Just Diagnosed - Invasive Lobular Carcinoma

pjduvall sorry you have found yourself here. It is all so overwhelming, especially in the beginning. I received so much info and support on here so you are in the right spot. One piece of advice I wish I would have taken was to take someone with me to my initial visits. They throw so much information at you it’s easy to forget what all was discussed. I made a binder and had pages for questions and notes from all of my visits. You will start to feel better when you have a better picture of your cancer and a treatment plan. There is a specific ILC section here on the boards that has some great info. Don’t hesitate to ask any questions you might have as you navigate through your treatment

Sorry you find yourself here, but you are not alone. It is very overwhelming. I don't think I have fully gotten past it and its been a year. I agree, if you can have someone go with you and take notes. A friend of mine came along when it went to the PS and boy did she ask questions and take notes. I stood there in a daze while they talked. I didn't tell my kids until I had everything into place and knew exactly what I was going to do. For me it was fast..within a week and half from diagnosis I had surgery.

Best advice I think I was given is to go with your gut on what to do. I had a 7mm spot. I knew from the moment I heard it that I would do a double mastectomy even though it was tiny. That was colored by my sister having had bc, and other factors. I have not regretted my decision. So whatever you choose, chose it because it feels right to you. So much gets thrown at you, statistics etc, but it will get better when you have all your info in place and have some control back.