CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • octogirl
    octogirl Member Posts: 2,804
    edited August 2018

    Hugs to all of you who are waiting and anxious!

    I think I mentioned my mammo a few weeks ago was clear. Today I had my last MO visit before I move (and have to find a new one...) and that went well also: all blood work, etc looked good...he wished me good luck and sent me on my way....looking forward to the road trip to get to my new home!

    though of course still anxious about hubby: he had his skin biopsy today (finally! I tried to get him to move it up, no luck) but he won't get the results for another week! By that time we will be arriving at our new home...argh...more waiting....

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2018

    Bob had his mole removed today--the dermaplastic surgeon said it was either a senile keratosis or compound nevus--but I dunno, as it was brownish black with a bit of red along the top border. He humored me and sent it off to path. We shall see.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    hi all, heading to onc this pm, she has the results of my new pet scan, hoping to find out while I have pain i my upper back area, hoping it is because i over did junk at gym since recent tests have all showed improvement

    Staying positive

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    welsaw my on my pet is mixed, my meds have worked great to clear my liver but my bones not so good so i get to add a new med.......how fun! This will be a weekly infusion, bummetsl

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited August 2018

    Iris ..great news about your liver !!!! Hope the new meds work quickly on your bones ..

    Had my annual mammogram /ultrasound and blood work this week ..all good ..always a relief to have them over and done with.

    Its been a very stressful week ..my 5 year old grandson ( the one who was so sick last year ) has been in ICU in hospital with pneumonia ..thank goodness he has turned the corner , and they moved him today into an ordinary ward in the hospital today ...It's been such an awful worry ..

    Sandy .. I hope Bob's results are good ?!

    Hugs to all xx

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2018

    With Bob's skin path, no news is good news, I guess. The dermoplastic surgeon wasn't even going to send the lesion for biopsy, but he & Bob agreed to humor me.

    Finished my root canal today...but started one on the adjacent incisor (the one my DDS & perio had thought was the problem, but the endo said the cuspid was abscessed and the canal so sclerosed it was barely visible on X-ray). The pain, once the anesthesia wore off, was a little less than after the first session for the first tooth.

    Then it was off to the orthopedic surgeon for followup after L hand/wrist/arm surgery and X-rays of both arms (R radius had hairline fractures at each end). Turns out my R elbow & forearm pain is tendinitis and should go away with PT. As for the L, I have been told to wean myself off the EXOS cast-brace as much as I can tolerate. (I might still wear a brace for sleep so I don't do anything to reinjure myself while unconscious--which was how I aggravated my TFCC tear in the first place). Still very stiff & sore--swelling between palm knuckles, limited range of motion. Can play some dulcimer, but very, very little guitar. PT/OT starts Monday. Personal goals: to be able to make guitar chords and fasten a bra behind my back instead of having to step in and pull it up (in order to do that, I have to lengthen the straps which then fall down all day).

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  • Molly50
    Molly50 Member Posts: 3,773
    edited August 2018

    ((((iris)))) I'm sorry you have to add another medication, good news about your liver. Lucy, I am sorry about your DGS but happy to hear he's out of ICU. Octogirl best wishes on your move and for your DH biopsy. Sandy, you are really going through a lot! I am so sorry. Things are not good here. He's progressing and we had two episodes today. He's not bouncing back. He's so uncomfortable we finally relented to the pain management hospice recommended. I feel like I just took a big step toward letting him go. I'm so sad. Sending love to all of you.

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited August 2018

    (( Molly )) sending hugs , love and prayers ..I wish there was something I could say that could ease your pain .Just know we are all here for you..

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2018

    Molly..my heart is broken...Lord..not our children...Please....hugs and prayers....

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2018

    Lucy...prayers for you and your GS too....

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    Sandy, i know you use peapod? Well this week's delivery was well funky! I ordered a package of boneless pork cutlets but got 7 packages! I checked the invoice and it looks like i was only billed for one! Guess I am eating lots of pork!

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  • Me2018
    Me2018 Member Posts: 14
    edited August 2018

    PET scan results came back looking good. Done with Chemo for now...MX scheduled for Sept 10th. on to the next step.

    :)


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  • octogirl
    octogirl Member Posts: 2,804
    edited August 2018

    Quick check in from the road: Lucy and Me2018, yay for good results!

    ((Iris))), sorry for mixed results, hope the new drug does its thing! and big hugs (((Molly))), thinking of you and your family everyday! Sending love and prayers.

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited August 2018

    Molly *and anyone who needs it* I send you what serenity I can

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  • Molly50
    Molly50 Member Posts: 3,773
    edited August 2018

    Lucy, how is your DGS? Octogirl, did your husband get his biopsy results? Sandy, what about Bob? After 4 yes 4 near death episodes on Saturday we had a relatively quiet Sunday. He's a bit better today. He's still marching towards the end but it's a relief to have a day or two of not seeing him turn blue or worse gray.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    ok crazy issue....after finally getting my hair back after going bald on taxol, seems my hairdresser of 25 years is missing! And i need a cut!

    Heading to gym and hope to get a referral!

    Defi itely crazy

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2018

    Bob's path report is back--it's a sebhorrheic keratosis; the red margin was inflammation. Still gonna nag him to use sunscreen. Molly, may Wyatt's road be smooth & gentle. iris, it's always something...

    Had first hand therapy session today--brutally painful, and I have to do the exercises 2-3x/day, as well as keep trying to play guitar, to stretch my tendons back out enough to make full chords. OY.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited August 2018

    Had a heat rash that caused a yeast problem in a very uncomfortable place. Called my oncologist to see if she could prescribe something to get rid of it. Got it last night and I started the treatment right away.

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  • octogirl
    octogirl Member Posts: 2,804
    edited August 2018

    M0mmy, as Sandy said earlier about something else, it is always something! Hope you heal quickly!

    Molly, thanks for asking, hubby got his results: benign! Yay! I can breathe easier now...

    I am swamped with my move, going to have to change my profile to reflect my new location...maybe I will have time this weekend!

    Love to all the crazies. Octogirl

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited August 2018

    Thanks Octo and Sandy. You guys are right, if its not one thing, its another!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2018

    Ohhh, my wrist & arm! My hand therapist warned me that I will now be able to predict storms coming through even before my barometer does, and she wasn't kidding. The muscles around my ulnar hardware feel like they're being squeezed. Time for some gentle heat, scar massage (I'm no dummy--I'm using a CBD balm for that) and then my (OWWW!) tendon-stretch exercises. Then, play a few chords that I've found challenging; then ice, ice, baby. Lather, rinse, repeat (after dinner & then bedtime). At least no more root canals.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited August 2018

    Sandy, I know how that goes. My left foot that I had a bunion removed back in '01 lets me know when the weather is going to turn nasty. Sometimes the pain is so bad, I am hobbling for the Tylenol

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    well back from infusion for new bone med. Supposed to work on the cancer in bones. I can tell you I am way

    Sleep now

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2018

    Iris, take it easy, log on to Netflix and call GrubHub. (If the infusion was Zometa, you might get pain deep in the bone marrow--even where there aren't mets--for a couple of days, Claritin helps--get the cheapest generic loratidine).

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited August 2018

    Molly ..thinking of you and Wyatt every day ..I so wish Beppy were here ..she would now exactly what to say ..(( hugs ))

    Iris ..have a good sleep ..hope your new meds is working wonders ...

    Octo ..hope you move is going well ...moving is always stressful but fun too :-)

    My little grandson is still in hospital with flu and pneumonia..which has now turned into Necrotising Pneumonia..he's been in hospital 2 weeks now ..We are so worried ..going to the hospital to see him tomorrow.

    Hugs to all ..

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited August 2018

    Things are starting to go back to normal, at last. Sick of these heat waves.

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  • pennsygal
    pennsygal Member Posts: 346
    edited August 2018

    Molly, thinking of you and Wyatt. Gentle hugs to you both.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2018

    Molly, Lucy.....praying for you both for a good outcome.....even thought I am not on a lot, I think of all of you often.....hugs

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited August 2018

    Molly, hoping things might turn around for Wyatt, and that he is comfortable and free from pain.

    Lucy, I hope your grandson is able to come home soon.

    Hugs to you both.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2018

    gee, i just had a follow up call from sloan kettering, since this was a new drug, they were checking, i do appreciate that. Other than tired today all is actually fine. I do not seem to find anyone on line who is taking this med. Hospital said it had been around about 3 years. I told her it felt dif somehow from the infusion i had for taxol. Amazing but she said it is partly as there is a shortage of saline since floodind in puerto rico. But said i should requext a slower infusion. Simple enough. I do like this place



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