Unilateral or bilateral mastectomy

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Anx789
Anx789 Member Posts: 168

Hello, I'm new here and need some input on what to do. I was diagnosed with left BC, IDC, 1.9 cm, Grade 3, stage is not indicated. My surgeon is suggesting left breast mastectomy only, but my friend thinks I should have both remove. I haven't seen an Onco or referred to one. My surgeon said Onco referral will be done after surgery. Five of my dad's sibling had cancer. I want to have a well informed decision before my surgery which is set in middle of October this year, any info to help me will be veryhelpful.

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  • DebAL
    DebAL Member Posts: 877
    edited September 2018

    anxious lady, first take a deep breath. Your friends most likely have no idea what you are going through. This will be your decision with the help of your care team. Most of us make this decision based on concerns of family history, continued monitoring the other breast, recurrence etc and your plans for reconstruction ( or not). Think about those things and also what your gut tells you. These concerns are unique to you. Then discuss with your healthcare team. These decisions are so difficult. Please know it is normal to waiver back and forth also. Wishing you the best as you work through this. We are here for any questions and to support you.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited September 2018

    I would just add that I think it's important to see an oncologist before surgery. The surgeon has his specialty and so does the oncologist. It might be very helpful to you to have their input now.


  • Nel138281
    Nel138281 Member Posts: 2,124
    edited September 2018

    Ditto  see an onc before the surgery.  The more info you have going in, the more confident you will be in your decisions.  You need to know what your treatment plan will be following surgery.  Due to the type of cancer I had, I needed to have some parts of my treatment prior to surgery.  See the onc ask all of your questions and then proceed

    Nel

  • BCSucks1
    BCSucks1 Member Posts: 26
    edited September 2018

    I was given choice by my surgeon (they found multi tumors in my left breast) I wanted both breast gone even though no family history of breast cancer. The minute I was diagnosed , I just felt like my breasts were cancer farms and I wanted them removed. (In hindsight, it was definitely the correct decision because when they did tests on right side they found `very concerning tissue'' which would have had to be monitored quite frequently. I hope they give you a choice and you make the decision that gives you the most peace of mind. Good luck with it all and try to remember you will get past all this, althought I'm sure it doesn't feel like it right now

  • Anx789
    Anx789 Member Posts: 168
    edited September 2018

    thank you very much for all the feed back.


  • windingshores
    windingshores Member Posts: 704
    edited September 2018

    My surgeon wanted me to have one mastectomy to see how I reacted, physically and emotionally, and promised that if I still wanted my other one taken off, she would do it. So I had two surgeries within a few months. I found having one breast to be kind of uncomfortable. More importantly, there were aspects of my cancer that suggested more risk to the other breast, and it turned out the non-cancer breast was full of cysts (I had told them it felt funny). I am flat and feel fine. If you are considering reconstruction or have a romantic partner, there are other concerns and reasons to keep one.

  • justbeatgeno
    justbeatgeno Member Posts: 36
    edited October 2018

    I had a unilateral a year ago. Tomorrow I have a one year follow-up with my surgeon and am going to ask for the other to be removed. I'm going to ask for the other to be removed because: 1) without reconstruction, I've gotten used to the look of my flat chest, except it looks bizarre next to a breast; 2) I live in constant shoulder pain on the side that still has a breast; and 3) they keep "watching" a spot on the left. I'm sick of "watching". I say "off with it"!

  • Anx789
    Anx789 Member Posts: 168
    edited October 2018

    Hi justbeatgeno, US shows I have 2 tumors but during biopsy, they only found 1 and they told me it’s less than 2 cm. But I feel like it’s way bigger than 2cm, the breast with tumor feels heavier. I’m afraid there’s actually 2 tumor not 1.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited October 2018

    I decided to do a double mastectomy because my breast tissue was so dense, mammographic imaging did not pick up on my cancer. So for me, the anxiety of still having a breast that was hard to monitor was too much. It is such an individual decision and mastectomy whether single or double is intensive surgery.

    You didn't mention what type of cancer your family members had. Another tool to help you make a decision is to look into genetic testing to determine your risk of recurrence in the other breast. I am sorry you are facing this decision. None of us wants it, but we all understand how it feels. Take one step at a time and ask as many questions as you need to in order to make a decision that feels right for you.

  • justbeatgeno
    justbeatgeno Member Posts: 36
    edited October 2018

    re: the 2 tumors... we knew mine ahead of time. It's all very bizarre how it happened. Divine intervention in my book. I could feel one tumor which is what sent me for my baseline mammogram. The mammogram found a tumor, and I started down this crazy road. BUT - found out during the appointment with the breast surgeon that the tumor they found was NOT the tumor I felt. She could feel something too, and sent me for an MRI. My insurance denied the MRI, but she personally called them and fought with them. The MRI found the 2nd tumor, and this is what kicked me out of getting a lumpectomy. At first, going into the 2nd biopsy (I got to do it all twice - so much fun!), they thought maybe it was just one big tumor, or they were connected somehow. But there was a definite space between them and they were separate.

    My cancer breast did not feel any heavier, but then again, I've had DD breast to begin with, so my little under 2 cm tumors will just floating around in there. :)

  • Anx789
    Anx789 Member Posts: 168
    edited October 2018

    I’m seeing an Onco on Monday. Thank you very much for all the advice. I’m leaning towards bilateral mastectomy for peace of mind

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