PBMX only for FEA?

Farmerlucy, many thanks for sharing your story. It is wonderful you chose pbmx, thanks to that you caught your idc on time. You were extremely brave. You are an inspiration for many of us in similar situations.

Gnoz8, I can understand you very well. I have decided the pbmx as well, it will be next 25th of September. I am now on holidays trying not to think a lot in that day, but I know me, I will be very nervous as the date will be closer.

My gyn thinks i am absolutely crazy about even think in pbmx because of FEA. But in less than four months I have had two papillomas, the first one with fea, the second one i dont know because i will wait to September to have the pmbx.

I dont want to scare anybody and I know my risks are 30% in twenty years. But i have been reading in different forums and I have read some women with papillomas got bc after three years or more. I also remember one of them who got bc in the contralateral stage IV one year later after excised one papilloma. I know I have 70% odds not having bc but it scares me too much. I also know bpmx reduces risks from 90 to 95%. Others say even to 99%. What I know is that I preffer being as agressive as I can now and not regretting in the future. I think I have been very lucky to have a benign desease and I have many options other dont have, what is really sad. Tears come to my eyes when I read so many stories here about women who were under surveillance but mamos, us and mris missed their bc and the posibility to treat them early.

My gyn told me that, you could be under surveillance and if it evolves to dcis or whatever, we can treat you very soon. I told her, I have read many cases that mammos, us and mris missed bc and she told me it is true. I am sorry, but I will not play with random, this is my life and I would do anything I can, even though if I need to pay the pmbx.

I have a doctor very friend of mine. He absolutely supports my decision. He has had cancer and he is a survivor. He told me it is not a very complicated surgeon, not more than many others. He says I will have a beautiful breast after surgeon, probably better than I have know ( I have a beatiful breast right now and dont worry too much.

Dear Aussie-cat, what kind of pbmx did you have, if you dont mind me asking? By the way, I really think you chose the best option. At least is the one that offers the best risk reduction. At the same time I think it is not for everybody, it is only for those who think that peace of mind is more important or cannot live with the ansiety of 6 months surveillance.

I will have inmediate reconstruction with silicone implants, nipple skin sparing.

I am quite sad because my mother doesnt support me on this. She told me there is no one single case of any kind of cancer in my family and this is true. But I told her genetic bc is only 10% of the total. She is telling me, Angelina Jolie, the only case she knows with pbmx, had genetics and nearly 80 % risk.

The first time I had my ultrasounds and two doctors came to see the screen, I was really nervous. One of them told me, we dont want to scare you but you have something suspicious. It doesnt look extremely bad, it is not invasive, but you have a nodule with irregular contour. You should have a biopsy. I had the worst two weeks of my life. I didnt know anything about bc, anything at all. I just thought I will never have breast issues as I dont have bc in my family. I was quite naive...

I remember going to Anderson with my husband for the results, I couldnt almost breath until the told me, congrats no cancer. But I will never forget that feeling, and since then, it is as almost I had it, and I considered bc women as my friends. Nobody knows how breast deseases are until you have them. I also remembered being really scared, not sleeping, having nightmares...

They didnt tell me my papilloma had atypia until it was removed, so thanks to that I thought bening papilloma that needs to be removed and I was calmer until the final report, papilloma with mild focal flat ephitelial atypia.

But four months later, another us, this time a male doctor, he told me, you have another one and because you had atypia, this time you should have a mri. I remember telling him, no please, not again...

He was very kind to me, He told me, it looks like exactly as the previous papilloma you had. Final report of mri, papilloma in the same breast.

I dont want to live like this for the rest ofmy life. Before knowing the mri result, again I was almost into tears until they told me, congrats, no cancer again. And I just wonder, how many times am i going to be lucky?

Dear Gnoz8, I am so happy for you and reading everything was ok for you and you feel stronger and what it is more important, you feel free of the worry.

We have similar thoughts and also we are same age more or less.

The other day I dreamed I had the pmbx and the result was awful, thank God it was only a dream. Other times I am worried if I will not feel my breast (numbness) or if I will feel my chest cold, as I have read through these forums and I have to confess I am worried and sad.

But on the other hand I would be even saddest if I had bc. It is like thinking..I dont know how or why I have ended here, but the truth is that I am here and this is what I am going to do.

I will have pbmx with inmediate silicone implants, I think you had diep¿?

Do you have any suggestions post surgery?

It seems silly but I have got Netflix, because I know I will be many hours here at home for recovery.

Hugs

Hi Gnoz8,

It is so good to read your opinions and thoughts, because I understands you perfectly.

I also think you have made the right decision and I also think you are lucky in the sense that you have dealt with this at time, as you said, you dont need chemo or radiation and no more worries because you dont have cancer, you have alh and you have been very brave.

We must consider us lucky because we have options. I am so sad when I read here many women didnt have many options because they didnt caught it on time, it is so unfair. Of course we all have different choices and treatments are better day after day.

You have had the surgery which is considered the one with the least pain, am I correct? I will have inmediate recon with silicone implants under my pec muscle. My doctor told me it was the better way for me, also with alloderm. I think it hurts more because the cut an put the implants below..ufff. I will keep also my skin and nipples.

I dont know why, but I am getting worried because of the final report, as I have another papilloma in the same area than the previous one, mri says it is birads 4. The same birads as the first one, the one with atypia. They told me to remove it with bav, vacume excisision, but I decided not to do it and just get the pmbx. And now i am wondering...if it this one has something else?? Dcis or invasive?

Yesterday I went to my first gyn, the one that asked for my first mamo and us, and thanks to her I knew what is going on. I told her about my decision and she said...If I were in your shoes.., I would do the same. I owe her everything, I owe her that I have caught this maybe on time.