Bottle 'o Tamoxifen

I have never had any issues with getting a flu shot.

Karinna - I took Effexor years ago and experienced all those symptoms while discontinuing it. It was awful. I finally started my own ‘weaning’ schedule. I cut the pills and would decrease the dosage every week or 2. It took me at least 8 weeks to come off it

I’ve been on Tamoxifen for a year and haven’t had a period in about 4 months. But they were pretty regular for the first 6 months. Hope they are done.

I have a fun new se. Feet (both of them but the right more than the left) pain. Worse in the morning when I get up but not wonderful all day either.

And leg cramps are making a comeback. ( I’m trying pickles, will let you know how that works out. )

Anyone started talking funny? I don't know if I am trying to talk to fast but I keep messing up on talking. For example I ordered my son a "pooberry pomegranate fruit chill" instead of a blueberry, when saying rain, it came out Rhannon, these are just a couple examples. I don't want to talk anymore it's embarrassing how stupid I sound and then feel.

TaRenne - you are not alone with the foot pain, I have to really watch it or they get stuck in painful positions! I am trying a new magnesium from my natralopath. Can't wait to here if pickles are my answer!

Lula & vampeyes, my tongue stumbles over words sometimes too! I've said some strange things at times but thanks to another SE I can't remember an example just now😀

Wow. Into year 2 of tamoxifen and in the last 2 weeks it's like my body has seized up. I'm the Tin Man in need of oil. Everything hurts. It took a while to clue in how stiff I was but yesterday I realized I was avoiding bending over because it hurts my hips to articulate like that. Squatting is just as painful. So if I drop something ... well shit. There it is. Down there. On the floor. And here I am. Up here. And my bendy parts aren't bendy anymore.

I have had joint pain and general stiffness in bed, at night, when I'm not moving much, but up until very recently had no stiffness issues during the day. Now? Holy crackers! It's like my body is crinkling and creasing and folding in on itself like a lawn chair. Extension and flexion of all joints has become slow and painful. Yoga, here I come (laying flat on face and moaning).

I started Tamoxifen on June 30th (my 50th birthday, what a gift) and I had to stop for two weeks for a surgery I had Sept 4. I haven't had my period since August and I'm wondering if going off Tamo for a few weeks has thrown me off or if I just won't have periods now. I was like clockwork before this. Missing a period is like a slacker boyfriend - I don't really want to deal with it on a regular basis but I kind of wonder where it is when I haven't heard from it.

Hi, Joyseeker 43,

I take Effexor for the menopause symptoms (prescription).

Yes, tamoxifen made me constipated! I take Magnesium glycinate (OTC - I get from Amazon - Pure??? Brand) for the constipation, 250 - 400 mg. I take the magnesium in the evening. Do not get magnesium oxide, it will make you more constipated. (I’d been taking magnesium on orders of my cardiologist for years, never had a problem until I started tamoxifen.). If you like dates or figs, I also eat one before bedtime with a few nuts - just my routine.

Good luck!

This is just a quick note to let anyone know that forgetfulness on Tamoxifen is a real symptom as far as I'm concerned.

Recently I forgot to go to sing in a folk choir at church then I forgot again at the next session 2 weeks later despite having practises in between. They were there in church merrily singing whilst I was sat at home oblivious. Unbelievable. I felt terrible and said sorry on Whatsapp to the choir members and also sent them a link about Tamoxifen and forgetfulness.

https://www.answersbeyond5.com/blog/5-tips-tamoxifen-brain-fog/

Even so I can't believe I've been that forgetful. I've set a mobile phone alarm for every Saturday night to beep and say 'folk choir tomorrow ?' I hope it works

"Missing a period is like a slacker boyfriend - I don't really want to deal with it on a regular basis but I kind of wonder where it is when I haven't heard from it."

OMG, this is hilarious. And true!

Joyseeker, I have foot pain as well, only mine in the tops of the arches to the toes. Magnesium was working, but not so much lately.

I have flat feet like a duck and have lived with foot pain all my life. I wear custom arch supports 24/7 or the pain in my feet would literally have me crawling around on hands and knees. When my weight changes, at all, upwards (what other stinking direction does it go?!) my feet are the FIRST to notice. If some of you are walking ever so slightly differently because the tamoxifen makes you a wee bit stiff in the hips and knees, that can translate into foot pain. If there's a way to have foot pain, I've had it. And that feeling in the morning, that sitting on the edge of the bed not wanting to put your feet down and stand because it feels like the bones are made of glass and are going to shatter ... I've had that for years prior to tamoxifen. Weight gain, change of stance or way of walking, all of it can make feet hurt. All of it can also be caused, directly or indirectly, by tamoxifen too.

I sit here in my 66 degree house in a sleeveless shirt sweating:(. I just spent a few days in the hospital and they decided to give me my evening meds in the morning, skip doses etc. And now the side effects have gotten worse, they decided venlaxifine should be in the am instead of a PM dose, then missed another dose when I convinced them I needed it to be at night. I was so sick I couldn't even argue a couple of days. Of course in the end I also lost my new silicone implant due to infection so now I am flat on one side...I have yet to see how it looks as there are lots of bandages covering it taped tightly. I have to go back to work on Monday, I have to figure out how to make things look normal by then as I work in a doctor's office and do not want the patients to notice .

It is funny how last November after a year of 1 medical issue after another, my coworkers kept telling me "next year will be better, it certainly can't be worse.," Of course then I got diagnosed with cancer and this year has not been better, but I swear I will punch anyone who tells me that next year can't be worse than this year as it almost feels like it is a challenge that the universe will try to win. Anyone else have one side flat? I am still sore, wondering what to do until it is more healed to look normal.

Yum! I love ice cream!

I took Tamoxifen for 4 years. Started out on Arimidex. No unmanageable issues. I did have joint pain and difficulty concentrating at times. I was blessed because lots of women suffer with debilitating side effects from the drug.

Diane

Hello! I've been reading through some of the posts here and haven't found quite what I've been looking for.

My breast cancer story is pretty much I think my bio at the end of each of my posts. I am POST menopausal.

I have cycled through ALL of the AIs, doing letrozole twice. All have had side effects that have changed my quality of life without giving me a lot of extended quantity projected.

I was off all AIs for a month until all the side effects lessened or completely went away.

I just started tamoxifen a week ago at the urging of my MO. He claimed less bone pain and loss and a lowering of my high cholesterol.

Within 5 days, I started having menstrual-like cramps and a yellow discharge. This is day 3. I decided to give it at least a week before contacting the MO. His nurse never mentioned this kind of SE but encouraged me to try it for several weeks before calling back about SEs.

I'm wondering if anyone else here is post menopausal and taken tamoxifen and experienced these symptoms and if they went away after first starting.

I'm really not digging the constant pain nor having to wear Pantiliners again! This is not quality of life. I'd rather go back on Letrozole and deal with the aches and pains.