September 2018 Surgery Support Group
Could it be one hasn't already been started?
My BMX is scheduled Sept 10. Would love to connect with others scheduled or planning to schedule in September! ![]()
Comments
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Hi there,
Lumpectomy on 6th of Sept. Finished ACT chemo on 13th of August. Still dealing with SEs.
I had my presurgery talk with BS last friday. I have not done any preparation for the surgery. I am in hiding mode. I have freaked myself out though and am not sleeping very well.
I am 40 and its me DH and a 6 year old at home.
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Hi @Frog-on-the-lilypad. I totally understand hiding mode/not being able to sleep. I don't think I've had a solid night since June
Just in case you need to hear some good stories, I had a lumpectomy 2 years ago that went really really smoothly, was not too bad to recover from (I had it on a Friday and went back to work Tuesday) and my scar is invisible now so I had a really good experience overall. I'm hoping the mastectomy goes as complication free as well though I'm scared of the pain and unknown cosmetic results. I'm going this route now since DCIS recurred on the other side. I'm 39 with a husband and small furbaby (dog) at home, no kids. I fortunately have not had to have chemo for breast cancer but I am a Hodgkin Disease (lymphoma) survivor as well - when I was 19 I went through it all, a bone marrow transplant etc. which was the end of Hodgkins. I do have the option to do another lumpectomy with radiation and tamoxifen, but, after all the treatment I went through 20 years ago I feel like I've scrambled my insides enough and my BS seemed more comfortable with me going the mastectomy route as it's so rare to have this happen twice in 2 years at my age, etc.
Wishing you the best!!
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HI,
I am having a left side BX on the 10th as well. I have completed 2 rounds of chemo prior. All hospital prep is completed, but I still have to get the house cleaned up (I have a husband and 2 kids (13 & 5)).
I have had other orthopedic (legs/hip) surgeries before, but nothing like this...a little nervous.
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Hi Aisling and Frog on the lilypad. I am writing you from Spain. Sorry I opened another post, I didnt see this one.
I am 42 yo, with twins ( boy and girl) they are 6 years old, and married to a wonderful man.
I never thought to be here, as probably many of you. I dont have family history, not a single case of any type. Everything began in February. Well, to be honest, everything began in 2016. Suddenly I noticed my axilla was swollen. But I had two ultrasounds and they told me not to worry.
But I changed my private insurance, and my new gyn told me I should have a mamo and ultrasounds, but for the brest. The result was an atypical papilloma (with mild focal flat epithelia atypia) I didnt know what it is and I spent hours and hours searching about FEA.
Mayo last report says that pure FEA is not a high risk factor, other places they say is din1a. Others say it is less worrisome than ADH. I wrote to Jopkins and they say the risk is similar to ADH, more or less 30% in life time.
After four mounths I was still worried about my axilla, and I went to Anderson in Madrid. They told me my axilla is ok, but they found another papilloma. This time I got a MRI, it says probably benign papilloma and it needs to be excised. But now I have decided for a pbmx. It is not recommended in my situation and I will need to pay for it, but peace of mind is extremely important to me.
Of course I am scared, many days I am thinking..am I doing the right thing? I am crazy as my gyn thinks because if my pbmx only for FEA?
I am not very scared about the results as I know my surgeon and he is amazing. But I am scared for any possible side effects¿?
My surgery will be the next 25th of September.
I hope the best luck on your procedures, and I really hope the best results with no side effects.
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Dear Me2018,
I am so sorry you are going through this. This desease is so unfair.
Breast surgery is very advance these days. I read another woman in this forum that she had mx in one breast, and two years later her new gyn couldnt distinguish wich one was the mx. I hope this helps
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Hi everyone! I'm sitting in my last chemo treatment today and I'm scheduled for BMX on Sept 13 with tissue expanders placed. I hate we're all here, but I have found so much support on these threads.
I was diagnosed in April at age 41. I'm married with 2 boys - 13 and 15. My mass was large when I found it but Herceptin has shrank it til it can no longer be felt. I'm really hopeful for pcr.
Best of luck to everyone. I look forward to hearing about your journies through this next step!
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Good luck with your surgery! Mine is scheduled for Thursday September 6th. I am having a Left nipple and skin sparing mastectomy. I am feeling extremely nervous as I've never had any surgery let alone something this big. Just want to get it over with and start healing. Radiation will begin about 6 weeks afterwards.
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Hello ladies
I see more people have joined in since I last posted.
Thanks Aisling for sharing your experience. I am somehow more nervous about going under GA than the actual surgery. I dont know if its my way of coping by not thinking about the real issue here. I will also have node dissection and port removal.
Juniper, we have the same surgery date. I am in NZ, so in all probability will be ahead of you going into surgery.
Wlo002, congrats on finishing chemo.
I am planning to tidy up the house and sort out few things before thursday. I go in for pre surgery blood works today.
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Anyone feel like you're not dealing with the emotional side of surgery in the best way? I've felt so positive through treatment so far but suddenly I just have this anger that's coming from out of nowhere. I find myself snapping at family and friends and although I can see it happening, I can't seem to stop. Maybe it's just the stress and anxiety of the unknown...I have to find a better way to deal, though.
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Hello to all the ladies gearing up for Sept surgeries,
Tomorrow is my big day. Two positive margin lumpectomies this summer, so I am now headed to mastectomy town. Doctor said my DCIS was wispy and apparently more widespread than showed on mammo and MRI. Second lumpectomy actually found a small area of invasive cancer that wasn't seen before, so I figured the time for being conservative was over and decided bilateral was the way to go.
wlo02, yeah, I am definitely not dealing with the emotional side of tomorrow's surgery. I had no problem with the thought of doing the lumpectomies and possible radiation, but now I am just bitter that it came down to "boob removal". (That is a quote from my son. Kid's got my dumb humor)
I'd be lying if I said I wasn't terrified. Sleep will probably be hard to come by tonight.
The top thread here titled "Shopping/packing/to-do list for surgery + recovery" was extremely helpful for me. A huge thank you to everybody that put that together

One more fun thing for me is according to my period tracker I am going to start on the 5th. Oh, joy!
I will report back as soon as I am home and able to. PS said probably one night stay. Nurse navigator said most likely two. Hopefully only one.
Sorry if this was rambling. Stay strong!!
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My surgery is scheduled for Saturday (8th September)....mixed emotions, desperately want it over and done with, but the closer it comes..the more anxious I am!
Trying to keep positive and busy, but am at home (can’t seem to face the world atm) lots of messages and visits from good friends and family....but still feel very ‘alone’....they don’t know what to do or say...and I get that....I just need them around!
Good luck everyone who has surgery this month
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I just started a new post, and of course then I saw this was here. I'm having surgery the 6th. I was fine up until now....and now I'm getting really nervous. Total mastectomy on the left, and then I have to wait and see if I'll need radiation/chemo before they do surgery on the right side. I've never had surgery or broken a bone or anything!
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hello all! My surgery is penciled in for Sept. 26th. Left MX. It's far off as my husband and I had plans to visit Nashville 9/12-17.
I've met with the PS. Taking Letrozole and dealing with the stress. Of waiting and worrying about the surgery.
WigLButtz I hope everything turned out well for you. I totally understand the emotional toll this surgery places on you. I'm hoping I can get my head together beforehand but probably wont.
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WigLButtz, wishing you an easy time with the surgery today. Its okay to ramble, this is the place for it. I have supportive friends and my DH has been a rock through this, but, this is the only place where I feel I can let off some steam and people will understand.
I am going in for the radio isotope injection today evening, its 5th morning in NZ now. Read and got freaked out about it. There are 3 or 4 small injections around the aereola. Ouch, it hurts to even write that sentence. Planning to put emla cream, big thick layer in the hopes of numbing the sting. Then hookwire tomorrow at 8 and surgery at 10.
I am not dealing with it... at all. I have not packed a thing. One day at a time is my motto right now. Today is showing up for the injection. Tomorrow is a different day.
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WigLButtz, hope everything went well today and that you have an easy recovery. I have to know...is the name related to australian shepherds? I have 2 minis so that's the first place my mind went.
Frogonthelilypad, I hope the injection goes well today. I was all worked up when I had mine and it wasn't bad at all. Good luck today and tomorrow!
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Just got my surgery date for lumpectomy, September 27. Not sure how I feel about it yet. The dye needles and wire guide seem to freak me out a little. Maybe just nervous about what comes after. Quite a time!
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I had a wire guided lumpectomy in March (no dye though). I thought the whole wire thing would be really weird too but it wasn't any big deal. They took me in for mammogram a couple of hours before procedure, squeezing breast horizontally, then releasing and going vertically - the purpose to see where they should insert the wire to have the most direct access to the area to be excised. While the breast is squeezed in the mammogram, the radiologist inserted the wire into the breast. The "wire" is so thin you don't even feel it (I think they may have numbed me up just a little in that area). The wire is like a thin plastic wire, and once it was in place (they confirm by doing another mammogram), there is a little barb on the end, like a tiny fish hook, that holds it in place, and they then looped up the rest of the thin wire and taped it down on my skin nearby. There are also some youtube videos you can see of putting in wire. I put my shirt back on (no bra) and waited to be called for pre-op then. I was so fascinated about it I had to take a picture (see below). Surgery for me was about 1 hour, then 90" or so in pre-op and then home. I only needed pain rx for that evening and once the next morning. I did keep icing it and that kept bruising down (I also ate a lot of fresh pineapple for a few days ahead of time to reduce bruising). I did eventually end up with a seroma in that area, but heat and very gentle massage helped with that, although it took several months to finally fully clear up. All in all, not too bad and my scar has almost disappeared (6 month post surgery picture below also). Sorry the pix are so big but can't figure out how to make them smaller.
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Hi there September peeps!
I am having bilateral MX with LD flap reconstruction on the 13th. Feeling pretty nervous the last few a days about everything. I have confidence in my breast surgeon and plastic surgeon, but it is a 4 hour op which freaks me out a bit. I had two lumpectomies earlier this year that failed to get clean margins. Wlo002, I know what you mean about getting snappy and grouchy lately in the lead up to surgery. I felt like I handled things really well during chemo but for whatever reason I am more anxious now. I think that i will turn that energy towards packing for surgery. Good luck and healthy vibes to you all:) Wi
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Back home after partial mastectomy and sentinel node dissection. Oh wait, also port removal.
Boro girl, I wish I had read your account before going in. The wire they used was not as thin but there was lots of local anaesthesia involved
The docs use two methods to find the sentinel nodes, one is the blue dye which is injected under anaesthesia, the other one is the radio isotope dye which travels really slow so has to administered a day before. It was not bad.
I had to get the hookwire placed while seated on a throne with my breast jammed into those mammogram machine plates. They do put lots of local anasthesia, I did not feel much, but, at one point there was a wire like a radio antennae poking straight out of my left breast. The radiologist took fancy sterile pliers and turned it 90 degrees to get it parallel to skin. Added lots of padding on top and off I walked to the hospital for surgery. Two different buildings. I did like the walk as I bumped into my surgeon walking to the hospital for my surgery.
Best wishes everyone.
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Hi, I'm Linda and I'm having a mastectomy on Monday, 9/10. I had a lumpectomy in March, with an axillary node dissection, but they found DCIS in tissue removed by the plastic surgeon - and a bunch of positive nodes. So after chemo, here I go again for another surgery. The plan is an immediate reconstruction with implant for now, and then if I'm not happy with the results, I can have further reconstruction (probably a DIEP flap) next year sometime. After this, I still have to do radiation. This has been a long process - I was diagnosed last October and did neoadjuvant hormone therapy via a clinical trial. I'll be so glad to put this surgery behind me and get on with radiation so I can get on with my life!
Glad to meet everyone, and best wishes for uncomplicated surgeries and recoveries.
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Whew! I am back home and doing well. Both docs said everything went smoothly. Three hour surgery, two drains.
The pressure and tightness I totally expected, but I was not ready for this awful sharp burning, stinging sensation I am having on my left side. Holy hell that hurts like a mother if I move wrong. I suspect its from the drain.
The right side is doing great. Good range of motion and no stinging feeling. I actually have some strength on that side. Thank goodness I am right handed.
It is getting easier every day. However, hands down this is the worst thing I have ever been through, emotionally and physically.
wlo, the user name is because of my dogs. Not australian shepherds, though. I have two lab mix boys that have weaponized wiggle butts. Their tails are deadly when they are happy.
I looked at my incisions at the surgeon's gentle persuading. LOL I told him I didn't want to look, but he said it wasn't as bad as I am thinking. They look absolutely nothing like any of the pics I have seen online. They removed all the breast tissue through round incisions where the nipple and areola used to be. I have weird bunched up round stitches that almost look like they will heal sort of raised. I cant believe they fit the expanders in through those.
Thank you for all the well wishes
I really appreciate it. Stay strong, you will get through this. I said to my nurse when I was having a bit of depression, "Well, I guess this is my life now." And she said, "Nope, just a chapter." For some reason that helped me snap out it.
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@WigLButtz so glad you are on the other side!! And great that already getting easier so soon after the surgery? For some reason when I imagine the surgery I picture weeks of torment. Did you do under the muscle? TEs or direct?
@Linda2119 you are my surgery twin!! 9/10 is the day, also doing direct to implant also (are you under the muscle too?). Where are you having your surgery? I'm so sorry you have to continue on with radiation.
I've had a really hard week of flipping back and forth between doctors and methods (after a summer of research and tortuous indecision). Has this happened to anyone else? The mastectomy decision was easy. I'm 39 and I've had bilateral DCIS now with a history of other cancer so they think it's likely to recur even if i go through radiation etc... The reconstruction method and team, not so much. I ended up sticking with 9/10 only because I couldn't get my old date/team back before October and I'd already made all the arrangements at work (is this a dumb reason? I guess I couldn't have fixed it...). Totally different methods. Never have I felt so indecisive and neurotic. My mantra right now is letting go / giving up control.... But it's kindof taken a toll on my heart

Best wishes to everyone on here!!
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Hi
I am also having a mastectomy on 10 September. Good luck
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I had a mastectomy 30 August for Ductal Cancer. No plans for reconstruction. Waiting on receptor status to know if I need chemo.
At home in UK being tired and doing very little. Husband doing a great job looking after me, no children.
I had to get my IUS removed - luckily not had a period yet, but am not looking forward to getting those back.
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Hi aisling
My TEs are under the muscle. I certainly was not crazy about that idea, but that's what the PS said would be best for me. I have more strength and range of motion than I thought I would.
He only filled them with 100cc each during surgery. It looks really weird and feels like a couple of bricks on my chest. Unfortunately, I was not given the option to go direct to implant. I think the immediate healing with that might be longer, but the upside is of course no expanders. I hope your surgery and recovery are smooth.
It really does get easier every day. Yesterday I was able to maneuver myself up from a reclining position without hubby's help. I'm sure that makes him happy that I don't have to ask him to help me pee. He's on drain duty still. Thank goodness he is not squeamish. Those drains are extremely creepy to me.
Good luck to all the 10thers. Stay strong!!
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I'm having a mastectomy on September 25th.
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I’m 10 months removed from my bilateral mastectomy and I’m still dealing with the same issues. Anger out of nowhere, jealously of my wife when she lost weight, mood swings, depression and anxiety. I hope you’re doing ok.
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Three of us scheduled for tomorrow! Good luck to us all.
Aisling - my implants will be on top of the pectoral (pre-pectoral.) I'm in Colorado Springs - surgery at an outpatient surgical center.
Birmingham - let us know how it goes!
I walked the Susan Komen walk for life today - 5K with tons of people. Very emotional.
Take care everyone.
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I hope all of the Sept 10 ladies are doing well. I'm up today...and surprisingly not that anxious or stressed. Ready for this to be over with, though! It just feels like another step closer to being done.
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Hello,
I was diagnosed last month, two tumors next to each other in the same breast. Surgery is scheduled for September 27th and since I have two tumors only option was mastectomy. I had decided many years ago that if I did develop breast cancer I would have a double mastectomy. So, this is what I am doing. I admit the first week was a blur. I think it was because it was two years ago my husband was diagnosed with Squamous Cell Carcinoma HPV +. He is 21 months NED and doing great. Makes you think crazy things but of course I thought would it help? No. Anyway, good luck to all and I am happy to found this great community for information and support.
AJ
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