Starting weekly taxol/Herceptin. What days are the wost?

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Naplesali
Naplesali Member Posts: 10

I am starting weekly taxol/herceptin next week. If you had this treatment, can you please share which days were the worst as far as side effects? I have three school aged children and would like to try and schedule chemo to be as present for them as possible. Thank you!!


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  • Ingerp
    Ingerp Member Posts: 2,624
    edited September 2018

    Mine shifted a little later through tx but for me days 4-5-6 were when I was draggiest (so Mon-Tue-Wed following Fri tx). I never felt bad—just heavy/low energy. The first few days were always really good, probably in part because of the steroid in the premeds. Many weeks Sat and Sun were the only days I went to the gym. That’s actually why I chose Fridays for tx—I wanted to feel good through the weekend

  • Honeybee68
    Honeybee68 Member Posts: 34
    edited September 2018

    I will have my eleventh weekly Taxol infusion this Thursday. I have four to eight more weeks left, depending on how good the three month scan is.

    The worst days for me have been Saturday and Sunday, but as I get farther into treatment, that seems to be stretching out to Sunday and Monday. But even the worst days have not been that bad. I just have more nausea and diarrhea and am more tired. But I continue to do everything I usually do - work full time, laundry, some cooking, picking up after the family, walking - but I just don't do as much of those things as usual.

    It is not nearly as bad as I thought it would be. It can accumulate for some people, my oncologist warned, so it can get worse as you get toward the end of treatment. But I think it will be okay for me if I have gotten this far with very little trouble. You will do better than you probably think you will. It really is very tolerable. I hope you have good support to help with your kids when you are feeling tired or just yucky. Let yourself rest when you need to. Good luck.

  • NotHerToo
    NotHerToo Member Posts: 58
    edited September 2018

    For me the first few weeks were relatively uneventful and the two days following Wednesday treatments were very productive due to the high energy caused by steroid premeds. Food tasted terrible, had a minor rash at first, mouth sores quickly disappeared with magic mouthwash. I started feeling tired with some neuropathy toward the end of the 12 weeks. White count tanked and got an infection, but all in all I only missed one day of work. Looking back, it really was do-able, but I realize some are not so lucky. I walked a couple of miles every day, and kept my normal schedule. Toward the end I was tired, but that infection contributed. I did work from home some because my job allows it to avoid exposure to germy college students during flu season. Hair loss started at about 21 days (February). I did hire someone to help with cleaning because I hate a dirty house and working full time was enough. I had enough hair back by August to ditch the wig and sported a short curly head. I finished Herceptin this past February. Fingernails and toenails (which turned black) are finally getting back to normal. Onc said Herceptin lingers and for most takes 6 to 8 months to leave system (I am now almost 8 mos out). Eat healthy, move daily (even if you don't feel like it), and drink lots of water. Tips from this site were unbelievably helpful. I iced hands and feet during Taxol and neuropathy is negligable.I don't even notice it most days. Tell your oncologist about any symptoms, even if they seem minor. Mine was eager to keep life as normal as possible.

  • PhoenixCruiser
    PhoenixCruiser Member Posts: 118
    edited October 2018

    Mine were usually day 3, 4 and 5. When planning be sure to take holidays into consideration. I started on Mondays, that was changed to Wednesday and once again changed to Thursday.

    I second Biotene mouthwash and icing your fingers and toes.

    And finally be kind to yourself and take naps if needed and ask or get help if needed.

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