Mri can detect invasive labular carcinoma?

Rizz
Rizz Member Posts: 72
edited May 2020 in ILC (Invasive Lobular Carcinoma)

hi there

I have heard that ILC is difficult to detect in mammogram and ultrasound.can MRI detect it PLEASE tell me as I have to pay for Mri out of my pocket I have no insurance just to make sure that if mammogram and ultrasound couldnot detect any thing seriousMri would be a good idea or not

Thanks

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    PLEASE reply anyone

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  • RyansMomma
    RyansMomma Member Posts: 18
    edited September 2018

    Rizz, My ILC was found on my MRI. I would definitely get an MRI done to ease your mind. I hope that everything is benign for you. Sending hugs.

    Ultrasound had missed my ILC, which doesn't surprise me. It's common with this type of cancer. :(

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    thanks alot ryansMomma

    If MRI come back ok means nothing serious does it mean I can relax

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  • RyansMomma
    RyansMomma Member Posts: 18
    edited September 2018

    Rizz yes. :) MRI's are pretty darn accurate. ILC is the best detected on an MRI. Good luck and I hope for benign results for you. Keep us updated.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    thanks a lot for ur kind reply I will definatly update :)

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  • dakrock
    dakrock Member Posts: 99
    edited September 2018

    Yes an MRI will show ILC.  Mine did.   It is expensive so I would look for help to have it done

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  • RyansMomma
    RyansMomma Member Posts: 18
    edited September 2018

    I honestly feel that MRI's should be offered as a part of screening for women without family history, since some cancers can get missed on other screening. I feel that then cancers wouldn't be getting missed, especially "sneaky" ILC. I hate cancer. :( I understand if no one agrees with me, just figured I'd give my two cents on the matter.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    yes u are right ryanMomma

    My ultrasound and mammogram are clear I want Mri to be 100% sure but my Dr said no need just 6 months followup. I want to know the cause of indent in my breast thats why I am going to see another Bs .I read alot of stories here that mamo and Us missed their cancer I am afraid :(

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  • readytorock
    readytorock Member Posts: 199
    edited September 2018

    Mammogram and US missed my lobular. It showed on MRI. Best wished to you!

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    thanks everyone I hope its not cancer I will now definitely ask for a MRI

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  • kar123
    kar123 Member Posts: 273
    edited September 2018

    My ILC did not show on any imaging except PET/CT. It was 7.5 cm. Even MRI's can fail. Biopsy is the only accurate test.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    if mri would fail how it can be diagnosed how they can order biopsy if they wont see anything.what kind of ct scan u had it was for chest or for breast

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    plz inform me so I can ask my dr for it

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    plz inform me so I can ask my dr for it

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  • RyansMomma
    RyansMomma Member Posts: 18
    edited September 2018

    Whoa! Your MRI missed yours? I didn't think that was possible. Thank goodness they found yours. Man ILC is sneaky.

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  • RyansMomma
    RyansMomma Member Posts: 18
    edited September 2018

    Rizz, I know this is really scary for you, but try to remain calm. You are in my thoughts. All you can do is just hope for the best. :) I have anxiety over all of this as well. I am worried about the outcome of my life, so I definitely know where you are coming from. I'm hoping for benign results for you.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    thanks ryanMomma for ur really kind words I was bit relaxed that after MRI I can get peace of mind but after reading that comment I am again very worried even after MRI there is a chance oh GOD

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  • SoozyCue
    SoozyCue Member Posts: 43
    edited September 2018

    I think it varies person to person. Mine showed up on everything: mammo, US, MRI, CT... I don't know numbers, but it's probably something like the CT being most accurate, then MRI, and on down the line.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    thanks soozyCue

    Ct scan means chest ct scan?? I had my ct scan done few months ago because of Wegener granolomatosis..should I take my ct scan report along with me to my Dr on my appointment.please advise

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  • kar123
    kar123 Member Posts: 273
    edited September 2018

    it was a PET/CT with glucose of my torso. I had a blind biopsy, meaning the breast surgeon made her best guess as they just felt a thickening. Luckily, she was accurate. I am a rare case but not alone unfortunately.

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  • Dani444
    Dani444 Member Posts: 522
    edited September 2018

    Mine was seen on mammogram and ultrasound, however measured very differently on both. MRI measured closer to the ultrasound than the mammo. I was sent back for a second biopsy, because of probable satellite lesions behind and in front of the cancer area. I guess they usually do a breast MRI at a certain point in your cycle, unless you are already diagnosed. The spots behind didn't "light up" for the biopsy and they said it was because of where I was in my cycle. Evidently due to the changes in your breast tissue while you are on your period can cause normal tissue to "light up".

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  • vlnrph
    vlnrph Member Posts: 1,632
    edited September 2018

    Rizz, do be sure to shop around for the best price since you don't have insurance. Some of the free standing imaging centers, not connected to a hospital or clinic, are quite competitive. Of course, they have to have the proper equipment for a breast scan where you lay on your stomach.

    Also keep in mind that MRI is sensitive but not specific. Meaning, it will see lots of things without being able to tell exactly what they are. That is why biopsy is required for a definite diagnosis.

    You are wise to be educating yourself and seeking a second opinion.

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  • wallycat
    wallycat Member Posts: 3,227
    edited September 2018

    Lobular cancer is tricky to detect because it grows flat and long, not with a traditional "tumor"/mass. Any imaging system can miss something. MRI is typically used to detect lobular cancer but MRIs can also show false positives (my twin had a false positive). My mammogram and ultrasound missed mine but MRI picked it up. Waiting 6 months to follow up isn't unthinkable. Some oncologists even recommend 2x year scans...once w/ mri and another traditional mammogram, to cover all your bases. Good luck.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    ohhh false positive

    Then what happened with your twin how it was discovered that it was false positive


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  • wallycat
    wallycat Member Posts: 3,227
    edited September 2018

    They biopsy the area that lights up on the MRI. Interestingly, both of ours lit up in the same area in the same breast. Her biopsy was benign, so no cancer even though it lit up similar to mine, which was biopsied and was cancer.


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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    I can wait for 6 months BUT again they will order mammogram and ultrasound and my question is..if ultrasound and mammogram didn't pick up anyone's ILC first time WHAT are the chances that it can pick it up after 6 months


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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited September 2018

    Rizz, my ILC was picked up on a 3D mammogram then confirmed on MRI. I'm not a doctor, but my understanding is that if ILC does appear in your breast at a later date there will be a visible distortion of the breast tissue. (MRI measures how water molecules diffuse through body tissues.) For now, it sounds like you have good news really so please do try to de-stress somehow. Wishing you the best.

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  • Elisabeth_W
    Elisabeth_W Member Posts: 14
    edited September 2018

    I think ILC that doesn't show up on MRI is the exception rather than the rule. BUT it's important to know that MRI generally can't pick something up until it's 3 mm or larger (about the size of a pea). It also may miss LCIS or DCIS. Rarely larger cancers, which do not take up the MRI contrast material well, may not be detected. (I got this info from a MRI patient consent form and confirmed it with my docs).

    My ILC was mammographically occult, but seen on ultrasound and later, MRI. MRI did not detect my LCIS or ALH-which is usually an incidental biopsy finding.

    But most ILC is very slow growing. A ILC discovered now that is less than 2 cm has probably been growing for 3-5 years. That was the most fascinating thing I learned when I was first diagnosed. There are exceptions to that, but they are rare. Going back and looking again in six months is considered close surveillance and is the current standard of care.

    I can't tell from your initial post. What makes you suspect ILC?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2018

    Mine was picked up on a 3D mammogram and confirmed with biopsies. The 3D mammorgram showed one distortion on my regular scan and when I had to return for additional scanning. The tech caught the other distortion. Ultrasound didn't show anything.

    I didn't have an MRI as I had already decided on a BM plus I have two tumors.

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  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    Elizabeth_W I have an indent on my contour of breast which has changed the shape of same breast and sometimes I feel the same breast has shrunken .I had an normal mammogram and ultrasound but they didn't find anything suspicious except the fibroadenomas that I have for 18 years.

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