September 2018 Surgery Support Group

2

Comments

  • KushtiBok
    KushtiBok Member Posts: 5
    edited September 2018

    Hello ladies, I will have a double mastectomy September 20th. I’m so nervous. Some days are better than others. I currently have implants so I guess they will remove them and put in TE’s. I am going smaller. I plan to eventually get a aeroela and nipple tattoo. Hope your all doing well after surgery. I hear the drains are the worst part. Glad I found this group. Take car
  • She38
    She38 Member Posts: 9
    edited September 2018

    Hi ladies,

    38 yrs old. Just had a skin sparring mastectomy and reconstruction with implant done on September 11th. I am already out of the hospital and starting the at home physio recommendations. I still have two drains. One from my lymph nodes and one from my mastectomy site. I am so glad this step is over, but now to wait for the results from the pathology report. I know exactly how all of you ladies awaiting surgery feel and just remember one thing "We are always given enough strength for the next step". I just kept repeating that over and over on my surgery day and again during this recovery process. I am wishing you all strength and courage as you wait and recover from your surgery.

  • LinnyG
    LinnyG Member Posts: 44
    edited September 2018

    9/25 - L mastectomy with tissue expander. Mucinous carcinoma. Since I have 2 sites, lumpectomy not doable. Keeping busy between all the visits. Feeling good about both surgeons and have a wonderful nurse navigator. Ready for it to be over! Good luck to all!


  • aisling
    aisling Member Posts: 25
    edited September 2018

    Hi Sept 10 ladies (and all September warriors!)

    My surgery was successful. I spent 2 nights in hospital only due to being a bit lightheaded/nauseous and my house is at the top of 3 flights of stairs so better safe than sorry, but really no complications (knock on wood). I was expecting an elephant to land on my chest based on what I’ve read, but he never showed up, just some bearable tightness around the upper pole and obviously some pain but well managed with percoset, gabapentin (for nerves) and baclafin (sp? Muscle relaxer). This combo is really great! The drain sites hurt if I move but are not on “fire” as some have experienced.

    I did direct to implant under the muscle nipple sparing. I think my right nipple might be a bit off grr and the left implant is riding a bit “high”, but have been told it really takes 3 months to figure out where things will land so I will try to be patient!! I really can’t complain as it looks like they did a good job overalland it was nice waking up with boobs.

    Hard to believe it’s already Friday! Positive healing vibes and hugs sent to all.

    Sam

  • Linda2119
    Linda2119 Member Posts: 85
    edited September 2018

    Hi, everyone,

    My surgery was on Monday. It was done at an outpatient surgical center - took about two hours. I had a single mastectomy on my left side with an pre pectoral implant. My nipple was spared - although I haven't had any feeling in my nipple since my lumpectomy.

    I'm in very little pain - just discomfort. I went home with two drains, one of which never produced much output. I called the PS yesterday and was able to get that drain removed. The other drain will be in until mid next week.

    Its difficult to sleep on my back, and I have some soreness where the alloderm was stitched to my muscle, but it is all tolerable I'm generally pleased with the look of the implant, but I'm not sure yet on the feel of it. It feels like a blob is on my left side, which I guess is what it is....

    And the best news - pathology report came back normal! I'm so relieved.

    Have a great weekend, everyone.

  • wlo002
    wlo002 Member Posts: 46
    edited September 2018

    Hey ladies. I had my BM on Thursday with TEs placed and it all went great. I had a lot of pain Thursday night and Friday but I would describe today as uncomfortable. The 4 drains are most definitely the worst part. I've had some phantom nipple pain...it's crazy to feel something that isn't even there anymore. The PS put about 200ml of saline in the expanders so I have a little boob instead of being completely flat. I'm pleased with the incision sites...nice and straight. I'm eager to see how they progress!

  • WigLButtz
    WigLButtz Member Posts: 11
    edited September 2018

    Hi everyone :)

    I am so glad to hear that everybody's surgery went well and that we are all on the mend. It really does get easier every day.

    My second drain was removed Thursday and that made me feel 400% better. The only real pain I get now is if I bend over too fast and my expanders move abruptly.

    I go back to plastic surgeon on Monday and he said he will probably be removing the staples that day. That sounds terrifying to me, so I put aside my last Norco to take that day before we leave the house. Its an hour drive to PS's office.

    My surgeon was super stingy with the pain meds. Only gave me 18 pills of 7.5/325 hydrocodone and 9 Flexeril pills. Good grief. Glad my husband had some left over tramadol and I used that at night with the Flexeril.

    I am thinking about all you ladies and wishing everyone a speedy recovery. Stay strong!!

  • Wink22
    Wink22 Member Posts: 39
    edited September 2018

    Hi wlo002, how did you go?

    I also had a BMX on Sept 13th with LD reconstruction. Day 1 was no fun with a fair amount of pain but once my pain relief was sorted out I started to improve. Now moving around the ward and doing a lot more for myself today. I have 4 drains, one of which will come out tomorrow. I actually feel better than I thought that I would at this stage, I hope all who have had their ops are feeling well, healing vibes to all:

  • peacemakinmutha
    peacemakinmutha Member Posts: 1
    edited September 2018

    Just found this site and already beginning to feel the community with all the supportive posts. I will be undergoing brachytherapy to save the breast on September 24th, followed by 5 days (2x/day) radiation delivered with the SAVI device (pending the results from pathology). I am nervous and keep second guessing my decision to save the breast rather than choosing to have a MX. At appointments, the surgeon and medical oncologist ask about pain and there had not been any... but now there is, in both the breast and armpit. I’ll definitely be letting them both know tomorrow when the offices are open, but am a bit freaked out that the disease could be progressing.

  • pastasmissus
    pastasmissus Member Posts: 2
    edited September 2018

    Turns out mine was lobular, bigger than they thought and 2/4 sentinel nodes affected. So now I need CT and MRI to see if I need surgery to other breast and which lymph nodes. Then axillary node dissection, radio and chemo in some order depending on scan results. Wound healing well, but still pretty sore :-(

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2018

    11 more days until surgery. Weekends are harder as I think about it more often. I was diagnosed August 2nd and I didn’t think I would have to wait this long. Doctors keep saying I’m within the window. It will be okay. Yeah tell my brain that

  • wlo002
    wlo002 Member Posts: 46
    edited September 2018

    Hi ladies. I'm doing pretty well post-op. I only spent one night in the hospital and had a little trouble with pain control in the beginning but today I've been spacing out my meds a little further to start weaning myself. I highly recommend a recliner for sleeping! I dont think I could have propped myself up in bed and still have been comfortable.

    The TEs are what causes me the most pain. I don't have any pain around the incisions. I see my PS Wednesday and I'm hoping to have a couple of the drains removed. Two of them are putting out less than 5ml at each dump.

    Best wishes for everyone having surgery this week!

  • She38
    She38 Member Posts: 9
    edited September 2018

    I am 1 week post op. Mastectomy and reconstruction direct to implant. I am only taking tylenol extra strength now as I broke out into hives from the pain meds or antibiotics I was on. My drains are producing less and less each day. Hopeful they come out soon. I would say night time is uncomfortable and I prefer sleeping sitting up. My chest feels heavy and stretched if I lie flat. I stick a pillow under my knees and 3 pillows behind my back. My arm is sore too from having lymph nodes removed. My incision is wrapped in a tenser type dressing and I will not have it removed until the end of this week. I have not seen the incision or implant and I am very nervous about seeing my PS on Friday. I am thankful to find support in this group and would love to hear your experiences. I can not shower until these drains are out, but yesterday I went to a salon to have my hair shampooed and blowdry. It was heavenly and they were very gentle and accomodating.

  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    I will be having surgery in the morning. Today was spent looking for button up shirts and taking calls from the surgery center about what not to do and how much I need to pay in the morning. I am very nervous.

  • victorialee
    victorialee Member Posts: 20
    edited September 2018

    Annie60 - sending warm thoughts your way. As someone once said to me- Nervous feelings are good, shows you are alive. My MX surgery is next Wed, the 26th. When I had my lumpectomy I took a clanosopam (sp) and kept telling myself I was ridding myself of this tumor and had the best doctor's helping me. Deep breathing helps too. Let us know how things go.

  • Wink22
    Wink22 Member Posts: 39
    edited September 2018

    good luck for tomorrow annie60, you will be relieved to have the surgery behind you. I sympathise, I was so nervous the night before my op. That really felt like the hardest part.

    Pastasmissus, sorry to hear that your plan is more complex now. I did chemo from April until end of July. The chemo monthly support boards here really helped me. Hoping for good news from here on in for you.

    I’m going home tomorrow! Last two drains coming out tonight if all goes to plan. Can’t wait to sleep in my own bed. I had a look at my chest today, not as scary as I thought it would be. I have aero expanders and the surgeon put a very small amount of air in during surgery, that plus the LD tissue is enough to make very small beginnings of boobs

  • aisling
    aisling Member Posts: 25
    edited September 2018

    It’s been a week since surgery (sept 10) and saw PS’ nurse yesterday who removed 2 drains - surprising the deeper ones that still had around 30-35 a day not the subcutaneous ones that barely had any. She said he likes to get the deeper ones out “the sooner the better” since they communicate with the implant /risk of infection but they don’t take out the subq ones for 10 days...

    My bigger surprise is that apparently I don’t see my PS again anytime soon. I was direct to implant under the muscle and they don’t see the “point” since the next meeting would be to evaluate things they could continue to improve, and things are still settling now. I see my BS tomorrow though. What would the “point” of that be since you could make the argument we already know the biopsy results? They all work together at City of Hope. Honestly I’m feeling a little grr. Yes things are settling but i do have questions/concerns. Is it normal not to see your PS after surgery

  • wlo002
    wlo002 Member Posts: 46
    edited September 2018

    Hi Aisling. I'm not sure what the norm is but I had surgery the 13th with TEs placed and I see my PS tomorrow and BS on Thursday. It does seem a little odd to me that the PS wouldn't want to see you, too, but I don't know much about the direct to implant process.

  • She38
    She38 Member Posts: 9
    edited September 2018

    hi aisling,

    I also had reconstruction direct to implant and I was surprised too in learning we don't get to see the PS sooner. I will get my drains removed tomorrow as they have been at least 2 days producing less than 30cc. I will go to the breast clinic where I had my surgery to get them removed. I have an appointment with my PS on Friday which will be a week and a half after my surgery. I have been wrapped in a dressing that is tight like a tenser bandage and I will have it removed by my PS on Friday. I am so nervous. It is frustrating and does make me a bit mad too. I guess they know what is best. It just seems strange not to be checked over sooner.

  • PALIMOM
    PALIMOM Member Posts: 9
    edited September 2018

    I had my BX on September 17. Woke up at 4am on the 18th with enormous swelling on my right side. Passed out getting up to use bathroom. Had to go back into surgery to repair hematoma and got two bags of blood transfusions. Feeling better today but really surprised at how much pain there is. Everyone keeps telling me that you can never have zero pain after a mastectomy and that it's not even desirable to (not sure why that would be), but this is way worse than my two c-sections and my wisdom teeth removal combined. BTW they have me on Tylenol and oxycodine

  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    I am home. Recovery room was hard - but now just woozy and sore. Thanks for the thoughts and prayers. I will see my surgeon next week and get an appointment to see medical oncologist to start chemo and radiation.

    Palimom - I am so sorry you are in so much pain. I hope today is going better.

  • PALIMOM
    PALIMOM Member Posts: 9
    edited September 2018

    Annie60 that’s great that you got to go home right away. I am feeling better after a nerve block. Hopefully I’ll go home tomorrow but I’m worried what happens when the nerve block wears off. They had to completely deflate one of my TE’s after the swelling incident so I’m all hard bumpy plastic on one side but that’s the least of my worries

  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    Day 2 after the surgery and I am sore and woozy. I hate the surgery bra and have another day in it. This has been a year. I developed asthma which I haven't had since I was six, got gout in my hands and now breast cancer. Been retired 4 months and now bc.

    Palimom- I hate that you are having such a hard time. My doctor told me to take the pain meds even if I felt I didn't need it to stay ahead of the pain. Let us know when you make it home.

  • PALIMOM
    PALIMOM Member Posts: 9
    edited September 2018

    Annie60 sorry to hear about the gout and asthma. That's a lot to deal with at once. Take care of yourself. I am home now and feeling better. Pain is still there but it's bearable. Just got the final pathology report that there were no other cancers in there so that's a big relief. Now I can focus on healing and getting these drains out. Seems like a long way off still

  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    Palimom - so glad you are home and handling the pain. I also got my pathology report today. Margins are clear but there is lymph node involvement. So no more surgery but more drugs for chemo. This road just keeps getting longer and harder to climb.

  • PALIMOM
    PALIMOM Member Posts: 9
    edited September 2018

    Annie66, sorry to hear about the nodes. At least the margins are great news but I’m sure chemo is not what you were hoping to hear. Have you been able to sleep? I am not very skilled at pillow management but have been able to grab a couple hours’ worth at a time. Took a double dose of oxycodin at 2:30 am and woke up two hours later with a large pool of drool that had accommodated in my collarbone. Sorry if that’s TMI.

    Hang in there and take things one day at a time

  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    Palimom -Thanks for the smile! Trying to find a comfortable way to sleep that doesn't include a recliner.

  • wlo002
    wlo002 Member Posts: 46
    edited September 2018

    Hang in there Annie60 and Palimom...it does get better every day. I was able to wean off the pain meds about day 4 or 5 and just use Tylenol...not saying I was totally comfortable but the pain was doable. And yesterday I drove for the first time.

    Today I saw my MO and she had my pathology back...I got a 97% chemo/immunotherapy response rate which was awesome. I won't lie, though, I was disappointed when I didn't get the complete response. Studies showed that my regimen and receptor status results in about 80% getting complete response. Meeting with the RO next to determine if radiation will be needed. Fingers crossed...

  • PALIMOM
    PALIMOM Member Posts: 9
    edited September 2018

    wlo002 - thanks for the encouragement and congrats about the chemo response. I’ll keep my fingers crossed about the radiation.

    Annie66 - hope you’re doing okay. We don’t have a recliner so it’s not an option for me, but anything that works is great

    Yesterday (the 21st) was a turning point for me. I still am taking all the pain meds but feel much stronger and there’s less pain in general. I am starting to imagine feeling normal again. Today I went to the pharmacy and then got a latte at Starbucks. Felt a little self-conscious because I have one TE fully deflated but I wore a big baggy shirt and didn’t notice anyone staring in horror. I have two minor issues - I haven’t pooped since the surgery and a rash has appeared on my leg and torso. My surgeon said to take Benadryl and Dulcolax which means I am now one med away from needing a CPA to help me with my dosage schedule.



  • Annie60
    Annie60 Member Posts: 328
    edited September 2018

    wlo002 and Palimom - thanks for all the words of encouragement. Glad you both are getting better. Today was a decent day. Sleeping last night helped a lot. No pain meds and football on TV: a good day.

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