How many rounds of TC did you do?

GracelessLady
GracelessLady Member Posts: 2

First time poster here, but I've been reading and learning a lot from you ladies. You are all amazing!

So, a little background: diagnosed this May at age 41 IDC in R breast, stage IIA, grade 2, 1/3 sentinel nodes with micrometastasis, ER+, PR+, HER2-. Had a lumpectomy with bilateral reduction in June. Just had my 4th round of TC.

And here I am. The chemo plan was to "get to 4 for sure, but 6 if we can." "We" (I) am feeling done with chemo. I know people have probably been through a lot worse, but my body, mind, spirit want to leave the chemo behind. My oncologist said it's up to me. He says there's a "small, incremental improvement" to going to 6, but ultimately it's my choice.

I'm just feeling soooo worn out; the effects are really getting to me. And there's still a lot ahead of me: radiation, most likely induced menopause/ovary removal, hormone therapy.

So, wonderful as you ladies are, I know you can't make the decision for me. I would, however, love to hear about your experiences, thoughts. Thanks!

Comments

  • DebAL
    DebAL Member Posts: 877
    edited September 2018

    Hi Grace, I stopped at 4. Was never offered 6. I am assuming going to six is because of your 1 positive node.

    I hope you are feeling ok overall. Hopefully you have a few more weeks to decide. ((Hugs))

  • wanderweg
    wanderweg Member Posts: 549
    edited September 2018

    Grace - I was offered only 4 by both oncologists I consulted, and that was with a very high oncotype score. But I was node negative. My oncologist said you avoid the worst of the side effects by stopping at 4, which may be why. I just have my second round tomorrow and I'm already tired of it! I wish you luck with the decision.

  • HikingLady
    HikingLady Member Posts: 650
    edited September 2018

    My treatment protocol was TC x 4 because of tumor histology and also node negative was part of the equation. Sounds as though you have a thoughtful oncologist. If he's admitting that maybe the increased benefit isn't worth the cost, and if he's clarifying by sharing whatever % risk that means, etc., you'll be able to weigh the risk benefits and decide the right choice for you.

    I'm worn out after 4. I finished 13 days ago, and I'm still SO exhausted. I can imagine that two more would be very difficult, but people do it.... they are made of steel,those people? Somehow, people do get through much worse protocols than what I had. I've been thinking all along that life/myself was on PAUSE during chemo, and I suppose I could have summoned up more strength for a longer treatment, but I can totally get where you're coming from...

  • Okkate75
    Okkate75 Member Posts: 151
    edited September 2018

    My onc said that studies have not shown increased survival benefit at 6 rounds rather than 4, so I did 4. Good luck making these decisions!

  • Runrcrb
    Runrcrb Member Posts: 577
    edited September 2018

    I'm older than you, lower grade tumor but did have more node involvement. Thinking back my oncologist may have mentioned 6 rounds but by the time we got going, 4 was the plan. We never discussed more and I handled chemo really well.

  • letsgogolf
    letsgogolf Member Posts: 263
    edited September 2018

    I am guessing that it depends on your Oncotype score. I had micromets in the first node and did not have any chemo due to my very low Oncotype result. Was your score in the higher range?

  • HikingLady
    HikingLady Member Posts: 650
    edited September 2018

    My Oncotype DX was 59. In my case, that score had nothing to do with planning my treatment or my chemo regimen. It just was the decider about getting chemo or not.

    My oncologist had my chemo treatment regimen planned way before we knew that number. He said that my chemo tx was based on my tumor pathology, surgical pathology, node -+ information, etc. I'm quite sure he follows the NCCN treatment guidelines. That's a collection of research data that we all benefit from, where meta-data analyses are guiding ever-more-successful treatments and outcomes.

    He explained my chemo plan and which factors informed it, many weeks before we had the Oncotype DX score back. My chemo started 4 weeks after BMX surgery. He ordered the Oncotype DX after he'd seen the surgical path. report, because suddenly thought that there might be a chance that I would fall into a Maybe No Chemo After All category.

    My Grade 3 is a BAD thing. But, Node negative is a GOOD thing. Once the surgical margins came back clear, and also the node negative information was good news, and also the whole path report clarified that the tumor didn't have vascularization or lymphatic involvement, he was kind of hoping that my Oncotype DX would tip the other way, and maybe I wouldn't need chemo. So, he ordered it at THAT point. It's a proprietary test, but I'm guessing that it weighs the Grade 3 information quite heavily. And, that Grade 3 is my scariest dx fact, of course....

  • GracelessLady
    GracelessLady Member Posts: 2
    edited September 2018

    Thank you so much for your insight, ladies. I have some time to think about it, but I'm really leaning toward stopping at 4 and moving on. The benefit I would derive statistically just doesn't seem worth it. I gotta hand it to those who are able to get through much longer courses of chemo - they must be made of tougher stuff than I.

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