Long wait for surgery

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Anonymous
Anonymous Member Posts: 1,376
Long wait for surgery

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  • flax
    flax Member Posts: 6
    edited September 2018

    Hello,

    I was diagnosed on early September. It's 2cm Invasive Ductal Breast Cancer. Grade is 2, Ki-67 is 40%, ER+ PR+ HER-.
    I have small breasts and due to the location of the lump, decided to do nipple sparing MX with flap reconstruction.
    My BS is very busy on October and could not schedule my mastectomy until November 19. My PS assured me that the delay won't affect my cancer, but I think earlier is better for peace of my mind (!)
    I am wondering if I should look for other surgeon who is available sooner. I asked one other good doctor in the same office but she is busy too. I can ask other hospital/offices, but I am afraid that it could be a waste of time and hustle (and stress) because all good surgeons are very busy on October, which is breast cancer month.
    In addition, making the decision was difficult, so I don't know if I want to get a different recommendation and have hard time to make up my mind again.
    Is there anyone who had or have a long wait time? Is it really ok to wait so long?

    Thank you!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2018

    Hi Flax-

    We can certainly understand your concern! Lots of people wait for several weeks between their diagnosis and the start of their treatment or surgery, for a variety of reasons. It's not uncommon for 4-6 weeks to pass between diagnosis and surgery! It very likely will not have any impact on your cancer, but for added reassurance, we would suggest talking it over with your oncologist. We know how important it is to find a breast surgeon you are comfortable with, but if you feel as though the waiting period would be difficult for you to get through, calling around for a second opinion is a good idea!

    The Mods

  • CBK
    CBK Member Posts: 611
    edited September 2018

    Flax-

    I waited about that long. My wait was more coordinating with my Reconstruction Surgeon as her schedule was very full.

    I strongly urge you to get second opinions and second consults on reconstruction options. If you are set on reconstruction you will want to gather tons of information to see what type is right for you AND find the best reconstruction surgeon you can possibly find!

    I understand you are scared and just want this whole thing over yesterday. But exploring and making really informed decisions are going to serve you well on all levels.

    Question the experts and you will empower yourself!!

    I am wishing you much strength and healing in the months to come 🤗


  • flax
    flax Member Posts: 6
    edited September 2018

    Thank you both for reply and support. It is very helpful.

    I think my PS is top notch, but if I go see other BS, I will ask for their recommandation of PS.


    I just talked to my nurse and she said they are actually trying to find an earlier date for me and it seems like there is a possibility. But I won't know the result for another week. In the meantime, I will keep trying to find a good BS and PS for second opinion. Also, I am still waiting for my genetic test result. It will be back early next week.

  • flax
    flax Member Posts: 6
    edited October 2018

    I went to see a BS for second opinion. Her opinion about the surgery itself is almost the same (MX with reconstruction) as my original doctor, and she can schedule the surgery about 3 to 4 weeks earlier depends on plastic surgeon's schedule.
    However, the doctor does not recommend flap surgery and she doesn't work with any PS who take my insurance AND specialized with flap surgery. She recommended to have expander placed and wait the result of the margin / oncotype so that the breast won't be affected from radiation and start treatment quickly in case radiation/chemo is necessary. Also, the BS thinks it's not good idea to take out good muscle for flap as it affect the strength and recovery, so recommanded implant. Implant is not necessary replaced every 10 years and the exchange surgery is quick. She said expander can reduce the risk of dying of skin/nipple because there will be less pressure on them.

    However, my original PS was very confident with same time reconstruction with flap. He thinks I am a good candidate of Latissimus Dorsi Flap as I am skinner and it affect only a little bit to my strength (I can keep 90% of the original strength). He has a lot of experience with flap surgery. I don't know who to believe... I am leaning toward to have expander placed at the mx surgery and think about it later.... But still haven't decided which BS I go to.

    Does the result of Dorsi flap changes so much depends on PS's skill? Is implant so much easier to deal with and look natural enough for small breasts?

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited October 2018

    I would say - yes and yes! Any flap surgery is a much more complicated process and you want the best PS with lots of experience for the best result. And an implant is a much easier surgery.

    If you are really not sure what you want to do then perhaps going with the TE's for now is the best plan. Especially if that can be done sooner and that's important to you. Ideally - you would know what you want and be able to move forward on that.

    If you have not yet - I would recommend meeting with an oncologist. Also - your original surgeons may very well be able to move up your date. My surgeons were able to use a slot in the OR schedule that another surgeon didn't need.


  • flax
    flax Member Posts: 6
    edited October 2018

    Thank you notverybrave!

    I asked my original PS if TE is ok and he said yes. So I might just wait for my original BS's answer if she can move it to earler date, as their location is closer to me in case I ever needed radiation, chemo and other follow ups.
    I am reading all posts about implants and LD flap and there are lots! It's getting harder and harder for me to decide between inplant and flap. But if I decided to do flap, i can just go back to the PS again. That's also a plus with the original surgeions.

    Also, I am supposed to meet oncologist after surgery. I'll ask my nurse if it's ok to see oncologist first. The second BS said my Ki-67 is modeletely high, so I might need chemo depends on Oncotype result. I thought I won't need it unless positive lymph node. Is there anyone had Chemo after mx because of modeletely high Ki-67 and Oncotype result even with negative lymph node?

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited October 2018

    Yes - I'm sure that there are people who did. I needed chemo due to HER2+ status and had it before surgery, but the plan had already been to meet with the MO and RO early on since they were all kind of working together out of the same facility.

    They may want to wait until after the surgery, but I always feel like it's good to at least meet the MO. That is the person that will follow you the most closely and you want to make sure it's a good "fit" for you.


  • flax
    flax Member Posts: 6
    edited October 2018

    My BS was able to move the surgery to Oct 15! That's more than one month earlier than the original date.
    I will have TE placed and think that helped me to get in early as well as it does not take as much time as flap.

    She said chemo is up to the result of oncotype.... I hope I don't need it.

  • flax
    flax Member Posts: 6
    edited December 2018

    I want to update as it has been a while. I had the surgery successfully with TE and no chemo needed because of good Oncotype result. My recovery was smooth even though TE has been very annoying. After 1 month, I felt so much better.

    After giving a lots of thoughts, I decided to go with LAT flap reconstruction because I didn't want to go through possible implant replacements in future and my PS is very good at flap surgeries. So, I had LAT flap surgery with fat grafting a week ago. The recovery is slower than the mastectomy but I am definitely getting better.

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