Port for chemo

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Tychad
Tychad Member Posts: 65

today I had a port put in. I’m not very happy. It hurts and I’m confussed. Everybody says it’s the best thing to have. What I don’t understand is they told me not to get it wet for 7 days. How do you take a shower. And what about after the 7 days. Can you get it wet in the shower. I read the papers they gave me but they are kind of confusing to me. Maybe it’s me right now that I’m upset. Hopefully it will fell better in a couple days. Can anyone help me out with any info. Thanks a lot. I really will appreciate it. Thanks Rhonda

Comments

  • illimae
    illimae Member Posts: 5,710
    edited September 2018

    Sorry, you having a tough time. You are supposed to leave the tape/bandages in place for now, I was told “until they fall off", which allows the small wound time to heal and close. I believe you're not supposed to shower for a couple of days but when you can, face away from the shower head avoiding direct spray to the area. The tape will get a little wet just from water running down your neck when faced away from the shower head, that ok, just try to keep it from getting soaked. The port may be painful for a few days and will feel weird for a couple of week, especially when bending over, this is normal.

    You will appreciate it later, I promise 🙂

  • yangtan
    yangtan Member Posts: 75
    edited September 2018

    I had my port in for more than three years. It was uncomfortable in the initial month. But today I am so thankful for it. I have tiny veins and the port makes setting up any iv a breeze. I also use a cream to numb the port area before chemo and no pain

  • Me2018
    Me2018 Member Posts: 14
    edited September 2018

    I've had mine for 9 months. One of best decisions I've made since this whole mess started.

  • pajim
    pajim Member Posts: 2,785
    edited September 2018

    Rhonda, I assume the port is covered by a bandage. You can cover that with a big plastic bandage -- Tagederm. Then you can shower. The idea is not to get the bandage wet.

    I don't have a port but if you're going to get chemo this beats having them stick you in the hand or elbow every time. I'll be getting one some time in the next year.

    Sorry it's uncomfortable. Think of this as if you've had an operation (which you have). It takes a while to recover.

  • Tychad
    Tychad Member Posts: 65
    edited September 2018

    hi yangtan

    Thank you for your help. I was wondering if you know the name of the cream you said you use for your port. To not have any pain. I have to start my treatment on Wednesday and would like to get that cream if possible. Thank you. Rhonda. Ps I tried to send you a private message but did not know how to do it

  • WC3
    WC3 Member Posts: 1,540
    edited September 2018

    I hope no one minds me chiming in here as I don't know my stage yet, but it took at least a week for the discomfort from my port to go away after having it implanted. I had a lot of redness and inflammation at the incision site and at first I could feel the catheter in my neck (it's not actually up in my neck, but it's threaded through the lower portion of my jugular and and there is a referred sensation), especially if I tried to sleep on the opposite side. I showered by covering the bandages with plastic wrap sealed with waterproof tape and avoided getting the area wet to the best of my ability in case it leaked. You can also buy waterproof seals specifically for this purpose at some drug stores and most medical supply stores if you don't want to bother with the plastic wrap and tape or you can also do sit baths or sponge baths instead of showers.

    I ended up having my port replaced due to developing a fistula at the first incision site. They made new incisions for the 2nd port and the second time around I had signifcantly less discomfort after the proceedure than I did the first time. I can still feel the port somewhat but most of that is due to the fact that my skin is very tight in that region. I also still feel it a bit in my neck sometimes but not nearly to the same extent as I originally did.

  • LoriCA
    LoriCA Member Posts: 923
    edited September 2018

    Tychad the cream is called Emla cream. It contains lidocaine and prilocaine. You might want to call your MOs office and ask them to call in the prescription to your pharmacy first thing Monday so you have it before Wednesday. You should put on a big gob of it at least a half hour before they will be accessing your port to give it time to work (45 minutes to an hour before works best for me) and then cover it with plastic wrap. My MO also has some kind of 'freeze" spray they can use, but that doesn't work nearly as well for me.

  • yangtan
    yangtan Member Posts: 75
    edited September 2018

    yes I am using EMLA cream. I applied an hour ahead and I only felt at bit of pressure no pain

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2018

    I’m a huge EMLA fan. As LoriCA pointed out it is lidocaine and prilocaine and available by prescription only. On another thread, someone mentioned that there is an OTC cream that is the same. Not true! Lidocaine creams are avail OTC, but without the prilocaine it is not the same and does not provide the same level of numbing.

    That being said, many centers offer a short acting numbing spray, which I have found to be all I need for port access

  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited September 2018

    I've never used any numbing cream or spray for port access and it's never bothered me at all. Certainly not as bad as an iv in the hand. However, this may be due to the placement of my port in a spot with fewer sensitive nerves and probably most others may have ports in a more sensitive place.

    I would recommend getting the cream or asking the nurse to use a spray. Anything that makes all this easier!


  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2018

    I once used EMLA cream AND the spray. Knowing that it really doesn't hurt much, for most folks, I gave the nurses a good laugh. I admit that it was overkill.Thereafter, spray only. Once, due to the numbing spray wearing during a failed attempt by a traineein the infusion center, they accessed the port and I was surprised at how little it hurt. However, I still ask for the spray

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