resources need to be devoted to lowering that number. Like, right now. I think the public is tired of the pink "celebratory" month of October, and others with different types of cancer are wondering where their month is. I have noticed that in the last couple of years I have seen fewer pink events, less pink merchandise, etc. I am happy about that because there are too many manufacturers and service providers that claim to be donating a percentage of sales, but either don't reveal where that money is going, or give a squintillienth of a cent for each item sold. The general public is not looking that hard, they are just buying thinking they are doing something good, but it amounts to making a profit in the name of breast cancer by packaging your merchandise in pink. That doesn't sit well, and neither does the random selection of pink items that have joined the bandwagon in an effort to cash in on this desease. I am happy to see the NFL move away from a strictly breast cancer approach in October and more toward teams/players selecting another type of cancer or an alternative way to promote their Crucial Catch program. Encouraging friends/family to donate to a vetted organization (Charity Navigator is a great tool) that has a higher margin of funds going to research, donating to organizations that assist patients directly with the things they need during and after treatment - my treatment center has a foundation for exactly this purpose - or donating directly to research facilities is the way to go - all 12 months of the year.

  • ksusan
    ksusan Member Posts: 4,505
    edited October 2018

    Thanks, Egads. Whew! I don't check in on one morning and 18 posts greet my return.

    I can live with pink (though it leaves out men symbolically). It's the lack of translation from pink ribbon Fuck Cancer! socks to actual donations to research and treatment that pisses me off. Oh, and all the cutesy metonymy of "bra" for "person with cancer" and smarmy euphemisms like "boobies" and "ta-tas."

  • Egads007
    Egads007 Member Posts: 1,603
    edited October 2018

    JKL - Thank you...the hubs and I felt a social responsibility and wanted to commit to a worthy cause. We figured what better way than to empower a child or community to break the cycle of abject poverty. Sadhana's future is worth every penny, and as the ad says 'for the cost of a cup of coffee per day' lol....so it’s relatively cheap. A few years ago we took stock of all the 'stuff' we accumulated at Christmas...stuff that while nice to receive, really was over the top. Since then we give the gift of a cow, or various other crucial items to a 3rd world family in need and only buy each other a small gift. We haven't felt better about Christmas since adopting this tradition...for us, the feeling is a much better gift than the usual perfume and such. Our ‘generosity’ is paid back one hundredfold. We still eat too much though lol!

    Vampriella - Thank you too...she's our lil' doll! Nope, no hoax...and they provide video, reports etc so you can see what is being done. 100% transparency...whew! Is your charity Canadian?

    SpecialK - Excellent reply, and very well put! I'm sorry you had to endure Pinktober immediately following diagnosis...exactly when one doesn't need constant reminders! I wasn't aware of the extent that the Komen issue figured into the financial end, so I'm thankful for your pertinent information. Carcinogenic perfume?!?! Oy vey!! I encountered an utter lack of support of any form from the Canadian Cancer Society, both when my father took ill and with my diagnosis. We felt hung out to dry at the time. Man-oh-man were they friendly when it came time to ask for donations though. There is a very small and truly amazing group in Toronto that offered almost every aspect of before, during and after care....all free of charge. They made my Dad's journey a more comfortable one through targeted therapy for the palliative folks (his cancer had a 1% survival rate, which understandably played havoc with his mental health) This is why my yearly donation has gone out to this organization since 1999. As for awareness, I do think there is a place where it's necessary....in schools,so that we arm both sexes with complete info. Thanks again, your reply has quenched my curiosity regarding some of the negatives...oh and Hey! I saw that Cave comment!! ;)))))))

    KSuze - Lol, sorry, like you need more reading than you already have right now! Couldn't agree more....I've always been put off by the word 'boobs', even as a teen lol! I do however love the word 'smarmy'.....one of my favs, just ask my son LOL!

  • ksusan
    ksusan Member Posts: 4,505
    edited October 2018

    JKL, we help sponsor a university student in Cambodia. We're on our 3rd student (and we sponsored a couple of younger kids before that).

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