BIRADS 5 Lymph Nodes Involved Large Mass

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PNWCyclist
PNWCyclist Member Posts: 9
edited September 2018 in Waiting for Test Results

I just turned 43. Almost two weeks ago my husband had an infection on his elbow that spread to the back of his arm. He had red streaks. I was trying to show him where they were and I raised my arm in the air while looking into the mirror. I saw that my right axillary lymph node was huge. It did not hurt. It was about the size of a ping pong ball or so. I thought that was strange. I then noticed my right breast looked funny. Now, keep in mind I am thin and very athletic and really do not have “breasts" haha. I felt a LARGE painless but very firm lump and noticed my nipple was kinda pointing in the wrong direction if that makes sense. I already had an appointment scheduled with my PCP for a chest CT because I have thoracic endometriosis and get lung collapses a LOT and have had lots of chest tubes and lung surgery and need more. At any rate I went in and showed him the lump and lymph node. He noticed I had also lost about 10% of my body weight since March. He ordered a diagnostic mammogram for Friday August 24. I had it done and also an ultrasound. They gave me a BIRADS 5 and the doc told me right then she would not believe a result that came backas benign. She noted two lymph nodes involved; fine linear clarifications, spiculate margins and said the entire upper right part of the right breast was involved. She said an 8 x 5 x 8 cm area was involved. The biggest lump was 5 x 2 x 4 cm. I had a biopsy 8/31 and find out the results this Wednesday 9/5. I was told it is highly unlikely that it will be benign. I am so ner

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  • PreludeSing
    PreludeSing Member Posts: 102
    edited September 2018

    holding your hand PNW. (((hugs))). Take a deep breath and brace for it. While you don't have a result, there is still hope. Sending a plea into the universe to please not allow any more women to get this insiduous disease!

    Take care 💐💐

  • PNWCyclist
    PNWCyclist Member Posts: 9
    edited September 2018

    I keep searching the internet for hope. Unfortunately, the lymph nodes along with all of the other findings in the mammogram and ultrasound are not promising. I asked the physician who performed the biopsy what she thought and she said while malignancy is not diagnosed by visualization of the breast but,rather, of the biopsied tissue under a microscope, this looks malignant to her. I asked her to point out the things that made her think that and she said the fine linear clarifications, the “spiculations” , the lymph node involvement and the size and that it was hypoechoic. I do not know what most of that means but it did not sound good to me . This wait sure is awful!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2018

    we too are holding your hand, PNWCyclist. The waiting is the worst. We're all here for you.

  • PNWCyclist
    PNWCyclist Member Posts: 9
    edited September 2018

    thanks. We are going to try and do things to keep busy since today is a holiday. At this point, i just want to know and want a plan. I meant to post the results of the Mammogram and US:

    Right breast: There is a BB marker overlying upper-outer right
    breast and right axillary region at the site of patient's
    palpable abnormality. There is a large spiculated mass in the
    upper-outer right breast corresponding to patient's palpable
    abnormality. In addition, there are fine linear branching
    calcifications involving entire right upper-outer breast spanning
    at least 8 cm ML x 5.2 cm AP x 8 cm CC. Abnormal right axillary
    lymph node corresponds to patient's palpable abnormality with
    associated pleomorphic calcifications.

    Left breast: No dominant masses or suspicious grouped
    calcifications in the left breast.

    US Breast Limited Right: August 24, 2018 - Accession#:
    12144306PHS
    A high frequency transducer was utilized for real time scanning.
    Representative static images obtained.

    Right upper-outer breast was scanned in the areas of patient's
    palpable abnormality and mammographic findings. At 12 -2 o'clock
    position, 2 cm from the nipple, there is an irregular hypoechoic
    mass with angular margins, associated vascularity and
    calcifications, spanning at least 4.6 x 1.1 x 3.8 cm. This
    corresponds to patient's palpable abnormality and the spiculated
    mass with associated calcifications on today's mammograms.

    Evaluation of the right axilla demonstrates at least 2
    morphologically abnormal lymph node. The dominant node contains
    calcifications, which is evident on real-time imaging.


    Assessment: Highly suggestive of malignancy (BIRADS 5) (Overall)
    3D DX BILAT: Right breast finding is highly suggestive of
    malignancy (BIRADS 5).
    The final assessment is based on mammogram and ultrasound.

    3D DX BILAT: Left breast is negative (BIRADS 1).

    RECOMMENDATION:
    Needle biopsy of the right breast - ultrasound guided core biopsy
    x 2 sites.
    Right upper-outer breast mass corresponding to patient's palpable
    abnormality and morphologically abnormal right axillary lymph
    node are highly suggestive of malignancy. Ultrasound-guided core
    biopsy is recommended for both of these findings.


  • Fairchild
    Fairchild Member Posts: 206
    edited September 2018

    PNWCyclist, she's right: The waiting is the worst part. You will be able to deal with this. Meantime, hugs to you!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2018

    PNWCyclist, we're thinking of you! Have you received your results yet?

    Please keep us posted!

    --The Mods

  • PNWCyclist
    PNWCyclist Member Posts: 9
    edited September 2018

    Yes. It's IDC stage 3C. It's in my chest wall too. It's in the one lymph node they tested. It's "aggressive" they said. Today I got at MRI and genetic testing. Next week I see surgeons and oncologist. They want to shrink the tumor first as it's 8 cm.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited September 2018

    PNWCyclist,

    Sorry to hear your bad news. I also had a very aggressive large tumor (5 cm.+ with a satellite tumor), plus one compromised node. I did chemo first, and it was awesome to see the lump shrink as the weeks went by. I hope you have the same experience that I did. Do you know whether you tested positive for ER, PR, or HER2 yet?

    ((Hugs))

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