Starting chemo July 2018

Checking in about a SE. I feel so much more nauseated this time. I am still having to take the anti-nausea and it’s the second week! Anyone else? I’m either taking the thc/cbd tincture which only lasts for two hours or I have to take the percholorazine (sp) which makes me tired.

Congrats Jkittle on your last a/c!!!!!!!! good luck on the scans!

Misha, I had nausea the whole morning today, after AC last Monday... yesterday too... today is day 8. ugh. Maybe a talk with your MO could help?

Yesterday I went for a blood check (which was OK), there was another MO, since my MO is in a (well deserved) vacation. And she seemed really sympathetic and concerned, that my nausea lasts so long, and that I lost a few pounds due to that. I'm already very thin. So she prescribed a new medication that I am to take prior to the last AC next week. So I hope it will help some.

Gina-How high was your fever? I have a low grade fever since last night and I feel like I might have a cold. Glad you got to the hospital and hope you seen doing better!

Dawn I am happy to report I haven’t had to shave my legs in at least two weeks!! Sorry you are shedding, it’s hard to see it go, but it will grow back. Even that darn leg hair!

JaBoo I will definitely report the nausea because that was sucky! Only since yesterday have I not felt nauseated.

Happy Thursday and good luck to anyone doing chemo today or tomorrow!

Dawn117 We are on the same treatment tchp, first round was the 3rd Aug. and heading back for number two in the morning. I hope it's better than the first one. I to went through the hair thing, cut off 6inches to my shoulders, and four days later had to shave it.
SunnyDee24 I have had the same feelings and side effects. MO has changed things around for number two tomorrow. And added 3 more days of the steroids. I will let you know if it gets any better, with new nausea med also.

Hey Holly, Hughope1 here, I lost you for awhile. Was in the Aug group, this is the group I actually start with. What's going on girl, I am heading out in the morning for round 2 of tchp. I lost my hair last weekend, started coming out in big clumps and head hurt so bad I had my daughter and husband shave it.

It seems you are in the dark place I was after round one of the tchp. I have gotten my MO on board this time with new added meds. I told him I was ready to quit. He made some adjustment, since day eight last time took me back to hospital for hydration and potassium. Day 10 I was able to go back to work for the next 10 days. This time we are extending the dexamethasone (steroid) which I started today for eight days. Day 1 after chemo Friday we are using zyprexa at bedtime for three days, and ondansetron. And he gave me compazine to use instead of zofran. Still have the Zarxio shots for 5 days.

He does not want me to go past Tuesday this time, day four without poss. going back in for fluids. I will keep you posted my friend. I also ordered this stuff called metaqil on amazon. It takes a lot of the metal taste out of your mouth so you can eat a little better. I will write more as soon as I can. Here I come round two. xoxo

Hang strong my friends, what doesn't kill us only makes us stronger.

Jkittle! your henna looks BEAUTIFUL

Guess who had to go to the ER last night?? Gina-I had asked about your fever because mine was getting up there! Yesterday afternoon I felt like crap and temp was 100.6.

So after four hours and a bunch of blood work, chest X-ray and EKG, they said my wbc was good and they sent me home with some antibiotics!

Hopefully I’ll still get to finish my ac on Monday, but I’m not sure. Okay, I lie, I really hope they cancel it...ugh. I know it’s only one more...still ugh.

Anyway, don’t be afraid to go to ER with a temperature! They really do take it seriously!

Dawn117 day two of second round, just took my zarxio shot. So far so good. I thing them changing my medications around is helping. The shot will be the real teller here. Give me a little more time and I will update later on tonight.

be strong girls, we are all in this battle together. All my best wishes and prayers go out to you.

That was my hand earlier today from getting stung by a wasp.I'm feeling a lot better now. Kinda freaked me out for awhile though. Worst allergic reaction to a sting that I've ever had. I guess it's because of my immune system being weaker than normal right now. Took 2 Tylenol, a Claritin and 1 of the steroid pills I have here for nausea. It also can be used for allergic reactions apparently. I also used ice and a CBD cream which seemed to help more than anything else.After I got stung, all of a sudden I had red welts all over my other arm and it was spreading! Crazy itchy, even up to my ears. I've never had hives before, but I knew that's what it was from Dr. Google lol. My throat was even feeling tight. 😳 I have asthma, so that made me nervous. After about 30mins, I thought well I guess it's not gonna kill me, I'm still here. Lol Did not want to go to ER ugh.. The welts have gone down, my arm looks normal again, no more itching and swelling is better on my hand too now. Oh, and while I was getting stung in my backyard, I also got 2 mosquito bites. Geez.. I'm done with the outdoors for the rest of the weekend! Lol

Jenn,congrats on moving on! Your henna is so cool. I’m looking for someone local to do mine. Keep us updated. I want to know how the weekly is. My hands are so numb as it is and I’m so fatigued. I have an adrenal tumor also. Darn bodies.

The exact same with my adrenal tumor. But I guess if it shrinks that’s not good. So you want no changes to it from chemo. My oncologist is seeing me early Wednesday to address the neuropathy. Dreading the last AC Friday but also just want it done. Yes I’m not looking forward to 12 weeks of Taxol which is notorious for neuropathy. Please keep us updated.

Had my #4 AC this morning. Yay 😁 Everything went well like usual. Went by myself today because my bf came down with a virus last week. Stopped at Sonic for a milkshake on my way home and just taking it easy now. Fluids, fluids, fluids.

Rose

Good morning friends. Round 3 of 4 today. Why does this round seem the hardest as far as anticipation? Dreading this coming weekend as I'm usually really suffering day 4-6.

Have a list of questions for MO today. One is asking for a sleep aid other than Ativan. Does anyone use Ambien or CBD oil and get good effects??? Also going to try to eat fruit only and smoothies during the infusion to try to keep things moving digestively, last 2 times I was constipated for nearly 5 days!

Hoping by posting here I can let go of this anticipation and also send out good thoughts to all of you this week.