When does tightness after mastectomy go away?

Options
Magnolia-mom
Magnolia-mom Member Posts: 101

I had a bmx and alnd 4 weeks ago (following chemo). I had tissue expanders placed. I lost an expander due to infection last week. My last drain was removed today.

I knew I would not have sensation. But I didn't expect this tight, uncomfortable feeling in my chest. I feel it in the side without the expander as well. I notice it when inhaling and during movement.

Is this just something I will get used to? Or will it eventually go away?

I still have rads and diep reconstruction in my future.

Thanks!

Comments

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited August 2018

    I think it both goes away and you get used to it! Probably the worst tightness is the first couple of months as the residual swelling goes away. My PS told me that most of the weird sensations are due to the mastectomy itself, not the reconstruction. Maybe.

    I found seeing a PT that specializes in breast surgery and lymphadema to help a bunch with regaining range of motion. Stretching exercises are important - probably forever.

    I still get tightness from time to time, but it's not really distracting. Maybe I'm just used to it.


  • beach2beach
    beach2beach Member Posts: 996
    edited August 2018

    speaking from a year out, I say that same,,you get used to it and it starts to go away with time. Hopefully the tightness will completely go for you. Just like NotVeryBrave said, I'd keep stretching even months later. Sometimes you don't even realize that just because you can reach something on the top shelf doesn't necessarily mean you have full range of motion. I laid down one day on my floor and put my arm above my head and realized I could feel the pull. I still needed to stretch. That was 8/9 months later. I can't say I have tightness left but numbness in armpits and back of the arm/shoulder.


  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    I feel like i am wearing a tight sports bra and can't take it off. My range of motion in my arms is pretty good. I wonder what causes the tightness across my chest? Maybe these are just muscles that can release? I love comfort clothes- so hoping this is something that goes away! I have a pt script- looks like I need to go see her. Thanks!

  • SPDGirl
    SPDGirl Member Posts: 132
    edited August 2018

    magnolia-mom: if you do some searches there are a few threads on chest tightness throughout the boards and it seems like it is a common complaint following surgery, but it appears everybody is different on how/when/why it is relieved.

    I had a BMX without reconstruction 3 months ago and I am still having daily issues with the tightness ( I hesitate to say this as when I have been scouring the boards for answers and encouragement I would have mixed feelings on someone further out than myself saying they were still having issues. I would get discouraged that it may take that long, but also be encouraged that there was still hope that it would dissipate)

    I do think that mine has lessened some (it is consistent, not just when i move or inhale/exhale), but i have Sensory Processing Disorder and so am very sensitive to this feeling.

    I have read posts on muscle relaxers, massage, acupuncture, compression garments, stretching, physical therapy, and several other things that you might find helpful and especially just the passage of time as our bodies adjust.

    I personally haven't had tightness relief from acupuncture, but I do find it relaxing. I didn't start massage until 2 months out and I do get a littlerelief from that (she works my incision area), but I don't know if a more specialized massage might help further. I feel kind of ignorant on that. I did stretching exercises ( specific for bmx patients) that I found online and I think they helped some, but I just started PT this month as well after my chiropractor referred me and altho there are not significant tightness changes yet, I do feel like new areas are being worked. I also think that the numbness has something to do with it. I have one small area on one side that randomly un-numbed and that little area doesn't feel as tight.

    I too have wondered why everything is so tight and it sounds like it can be muscles, swelling, scar tissue, skin tightness and more. Hopefully yours will dissipate quickly and you will continue to get suggestions on this thread.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited August 2018

    Well, I’m sorry to report that I still feel like I have a belt around my chest....my mastectomy was in2012. Any touching or rubbing in the breast area is moderately painful.

  • SPDGirl
    SPDGirl Member Posts: 132
    edited August 2018

    I am SO very sorry to hear that Beatmon

  • 1redgirl
    1redgirl Member Posts: 133
    edited August 2018

    I had a mastectomy in April. I just finished PT this week. I do daily exercises to help with numbness, tightness, both in my chest and arm. I wear a sleeve if exercising and that relieves the tightness and frankly swelling. My chest and arm were considered highly sensitive. So if I massage my arm and chest even for a minute, both areas calm down. I think all the daily exercises are a must be. BTW, I also had stabbing electrical pulses for weeks. Made my body just jump. I occasionally get them now. The more active I am the better. I had 12 lymph nodes taken out.

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited August 2018

    I agree with Beatmon... my Bmx was in March 2017, and I still have periodic tightness feelings. I think it’s always there, but I’m so immune to it now that I really don’t pay attention any longer.

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    Thanks for all of the responses. So many of us have had this! It is encouraging to hear it may go away with time or at least fade from my awareness. I’m going to try myofascial release next week. I still need to contact the pt

  • SPDGirl
    SPDGirl Member Posts: 132
    edited August 2018

    Magnolia-Mom: I would be very interested in hearing how the myofascial massage goes and specifics on it. Have you had any type of massage since surgery? I have had a few and I enjoy them a lot, but I it is not myofascial as far as I know. She does work the incision area, however. I have seen myofascial mentioned on the boards here a lot, but I have not personally been able to find anyone local that specifically lists that as their technique and when I have asked those in my medical community, they do not seem to know what I am talking about or think it is necessary. I am still praying for a more significant breakthrough on the tightness, so am investigating any option that I can.

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    https://bcrc.org/benefits-myofascial-release-therapy-mastectomy-lumpectomy/

    I haven’t had massage since diagnosis. Someone on my local board recommended a therapist and said she had relief. I’ll report back


  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2018

    I'm six years out from the exchange. I was just thinking about it yesterday - I decided it was like a big hug. 24/7. If I think about it I can feel it. It does not bother me at all. Can't remember it not feeling any other way. I do like the fact that any new local occurence could (hopefully) be felt since the implant is behind the muscle. I'm heading towards sixty years old. My fake breasts and nipple tattoos look a whole lot better than other parts of my body. 😁😜

  • msphil
    msphil Member Posts: 1,536
    edited August 2018

    hello sweetie the chest tightening is very uncomfortable but it does slowly go away.Hang in there its been 24yrs Praise God for me but Yes it does go away. msphil idc stage2 0\3 nodes 3mo chemo before n after Lmast got married our 2nd was planning at diagnosis. rads 7wks then 5yrs on Tamoxifen. God Bless Us All

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    Thank you for the reassurances. It is hard to get myself to do things around the house like picking up laundry or getting started with most movements. I'm most comfortable lying down. I have been so concerned with chemo, I didn't really research mastectomy. It sounded simpler than it really is.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited August 2018

    I am almost 7 years out from a UMX. I still have tightness - I did not have reconstructive surgery.

    It gets better and you get used to it, but it takes a long while.

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    I went in for a 60 min session with a massage therapist trained in fascia and it made a big difference. She rubbed along my fascia lines and while I can still feel some discomfort, I am much more comfortable. I will plan to see her again after radiation.

  • SPDGirl
    SPDGirl Member Posts: 132
    edited August 2018

    Magnolia-Mom: That is great! May I ask how you found someone with that specialty?

  • Msjackiefan
    Msjackiefan Member Posts: 31
    edited August 2018

    Hi, there...don't despair. What you had was more complicated than what I had, so give yourself time to complete the process. I had 40 D boobs so had the largest cc gel implants. I am over 5 years out. NO recurrence-but I take the pills religiously!, BMX with reconstruction, no expanders, no chemo. I did not request the higher profile since I was past 50-now past 60- and was not interested in people gawking. LOL If younger, I would have! Anyway, today the only residual effect is some puckering where the skin naturally was a bit loose-they try to be perfect, but alas, can't. I just choose to live with it, although I could get some fixes. And,and some minor numbness. The most annoying thing is the occasional soreness from the damn lymph nodes! I had 2 taken, both clear, but I swear=that little incision. Just annoying sometimes. I would say as someone told me beforehand: You always know something is there, but it's not a bother. I had tightness for a long time after, as the boobs moved down to the 'nest' they create for them. Your chest muscle is suddenly over the boob, when you have inserts.So there is actual slight muscle spasming early on, due to that. I did my upper body and arm excercises religiously, and still do, just a few minutes a few times a week. As a result, i had no edema; and I also did massages for a few weeks after surgery-no capsular contraction. That happens without the moving around of the scar tissue that the massage does. Rock hard boobs, then. Nice to not have that!

    All in all, glad to be alive-I fear death no longer; I don't have have isolated odd shooting pains anymore-those gone years ago; and basically the boobs do feel like mine-but with a little something extra. Be patient, there's no way to know where your final journey winds up until it does. Take each event as it comes and decide then if you need other actions. Oh one more thing-I don't have to wear a bra anymore. I do sometimes, but then I get back soreness because they are so tightly positioned where they are-no sagging! wink

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited August 2018

    SPDGirl- My city has a breast cancer support Facebook page and a member posted the therapist’s info. If you have a local support page, perhaps you could ask there?

    Msjackiefan- thank you for the encouragement

  • Idkidk
    Idkidk Member Posts: 91
    edited September 2018

    hi all,

    I also have the tightness and it’s so horrible that one night it almost sent me into a panic attack cause I felt such tightness that I couldn’t take a breath. But then I read about using coconut oil. So I have been using it several times a day and it does help while it’s in and gently massaging it in. But the compression bra is weird cause it feels good at times but other times I just have to take it off. I feel like I’m walking around with one shoulder higher than the other. Plus still have one drain in which I can feel under my arm. Can’t stand it.

    Lol

    Farmerlucy that’s funny

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited September 2018

    idkidk- do you massage any particular way? My massage therapist worked under the area of where my breasts were and along my sides. I find I feel tighter if I stop doing my pt exercises too. I also think I'm just adjusting.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited September 2018

    Farmer Lucy, just read your post of the 27! You are so funny. Ladies, don’t believe her...she looks great all over...not just the bosoms.

    I still feel like I have a belt around my chest just below my implants

  • Idkidk
    Idkidk Member Posts: 91
    edited September 2018

    magnolia I just massage randomly and try to get every area. There’s a bubble now, I sure hope it’s fluid and can be taken out. Get this last drain taken out Friday thank goodness. I feel like a dog on a leash with it. It hasn’t even been draining in days.


  • wanderweg
    wanderweg Member Posts: 549
    edited September 2018

    I had a BMX with expanders three months ago, then my exchange surgery to place the implants a month ago. I still have some tightness around my chest like the band of a bra but it's definitely getting better. I wouldn't call it painful any more, just noticeable. (Now, the implants contracting when I'm cold - that's painful!

  • SPDGirl
    SPDGirl Member Posts: 132
    edited October 2018

    Magnolia-Mom: am curious how you are doing and if you have had relief from your chest tightness.

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited October 2018

    SPDGirl- I do have relief! I don't notice it a bit anymore. I don't know if it was the ones session of myofascial release or just time elapsing. I have diep flap surgery coming up, so hopefully that will not make it worse again. How are you feeling?

  • SPDGirl
    SPDGirl Member Posts: 132
    edited October 2018

    Magnolia-Mom - I am so glad to hear that! I am still struggling with daily tightness and have been worried it will never dissipate. My massage therapist that focused on the incision says she doesn't feel any scar tissue at all and is wondering if the tightness is just my new normal. I was able to have 1 session with a different therapist that does myo-facial release and I have not noticed any change. It was only 60 minutes, due to her tight schedule, but I have a 2 hour session in 2 weeks.

  • Magnolia-mom
    Magnolia-mom Member Posts: 101
    edited October 2018

    I hope it’s not your new normal! I guess I can feel a little tightness still if I think about it, but it doesn’t bother me like it did before. I hope your next session is more helpful

Categories