Triple negative

smansmom -

Hang in there. I am a year and 3 months out from diagnosis and doing well. I have had a few teary days though and it's completely normal. You can do it! Sorry you are here with us and I can only imagine what a shock it was to get this kind of diagnosis so soon after having a child. There is such a focus on TNBC right now and so many new treatments being researched, I have a lot of hope and you should too!

Rebekah

Hang in there, it gets better!

If you fill out diagnosis in your profile and then change the settings on the community boards to make it public, it will show up in your sigline and we can share more specific tips relating to your chemo protocols.
Consider joining the month specific chemo threads (starting in Aug or Sep) and also this thread which has a lot more activity https://community.breastcancer.org/forum/72/topics...

I cannot imagine the timing of your diagnosis, nor trying to deal with an infant while undergoing treatment. Sending a hug and courage to you. I am TNBC also, and also at the beginning of treatment.

A good thing to remember is that TNBC recurrence drops way down at about 5 years. Our job is to kill "the little assholes" (as a friend of mine put it) and keep them dead for 5 years. Then we get to be done, and leave cancer in the rearview. Lean into your treatment. You have the best reason of all to do so, and to live a long time.

There is a lot that you can do with diet and lifestyle to boost your odds, build your health, and protect yourself. Posted about that in the other thread. Good luck to you!

Hello everyone,

Five years ago my doctor told me that I didn't need to have my mammograms anymore. I'm 52 and my mother had breast cancer so I thought that this was weird but still did the law of the Herd. Biggest mistake of my life!

This July I was diagnosed with stage IIIC breast cancer triple negative. Hers 1 and 2 neg I don't carry the gene.
When they told me I thought you have the wrong lady I'm healthy!!! I just had all of my blood work done in the spring no sign of cancer. I went in to have a mammogram because my new Dr wanted one before I started seeing her. Well, they found something and did a ultrasound and then followed with the biopsy.
I have stage 3 what!!! Mammograms save lives. The radiation is no more than what you get from a microwave or dental x-ray.
I am going through chemo, mastectomy, and 36 radiation treatments.

I have finished up 4 rounds of Adriamycin/ Cytoxan I had this every two weeks and Neulasta. I had many side affect from the chemo and medications given to me.

1.) Day one of Chemo- I felt fine. I was given medication for nausea and Adivan for Nervousness.

2.) Day two- Neulasta injection - I had nausea in am and felt very hot.

3.) Day three- Nausea and a lot of bone pain cause from Neulasta. I started to have a throat thickness start. Like vinegar in my throat.

4.) Nausea, Throat pain, loss of appetite, tightening in my chest. (I have asthma). Tiredness.

5.) Nausea, sores in my mouth and most of the sores came on in week two recovery week.

6.) Rash under my boobs and on tummy. Am Nausea, loss of Appetite,

7.) Am nausea, tired a lot, starting to eat again (food taste like tin. very weird),

The next week was pretty good other than I had sores in my mouth and throat. (I used Chlorahexidine rinses), I was tired but tried to walk my dog everyday. x 2. I would get out of house as much as I could.

I have had really bad constipation with each round. I'm on Miralax and stool softeners 4 a day. (Each time its like the chemo and meds shut down my bowel for up to 1 week to 10 day.) this last chemo I thought that I was going to die from the pain in my stomach due to constipation. (I now have sodium citrate to drink.) I suggest drink 1 whole bottle.

I also lost both of my big toe nails. They started to have a lot of pressure under them for about 1 week so I went to a foot doctor and he had to remove them. I'm just now getting healed up it was very painful..

I went yesterday to the urologist because I do get Kidney stones and I have a whole bunch of them that I'm now scheduled to have surgery to have them removed due to the fact I'm starting to have pain in my Kidney.

I start my Taxol/ Carboplatin on this coming Thursday. I'm nervous to see how this is going to go due to all the side affects that the AC brought on. I have 12 weeks of this every Thur. .

on a good note they say it should be easier than AC...I'm also very nervous to have a surgery and chemo too in the same week. Please pray for me and for God to give me strength and His Grace.

In Dec. I will have a double Mastectomy and then start the Radiation. I have so many feelings about this journey and love to read everyone else's journey.

I have a parathyroid issue That is why I get the stone in my kidney so after all of this I will look at getting my parathroid out and Reconstruction of my breast.

I can't wait to have my health back because up until now I've been so healthy never needing any Meds. Sometimes we take our health for granted and I guess I did just that. I'm 52 and very active. I manage dental clinics and have raised two children and have two grandchildren. My husband is my strength everyday to keep going....I love him so much.....

I can tell you some days can be very dark while going up against this monster called breast cancer. any stage is so lonely..... please keep a health mind and reach out to people whom love you because that is our strength against this awful disease.....

I will continue to share my Journey so that I can help other with the what ifs and all the side affects you can have with the many meds that they are putting into our bodies.

I will pray for each of you in my prayers and please add me to your list...

God Bless,

Teresa