Radiation September 2018
I didn’t see a thread for people starting radiation in September so I thought I’d start one.
I had my lumpectomy on July 19. No nodes and clean margins! Oncotype was 11, so no chemo. Its rads and tamoxifen for me.
I’m starting radiation on September 4. I’m having 21 total treatments (16 + 5 boosts). I’m just starting to get back into my normal routine so I’m looking forward to getting through the rads and then hopefully back to normal (or my “new” normal).
Anyone else out there starting rads in September? I’d love to hear from you
Comments
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I'm starting on September 5th, 21 treatments also. My Oncotype score was 25 and as I'm over 50 (66), the decision was no chemo based on TAILORx . I'm going for a 2nd opinion, just to feel more confident about my decision. I started aromatase inhibitor 12 days ago. Due to my Oncotype score, I didn't want to wait until after I was done with radiation. Good Luck on the 4th.
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I'm wondering if mine will start in September. My lumpectomy was 8/28 and my follow-up appointment with my surgeon is 9/11.
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Holdingon52- Thank you and good luck to you on the 5th! We will have to compare experiences as we go through radiation! Have you had any SEs from the AI? I think I'm more nervous about the tamoxifen than the rads.
AMLMom51- welcome and let us know how your follow up appt goes on the 11th
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Hi All,
I'm likely starting radiation towards the end of September. I just had my exchange surgery 2 days ago, so waiting to heal up from that. I'm bracing myself for what radiation might do to my implants. My PS says there is a 70% chance of extracapsular contraction. I'm hoping that rads wouldn't be too bad. I just finished chemo 3 weeks ago and finally starting to feel a bit better. I also made an appointment for a second opinion for rads. Another cancer center here has proton therapy, so I'll see if that's a route I should take given that they are treating my left side WIshing all of us luck!
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Thanks, no side effects yet from the AI so far!
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My radiation starts Sept 12th or 13th. Reluctantly at age 74, but I've been told it's necessary.
I'm less concerned about radiation than I am about starting aromatase inhibitors a few weeks after radiation treatments end (three weeks plus one day).
Based on a recent bone density test, my PCP prescribed 50K units of vitamin D. I don't understand it because the last time she prescribed it, I got very sick from the side effect. Aromatase inhibitors cause a loss of bone density, which leaves me between a rock and a hard place.
My Oncotype DX score is 11.
My very best wishes to all of you as we start this journey.
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Domzie30218- welcome! Hopefully, when you start rads you won’t have any SE related to your implants. Keep us posted on your second opinion.
Viewfinder- welcome! I, too, am more concerned about the meds (tamoxifen) I will be taking after radiation than the rads. I need to have a conversation with my oncologist because I recently found out that my paternal grandmother had uterine cancer in her early 50s. Knowing that there’s an increased risk of uterine cancer with tamoxifen, I’m really nervous about taking it. I’m not sure if it matters that the family history is on my dads side and not my moms though. I’m also not sure what meds I would be prescribed if I cant take tamoxifen as I’m still premenopausal. Anyone know what the dr may recommend
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I have an appointment to discuss radiation this week at the cancer center with the doctor that heads up the center and the radiation department. I had my lumpectomy 8/9. Just wondering how much healing needs to take place prior to radiation starting. I saw the bs Friday and she drained a lot of old blood from my breast. It was really hard. No it feels a lot better but it still has some spots where it doesn’t feel normal. Thank you
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flag6818 thank you for starting this thread!
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Hey everyone, I will be starting radiation Sept 4th. I'm having 19 total treatments 15 regular and 4 boost.
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odat4me- welcome! My radiation onc made me wait about 6 weeks to start radiation, but everyone heals differently so some people start earlier. Keep us posted on your next appt!
Kmajor- welcome! You and I have the same start date for rads. Keep us posted on your progress and good luck to you on the 4th!
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Thank you I will keep in touch! It is nice to be on a group with other lumpectomy ladies! Still feel thankful for the lumpectomy. Wish the radiation wasn’t part of the deal. I just don’t want to get any side affects down the line. I lost my leg to cancer so I definitely wanted to try to keep my right breast. Funny it was my right leg that also had the cancer. Good luck to you all
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What's a radiation boost? Never heard of it and don't recall my oncologist mentioning it. Thank you.
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Viewfinder ~ radiation boost is where the radiation is directly targeted to where the tumor was. With me I’ll have 15 treatments to my whole breast and then 4 treatments directly targeted to the spot where my tumor was.
Flag6818 ~ Thank you and good luck to you as well.
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kmajor, Thank you for the explanation.
Does everyone get a boost? As I said, my radiology oncologist didn't mention this to me but maybe it's something they'll go over this week when I get CT Film Markings.
I hope I'm not the only one who finds it difficult to keep up with some of this terminology.
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viewfinder ~ I’m not sure if everyone gets boost. My RO didn’t mention it to me he just told me I would be getting 19 treatments. I actually asked him what boost treatments were and if I would be getting any. He then explained what they were and that I would be getting 4. If they don’tmention it I would just ask them.
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kmajor- how did your first rad treatment go today? Mine went well. Not too uncomfortable on the table (my radiation is in the prone position). Rad onc gave me some cream to use 3-4 times daily.
I saw a thread on here a while ago of someone who bought a scratch off lottery ticket for everyday of rads as her countdown. I'm not a lottery player usually, but I thought it was a cute idea so I bought 21 scratchers. Scratched 1 when I got back to the car today- no winner, but I'm one step closer to the end! 1 down, 20 to go!
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I was hoping to be starting this week but now it looks like it won't be until next week at the earliest. My simulation was last Tuesday so I'm still listed as in the "planning" stage. On my last appointment with the RO he sounded optimistic that I'd be able to do the accelerated schedule but now I'm starting to worry that with planning taking so long maybe that isn't an option. Hopefully I'm wrong and I'll be able to do 19-21 treatments.
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duffyzmom- I hope that you will be able to start soon! I had to wait two weeks after my simulation to begin and it felt like forever! Hopefully you will have the accelerated schedule as well! Keep us posted
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flag6818 - Thanks. I'll definitely update asap. I'm a US citizen living in Canada right now but my treatment is in Michigan so I'll be living in our permanent home during treatment. Part of the reason I want this to go quickly is the whole living situation. Fingers crossed RO keeps that in mind. I made a point of mentioning it again at our last appointment.
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How's this for ASAP - Just got the call radiation starting tomorrow and only 20 treatments. YAY!!!!!
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Duffyzmom- yay! So glad you get to start tomorrow!Let us know how you’re holding up through your rads. Mine went very smoothly today. Hope our treatments fly by with no SEs!
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Hi,
Just started rads today and would like to join you guys. I am nervous about rads due to having breast implants, but no choice so hoping for the best.
What type of cream did your docs give you?
I am doing 4 weeks, last week is a boost.
I am in prone position. Hardest thing for me is when they get me in position, they are shifting me by pushing my back. I have a horrible back problem and mentioned it, but they seem to say it is necessary to ensure I am in correct position Anyone experience this?
Good luck to everyone. Feeling a bit down today.
NJmom
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My oncologist/surgeon and radiation oncologist want to schedule radiation as soon as I have a follow-up MRI. I had a lumpectomy and sentinel node excision, I'm 62, hormone receptors positive, Her2 negative and Oncotype DX score 10 (7% chance of recurrence with hormone blocker). Fortunately I won't have to have chemo.
My radiation oncologist is suggesting full breast radiation for 20 treatment (I think 16 treatments and 4 boosts), other options are the full breast without the boost, 3D conformal external beam radiation (still researching). My surgeon/oncologist believes I'm a good candidate for partial breast radiation ... 2 treatment per day for 5 days which targets the radiation on the tumor site (high dosage each visit but less total than full breast).
How do you decide which is the best option? Has anyone with a low Oncotype score skipped radiation with the approval of their oncologists? I hate to admit the fear of making the wrong choice and long-term effects are creating anxiety. Anyone have any suggestions?
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Hello all, First of 21 treatments to day; (16, then the boost). The staff were all very nice. I asked for the first appointment of the day going forward and was able to get it - 8am
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Njmom2boys- welcome! Sorry to “meet” you under these circumstances, but so glad you are going us! My rad onc said I could use any cream that I wanted as long as it was fragrance free. I chose miaderm based on a friend’s recommendation. So far, I’m happy with it. Not too greasy and seems to soothe the area. I’m in the prone position as well. There’s lots of pulling and tugging on my body to get it in the optimal position. I’m trying to tough through it to keep the rads as far from my lung as possible. I have sciatica and so far it’s not acting up.
Grandmaadams- I think the worst part of a bc diagnosis is the worry of what if I choose the wrong treatment. For me, I am choosing rads so in my heart I know I did try everything available to keep it from recurring. If mine comes back, then it was meant to be... Only you can decide what will let you rest easy at night. Prayers that you will find a choice you feel comfortable with
2 down, 19 to go for me! Don’t forget to lube your boob, ladies!!!! :
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Njmom2boys - I'm also concerned about the effect of radiation on my implants. I'll also be prone so I'm hoping that will help protect the implants some. Since I'm just starting tomorrow I can't really recommend any specific lotions, although like flag6818 I ordered the miaderm based on other posts I've read on here. I also have a pure aloe vera spray gel on hand and a CamWell HerbtoSoothe cream on hand to try.
Grandmaadams - It's perfectly normal to stress the decision making. I'd be reading all the scholarly articles I could. Also make sure that when you meet with your MO and RO to have a list of questions ready.
I'll be doing treatments in the late morning so I'm thinking lube after treatment and then again before bed. What do the rest of you do? I've heard at least twice a day.
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I start either the 17 or 24th (more likely the 24th).. I'm doing a trial and I'm getting almost 7 weeks -yuk.. but it's proton which I guess is good because it's over my left side and not clean margins etc. I ended up with shaped tex implants because I was told they do better with the radiation. fingers crossed
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Hi,
I am so glad I joined this group. It is really helping me, so thank you.
Duffyzmom, would love to keep in touch about the implant experience. How many treatments are you doing? Are you doing any massage to help prevent? I remember something about doing that with the breast augmentation to prevent cc, but I never presented with it, so never did it. Maybe can help now?
I am using Calendula cream they gave me. But just on day 2, so will see how it goes.
Flagg, we are almost on the same rad schedule so will be finishing up around the same time.
Good luck to all,
NJMOM
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I had my CT Film Markings today. Part of the procedure was that the very sweet nurse told me she was about to put a band around both feet. I looked up in all seriousness with a straight face and said "That reminds me of Fifty Shades of Grey."
The poor thing had a startled look on her face, jumped back and pulled back her hands. I started laughing then said I was only kidding, that I haven't and would never read that book but that I had just watched the movie Book Club (one of the most delightful movies I've seen in a long time!).
We both had a good laugh together.
Gotta joke a lot as we walk this journey called cancer, right?!
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