BIRAD 5 after MRI Need Biopsy

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vollymom1
vollymom1 Member Posts: 4
edited September 2018 in Not Diagnosed But Worried

Hello, I am so glad I found this site, this whole process has been agonizing to say the least. I originally went in for a regular mammogram screening and was called back with a BIRAD 0- needs further evaluation. At the follow up there was persistent architectural distortion after performing a TOMO, spot compression and magnification views, so I needed an Ultrasound. When sonographer went it to view it with the Radiologist, he ended up coming in the room to watch her perform it because there was an area (I have heterogeneous dense breasts) they could not identify and he recommended an MRI and not wait 3 months for follow up. I had my MRI last Thursday and got the results yesterday. There is a spiculated 4cm mass enhancement with extensive intraductal enhancement measuring up to 4.4 cm in the upper outer quadrant of right breast and a lot of other terminology used that I don't understand however it was given a BIRAD 5, highly suggestive of malignancy and appropriate action should be taken. I go for my biopsy this Thursday. Anyone else have anything like this and if so, what was the outcome? I am at a point where I just need to know what I am looking at :) Thank you!

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited September 2018

    Hi there. That is a pretty typical path: mammogram then ultrasound then MRI then biopsy. Mine turned out to be a tiny, pea-sized tumor, but not everyone who has a BIRADS 5 ends up with breast cancer. So while it's tough, try to be optimistic until the biopsy results come in. We're here to help and I'm glad you found us.

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  • Okkate75
    Okkate75 Member Posts: 151
    edited September 2018

    Oh, it's so scary! When I saw that BIRADS-5...well, I couldn't stop crying. Until I knew what it was and what the plan was to move forward. BIRAD 5 usually means malignancy, and that word "spiculated" is a scary one. But you won't know for sure until you get your biopsy results. In the meantime, trust me that you are at the very worst part of everything. I ended up having cancer, and I'd still rather do chemo again than go through what you are going through right now. You can do this, scary as it is. Hang in there!

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  • CarFal21
    CarFal21 Member Posts: 10
    edited September 2018

    I'm sorry, I don't have words of advice...I read your post because I was just called back with a Birads 0 - Incomplete in Left breast due to Dense Breasts and Asymmetry.  I have my Diagnostic and u/s scheduled next week.  Just curious, do you have any symptoms (feel a lump, etc?),  and when you received your original Birads 0 report, did it state any more details? 

    Hope everything goes well with you!!

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited September 2018

    Volleymom, a Bi-Rads 5 has about a 95% chance of being cancer. You can hope for the best, but in reality you should be prepared to receive a confirmed cancer diagnosis.

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  • vollymom1
    vollymom1 Member Posts: 4
    edited September 2018

    Hello and thank you all very much for your honest feedback :) This has been the most stressful, agonizing and scary time I have ever been through. I think I am still in a little bit of denial and shock and I guess I won't completely accept it until pathology comes back with confirmation even though I am preparing for it to be cancer. Thank you for the support, I really appreciate it. I'm sorry you ladies have been through this :(

    Okkate75, yes, I have to agree, although I haven't been through chemo and I am sorry you have, this process is the hardest thing to go through :-/

    CarFal21- asymmetry is a normal finding on a mammogram in women with dense breasts. I too have dense breasts and have asymmetry for years, I am 44 years old and had my first mammogram at 38. Just be diligent in getting your exam every year :) As far as there being more information on my report, not so much this year on the initial screening, which just showed subtle asymmetry, essentially stable calcifications, bilateral waxing and waning nodules. However, last year, it showed architectural distortion, microcalcifications and a 2cm obscured partially circumscribed mass (ended up being a benign cyst), and was called back for further evaluation in which I had the diagnostics and US. After your diagnostics and US you will have more information, but so far it sounds like they are just wanting to check be sure about the asymmetry. Is this your first mammogram? If so, they don't have any past reports to compare it to, so that could be another reason you are being called back. I hope everything goes well for you and please feel free to ask me anything because I have been through this a couple times and the hardest part is not knowing anything and the waiting. Hang in there :)

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  • JoniB
    JoniB Member Posts: 346
    edited September 2018

    vollymom1 - I know this is a stressful time. Not knowing is definitely the hardest part. I remember trying to find people on this board with a birad5 that turned out to be benign, too. My biopsy turned out to be B9 and then it wasn't - the radiologist did not trust the b9 results and had me do a second biopsy where they took many, many samples and luckily found the area with the malignancy. Was it hard emotionally? Yes. But the worst part was not knowing and waiting for surgery/treatment. Once that was in place, things get better. Wishing you good results on your biopsy.  

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  • CarFal21
    CarFal21 Member Posts: 10
    edited September 2018

    I actually had a diagnostic mammogram and u/s 6 years ago when I was 34. My ob said I felt thicker on my left breast than my right. The tests were all clear and I had a follow up the next year, all clear. I’ve always had dense and asymmetrical breasts, so I’m just a little concerned as to why it’s prompting a call back this time. Thanks for your reply, all the best!

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  • vollymom1
    vollymom1 Member Posts: 4
    edited September 2018

    Hello all! I got my pathology reports back and I have a radial scar/sclerosing lesion and have to have it surgically removed. There is still a chance that once removed, there will be some malignancy involved, but so far no malignancy!! I am very relieved but a little skeptical only because the MRI was a BIRAD 5 and that to me seems very odd especially since all the things listed in the MRI report were very highly suspicious and they were convinced it was malignant. There are other discrepancies from the MRI vs. the US and it's not sitting well with me. Not to mention when they did the biopsy, they took it from a lesion 4cm from the nipple and the mammogram and MRI were showing the suspicious distortion at 6cm from the nipple. I will talk more about this with the surgeon which I should be getting in to see soon.

    JoniB- I'm so sorry yours ended up being malignant and I am so glad you and your radiologist investigated further. Do you mind me asking what type of cancer yours ended up being? I am very concerned with my outcome because of your experience, I really appreciate you letting me know, because now I will definitely have it looked into further. I am not 100% convinced that they checked the whole area (MRI showed excessive intraductal enhancement measuring 4cm but when doing the US guided biopsy, she only saw an area of 1.2cm) and I need to be 100% sure or i'll always be worried that malignancy could still be lurking around in the other area.... Can you tell me a little more about your BIRAD 5 results?

    CarFal21- you experience with prior mammograms sounds like my experience. I had the same thing for the past 6 years, then last year I was called back for the first time and the reason for it was an architectural distortion, calcifications and a mass that was listed on the report. It is a little odd that there isn't more listed on your mammogram other than the same asymmetry, so it's good that they are going to take a second look! The mass last year ended up being a cyst and the calcifications were benign and they never did say what the architectural distortion was, but now that it appeared on my current mammogram, I am thinking it was the start of what is going on now..... Please keep us posted on your outcome and if you have any questions I am happy to help :)

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  • JoniB
    JoniB Member Posts: 346
    edited September 2018

    Vollymom1 - I'm happy to hear that so far your results are B9! Hoping you will continue to get good news. My cancer was IDC. However, mine was very small. That combined with scaring from my first cancer and very dense breasts must have made the area hard to find.

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