When do your implants start feeling more like “you”?
I’m only 7 days out from PBMX, prepec, direct to implant surgery. I only have feeling on the very inside edges of my breasts, so almost all of both breasts have no sensation and feel sooooo foreign right now. How long did it take for you to kind of “bond” with them and integrate them into your life more easily. Do you ever feel normal with them/not even notice them anymore? Also- I know it’s early and not to expect sensation to return, but have you gained more with time? Thanks, ladies!!
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I had so many of the same questions after my surgery! I can share some of my experience. As always - everyone is different.
I started to feel less "traumatized" around 6 weeks. While the initial pain from the surgery wasn't horrible and I only used any narcotics for 2 weeks, I still felt very odd and uncomfortable. PT helped quite a bit. They gave me things to do for range of motion and also nerve retraining.
For a very long time I would still have strange sharp pains or pulling sensations. It probably took 6-9 months to get more "used to" the implants. I think it's a combination of healing as well as different sensation. And some sensation has come back. I still feel nothing in the nipples although they react to cold and touch.
Congratulations to you for being brave enough to do this proactively! I hope you heal very soon with no complications and feel more like "yourself" before long.
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gnoz, I waiting to bond with mine too! I'm 4 weeks out from my exchange. Like notverybrave said things are mostly numb with sensation to cold and touch. They just feel heavy to me. When laying on my back I notice it the most. I'm happy with the cosmetic outcome even though i'm not fully healed. We can be patient together! Best wishes for a speedy recovery
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Hi gnoz8 - I am 7 weeks out from BMX DTI reconstruction - I am still very aware of the changes in my chest, but things are starting to feel more like "me" now - I walk every day and at this point it's just like being in a super snug sports bra - they don't move, but I'm not aware of every footstep. I've had a few instances of natural reactions to things (I swatted a wasp without thinking about it!!) and been pleasantly surprised that it didn't hurt and wasn't too weird. A lot of the early weirdness I think was the surgical incisions/stitches/drains - once the stitches came out (at week 4 for me) I was much more comfortable and moving better. Like I said, I'm still aware of the changes in my chest, but things are less alien now... PT is very helpful - if I stretch more often during the day, my chest feels better than if I don't stretch. It does get better and from what other women with longer experience have posted, it keeps getting better! Good Luck!!
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Thanks for the replies, ladies!!! Your stories are very encouraging. I hope I do as well as it seems you guys have.
Debal- Haha! We can Be patient together! It's definiteky not my strong suit;)
Vermonster- so glad you're starting to feel like yourself! Watch out for those bees:)
NotVeryBrave/ I'm so glad to hear you've had some return of sensation. I'm holding out hope for some more, but who knows. Thanks for the compliment on being brave....but I'm nowhere near as brave as all of you. I watched my mom endure A LOT during her bc, and I justdidn't want to do that...and I couldn't have her watch me do it. Btw...she's a warrior..., stage 3b in 2004.....still trucking with no recurrence! She's my hero
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Thanks for the replies, ladies!!! Your stories are very encouraging. I hope I do as well as it seems you guys have.
Debal- Haha! We can Be patient together! It's definiteky not my strong suit;)
Vermonster- so glad you're starting to feel like yourself! Watch out for those bees:)
NotVeryBrave/ I'm so glad to hear you've had some return of sensation. I'm holding out hope for some more, but who knows. Thanks for the compliment on being brave....but I'm nowhere near as brave as all of you. I watched my mom endure A LOT during her bc, and I just didn't want to do that...and I couldn't have her watch me do it. Btw...she's a warrior..., stage 3b in 2004.....still trucking with no recurrence! She's my hero
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Hi gnoz8. I realize i commented on your other post a little bit ago bit wanted to chime in regarding sensation. My right side that I have an implant in didn't have much sensation even at about 6 months. At a year I had quite a bit more than they led me to believe might be possible. And at two years it had increased even more. What surprised me most was that even now at almost 3 yrs post BMX I seem to have more and more sensation on both sides of my chest. Even the side I'm waiting to have a flap procedure on and has had many additional surgeries r/t some issues has more and more feeling and sensation. Not increased pain, but actual sensation. I don't have increased pain, I would say I have less pain actually or minimal. I am still surprised!
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Hi Gnoz8,
I just wanted to ask how are you doing? By the way, I also think you are a heroe. Having a pbmx it is really extremely brave. I hope you feel better as weeks pass.
I have postpone my pbmx until 18th of October for job reasons.
I have to admit I am scared, I also went to have a second opinion and the pictures I saw for reconstructions after mastectomies left me a little bit sad, it seemed to me a little bit artificial. I dont know what to expect. I am wondering if pre-pectoral will be better than under the muscle, but two surgeons have told me I should have under muscle. I dont know what to think. I am also worried about future complications.
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Stherye- Hey there!! I’m getting better day by day, I think. It’s been about 3 1/2 weeks since my surgery, and I can say i emotionally feel better this Saturday than 2 Saturdays ago. It’s incredibly slow, but I’m headed in the right direction. They still feel foreign, but honestly, it IS getting less foreign each day. It’s just not as fast as I would like. I am incredibly impatient though about everything in life and just want to fast forward to a time when it all feels better. I am very sad about the loss of my natural breasts, which I wasn’t expecting. So, I’m starting from a lower point than I thought. I somehow thought because I chose to do this proactively and that I didn’t have children/don’t want children/no breastfeeding link...that it would somehow not feel like mourning. I was wrong. But I’ve talked to a lot of women who didn’t mourn at all.....truly. It’s hard to know exactly how you’ll feel. That’s the scary part. For me, breast cancer was scarier.
This whole process is teaching me patience and teaching me to be vulnerable.....two things I hate. I did get a prescription for a super low dose of anti-anxiety meds. They help knock the edge off. I can wake up in misery then be on top of the world an hour later. It’s crazy. I’m also scheduled to see a counselor. It is getting better. My mother (bc survivor), my friend (who was diagnosed young), and all of these beautiful women her on BCO have told me it does get better....that it is just a whole lot slower and harder than you want. I trust their words are true. They have already lived it.
On a physical note....I have to say I have been super fortunate. It’s still early, but I think my new boobs look like rockstars. They really are looking and feeling more natural as time passes. Think they are going to work out just fine. I was able to keep my skin and nipples, and I did over the muscle implants with Alloderm. They are teardrop shapes and are the cohesive gel “gummy bear” ones. My pain was minimal and quit taking the narcotic pain meds within a week of surgery. I’m not in pain anymore but still take ibuprofen to help the swelling. I was a little stiff at first, but I could lift my arms up, back, to the side....almost full range of motion within a few days. I put my hair up in a ponytail in the hospital by myself. The nurse was blown away. The prepec placement seems to be a lot less painful than under the muscle. I’ve seen excellent results from both though. I know a lot of PS don’t do the prepec implants, and mine won’t under certain circumstances. I just happened to be a good candidate. Did the PS say why they wouldn’t do prepec for you? Is there a reason why they think it may be the better choice for you or do they just not do that procedure? If you want prepec, check out some more PS and find one that does it. It’s becoming more common.
I do still have a lot of swelling. They feel really heavy to me right now. I’m not sure if that’s because of the swelling or the size (I was a D cup before and they seem a little larger now, although look amazingly similar to my originals). I’ve talked to my PS about going down a size, possible fat grafting (I do see some rippling)....all the possibilities if I don’t end up liking what I see after I’m healed. He has assured me that I have options, not to feel trapped. I like to have backup plans for everything. This is no different. I have to wait 3-6 months to let everything calm down before I can see if I want/need revisions. Waiting is not my strong suit. Argh.
I’m sorry you had to postpone your surgery. It seemed like waiting for it was worse. Hang in there! I know about worrying about complications...I still worry! I think it is just part of jumping off of that cliff. You can look to make sure there are no rocks sticking out of the water, but you still worry if there are some down there that you can’t see. It’s a permanent decision, which makes it nerve racking. But hey- there are no guarantees with anything in life. I figured I just had to jump, so I held my breath and jumped. I haven’t hit any rocks yet:). Also, remember to look at some women who have done it proactively and have gotten on with their lives and skipped out on breast cancer. Forums like BCO can sometimes give you a skewed picture since it is a support community. Many members have quit coming to the boards because they feel that they are moving on. You don’t get to hear those stories:).
Thinking of you!!!
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gnoz8 - thanks for starting this thread. I'm having PBMX too on Nov. 12 (high risk, no BRCA, multiple abnormal biopsies) and am researching everything I can to be as prepared as possible. Very happy when both BS & PS said I can do nipple sparing and pre-pectoral TEs and then silicone final implants, as it certainly sounds like that should allow for quicker recovery and less pain, especially muscle pain and spasms. I will be following this topic as I know it will seem so different after surgery. It can get scary reading some of these threads and hearing about all the possible complications, and I realize most of those women who have little to no complications might not even come on this site, but better to be aware and prepared. Every once in a while I ask myself if I'm crazy for voluntarily doing this to myself, but then I just remember - NO CANCER! Be a Previvor! My heart breaks for all those cancer warriors out there have to deal with, but I'm betting many of them would have done prophylactic MX if they had known what was coming. Please keep posting your progress to keep the rest of us informed and encouraged.
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Dear Gnoz8,
Thank you very much for your words of encouragement. I am sure you will overcome this, I also think you are already on the right path. It is amazing how we are very similar in the way of thinking. I also like to have second plans for everything just in case.
I dont know anybody with bc, as I dont have family history and because of my age it is not very common, but I have been reading a lot, and I mean a lot.... And I have been reading also about many women having pbmx and bmx that felt weird at the begining, with the feeling of having a hard or not natural boobs, but as time goes by, the implants begin to be or feeling softer. I really hope this is true because I am going to follow the same route.
I have been having second thoughts about the pbmx but then I was very sincere with myself and I realized that if I have been calmer all these days is because I have opted for the pbmx. I tried to imagine myself just taking out the second papilloma and being under surveillance, and you know what? All the anxiety and fear and sadness came back again. Then I knew I have to do this, even though in Anderson they have told me I just have benign issues, they told me pure FEA it is not the same as ADH, it is not even considered as a high rirsk factor. But I asked this online to Hopkins (ask an expert) and they told me they consider it as ADH more or less)
And besides, I have been reading women they had some papillomas or atypical cells, they got bc at the end. I feel blessed and grateful that I have bening issues but my gut is telling me I should do everything I can now even though there are some risks and side effects, of course I am scared, but many times I think I would be more scared and worried if I had bc or not caught in time.
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