Freaking out...

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DeezBreasts
DeezBreasts Member Posts: 13
edited September 2018 in Not Diagnosed But Worried

My mom died of breast cancer when she was 50.

I have always had dense breasts. Last year, I felt weird pain, discomfort, and burning sometimes in a particular area in one of my breasts. I got a mammogram, then they wanted to do a special mammogram on that breast (without me telling them that I felt uneasy about that breast), and an ultrasound of that breast. Told I have cysts and they are harmless. Then I got a letter from them that I am ok, but they want to check me again in six months.

Six months passed, I go back for a special mammogram of that breast (lots of views, lots of squeezing and pain, lots of positions) and an ultrasound of that breast.

Get a letter that they want more ultrasound. Go back. Exactly one week before my period started (in case that matters).

Asked the radiologist how things seem to be looking. Showed me the calcification in a cyst by the pain and discomfort area, said the calcification looks large, so should be fine and not cancer. But doctor or whoever will look and get back to me.

Have been waiting for the letter to arrive to get confirmation that I am fine and to come back in 6 months. Get a letter that I need further evaluation and to contact doctor.

Will call doctor today. Freaking out on the inside. Trying to hold it together on the outside.

Worried they will say biopsy is the next step. Heard someone say before that biopsy can "anger" cancer and make it more aggressive, and someone else said something about some rogue cells escaping when getting a biopsy and traveling elsewhere in the body, so then even if someone gets a mastectomy, they could get breast cancer from those traveling cells. Not sure about the legitimacy of the above statements, but figured this was a safe space, so I could just fully express all my thoughts.

Read a story on here about someone removing the cancer and then getting it in their liver in full attack mode.

I wonder if the doctor says biopsy is the next step, whether I should go find someone offering BRCA testing and get that done instead. And if positive, just go straight to mastectomy and reconstruction. Angelina Jolie, a Real Housewife, and so on have been getting these mastectomies if genetic testing is positive, and supposedly preventing possibility of breast cancer. Unfortunately, I don't have their financial situations, but this stuff is important.

Would going straight for a mastectomy prevent traveling rogue breast cancer cells and eliminate any possibility of breast cancer in the future? Prevent breast cancer from popping up in the liver or anywhere else at some point?

Apologies for just spilling it all and saying things that might make sense, and things that might not make sense.

Just looking to hear people's thoughts, ideas, experiences.

Freaking out. Was not expecting these news.

Comments

  • Lula73
    Lula73 Member Posts: 1,824
    edited August 2018

    Slow down. I know your mind is racing in a bazillion different panicked directions. You’re way ahead of yourself. Biopsies don’t anger cancer. Cancer doesn’t have feelings or emotions to wage a retaliatory war on you. Yes some cells can be released on the way back out of the biopsied tissue but it’s much more of an issue with cancers in major organs like the liver where the cancers tend to be very aggressive and super resistant to treatment. The vast majority of breast cancers are slow growing. Back to your mammo findings... does the radiologist’s report give a BIRADS number? If you don’t already have a copy of it, get one. When you’re at the surgeons office you can inquire if the biopsy can be an excision biopsy, stereotactic, etc. With a family history of BC you should qualify for testing. Ask the surgeon while you’re there. There are currently 9 known genes that indicate increased risk for developing BC in a woman’s lifetime. Having one of them does not guarantee you’ll get get it but it’s very likely. BMX does not completely eliminate risk of BC but it takes it down to about 3% risk. The average woman without family history/genetics has a 12% risk of developing BC. Make your appointment, schedule the biopsy, request the testing and focus on your life again until test results come in. Worrying today will not change the outcome of the biopsy. We’re here here for you if you neeed us.

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited August 2018

    Spoke to the doctor. Need to do an ultrasound guided needle core biopsy. 8mm, at 10 o'clock, about 10 cm from nipple. A cystic lesion with layering debris inside, which is oval shaped, and one calcification showing up in the mammogram too in that area. There is a cyst, hopefully just a cyst, but there might be a small nodule inside the cyst. They called it a suspicious abnormality. So, they need to biopsy that nodule area and check the cells.

    Scary stuff. I freak out when I need to get blood taken from my finger. Have almost fainted from that before.

    Really scared about the biopsy itself, as well as the results. But I agreed to go for it. Being proactive and not burying my head in the sand. Hopefully all healthy and nothing to worry about. I guess we'll know once I have the biopsy.

    Breathing and trying to think positively.

    No use in freaking out and skyrocketing my blood pressure and giving myself headaches.

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Thanks for your post, Lula. I have read it multiple times now.

  • djmammo
    djmammo Member Posts: 2,939
    edited August 2018

    DeezBreasts

    Its too early to panic. In my experience most patients are surprised when the biopsy is not as bad as they thought it would be.

    Can you post the ultrasound report?

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Hi, Djmammo. I wrote above everything the doctor told me about the results of my last ultrasound.

    They sent the results to my doctor and the doctor told me the things I mentioned above.

    I have an appointment with my doctor for a clinical exam. My doctor wants to feel me up. So, perhaps I can ask for a copy of my ultrasound report at that time.

  • Slavica
    Slavica Member Posts: 11
    edited August 2018

    The ultrasound-guided core needle biopsy is not a bad procedure. They give you some local anesthetic and during the procedure itself, you might feel some pulling and pressure, but no pain

    I'm very glad that I got the biopsy when it was indicated, even though I was nursing at the time. The benign result put my mind at ease. The worst thing, really, is the waiting for the procedure and for the results.

  • AprilMay
    AprilMay Member Posts: 44
    edited August 2018

    Hi, Deez. First, I want you to know that your username made me giggle.

    Secondly, I want to encourage you to breathe and try to slow down the old brain. Lula covered the technical stuff so I’ll just share my experience.

    I made myself a complete wreck a few months ago when I was told I needed a biopsy on a lump I’d found. I lost 10 pounds in the week I had to wait. No bueno. I won’t tell you not to worry but I will suggest that you ask for medication for anxiety if you need it. It’s difficult to not think 10 steps ahead when you’re so scared but try to focus on where you are right now.

    All I could see was the word “suspicious abnormality” even though the radiologist said he thought it was unlikely to be cancer. He wanted to be certain that he was correct as he said he wouldn’t feel comfortable sending me off without a biopsy if I were his wife, but I convinced myself that it must be malignant. The results were B9 and I hope there is nothing further to worry about. I also have fibrocystic breasts and they seem to do all sorts of weird but benign things. Perhaps it’s a case of being certain for you, too.

    Also, the biopsy was not painful. I felt a little stick when he began numbing the area but no pain. I didn’t realize he was taking samples until I heard the sound of the vacuum device. I was so anxious that I think my body was full of adrenaline and I was oblivious to anything except the worry about what the results would be. I did bleed some so the nurse had to keep pressure on the area longer than for some and that was uncomfortable but only because I’m very small and bony and she was pushing me down into the table quite hard while applying pressure to the incision. I was sore for a few days but ice and Tylenol helped quite a bit. I found I had wrapped my arm around the side of the table opposite of the biopsy site to grip the edge of it and bruised my forearm. Haha. Anxiety is a trip. I have panic attacks so I wasn’t surprised that I hadn’t one on the table.

    The thing I wasn’t prepared for was the meltdown I had when I initially took the dressing off to shower. I looked down, saw the bruising and swelling, and wondered if I was looking at a body part that was going to kill me. Quite irrational but it seemed perfectly logical at the time. Again, one must slow down the brain. They can get away from us

    Take care of yourself. Sounds like your odds are pretty good.


    April


  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Thanks for your reply, April. And I am so glad you got a chuckle from my username. 👍 And so awesome that your result was b9. Woo!

    Supposedly, they just want to be sure. But I am so scared. I have not said this to anybody, but the location they are wanting to biopsy is the same kind of location as where my mom's situation began, so I am so f'ing scared.

    I want to live.

    I know I am being dramatic and ridiculous, people, but if I can't just say stuff that I feel here, then where?

    And I know people have real diagnosed problems, and that's awful, and mine hopefully is nothing, but the mom death factor is making me lose my mind.

    I am doing my best not to think about this stuff and just live life normally and wait for biopsy and results, but whenever I think about it, no bueno.

    And then there is the financial factor and I feel so bad and guilty doing this to us, and I know that's silly too, because I certainly would not have chosen to have this issue occur.

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Hi, Slavica. Yay for b9!

    How was the recovery after the biopsy? Any tips or tricks?

  • AprilMay
    AprilMay Member Posts: 44
    edited August 2018

    I don’t think you’re being ridiculous at all. I think you’re scared and I understand. Three of my grandparents died of cancer. It’s terrifying to consider when you’re going through a scare. The uncertainty is maddening. Vent all you need to

    I attend Al-Anon meetings (my mom is an alcoholic/addict). My sponsor is a breast cancer survivor. She dragged me through my scare. The thing she kept saying to me is that I am strong and would handle whatever the outcome was. I didn’t feel like I could but it was good to know that someone else thought so! You, too, will handle whatever the outcome may be. I hope you’re able to enjoy your weekend.

    Many hugs and still hoping for B9.


    April



  • Ateague5
    Ateague5 Member Posts: 5
    edited August 2018

    hello, I am going through some similar things and am freaking out as well. I am 40 years old. Don't know family history I was adopted. I felt what I thought was a lump. But I have lumpy breasts anyways always have. Very dense. Went to see my doc he felt it and sent me over for a mammo. This was my first mammo. I work at the hospital so I called and they got me in immediately. After the mammo they took me back to do a ultrasound. Strangely the area I was concerned about did not show anything on mammo or ultrasound. But two other spots showed up. One in the bottom and one almost in my nipple towards center part of body. Two ultrasound people could not find the area by the nipple. The radiologist came in and found it. Took him a while. He said the one by the nipple was irregular and concerns him but the one at the bottom was round and had defined borders. I have to have a biopsy and I am so scared. I can't eat or think I can only cry

  • MiaMay
    MiaMay Member Posts: 52
    edited August 2018
    Deez,

    Have you had your biopsy? How did it go?
  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    April, reading any of your posts to me makes me smile. Thank you for making me feel better.

    Ateague, sorry you are going through all that. Hopefully b9 and you are fine. Try not to cry and do some things that are fun for you to take your mind off this bs. And from my reading, it seems like 70% of biopsies end up being b9. So, try not to freak out. Wait until after the biopsy. Plus it sounds like there are more different treatments available, so a lot of this stuff is highly treatable. Had a doctor's appointment today that put me in a better head space.

    MiaMay, no biopsy yet. They want over biopsy prep with me regarding what to expect and stuff and what I am and am not allowed to do and stuff and aftercare. They are just waiting for scheduling to open up and then will schedule my biopsy, which should be quite soon.

    Does anyone know whether THC or coconut oil is a blood thinner. I have horrible insomnia and have doctor's rec for that stuff, so I take some medicated coconut oil every night. And I would also like to take a little before the biopsy, so I don't company freak out. The doctor thought it would likely be fine, but I should just make sure it's not a blood thinner.

    Will post info about ultrasound and stuff later tonight.

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Bi-Rads Category 4: Suspicious.

    Cystic lesion with layering debris which is circumscribed and oval measuring 7x6x8 mm. Within the cystic there is an echogenic focus. There appears to be some color Doppler adjacent to or within the lesion. It does not definitely have the typical ring down artifact. A corresponding calcification is not definitely seen on the previous mammogram images. It may represent a mural nodule.

    Slightly complex appearing cyst with debris and probable intramural nodule represents a suspicious abnormality. Ultrasound guided biopsy is recommended.

    Djmammo and anyone else, if you have any insights for me, I would surely love to hear them.

  • anxiousbird
    anxiousbird Member Posts: 9
    edited August 2018

    Hi,

    I probably have no knowledge about breast topics. But i would like to put forth my condition as its worrying me to the core. I have vitamin b12 and D defeciency, I also have GERD. I was on antacids. After a week I noticed swelling in both breasts and milk discharge. After stopping antacids discharge stopped. And, now, swelling remains only in one breast. Doctor suggests taking test for Prolactin. And has given me Condisoft for breast pain. I am worried because of little swelling and muscle pain is freaking me out. She says its nothing to worry about. My age is 27 with no history of breast disease. Please help me in what should i do. I am not comfortable discussing imy worries with others as it presents me as constantly worried human being.

  • Erinashley19
    Erinashley19 Member Posts: 104
    edited August 2018

    deezbreasts- post ypur description on the “interpreting your report” thread. That’s djmammos thread and he’s most likely to see it there. Hopefully he can chime in soon

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Thanks, Erinashley, I just posted it there.

    AnxiousBird, sorry, I don't really know about that stuff, maybe you could start a thread and someone with some knowledge will answer. But sounds like you have spoken to your doctor about this, so that part is good.

  • AprilMay
    AprilMay Member Posts: 44
    edited September 2018

    Hi, Deez! I was just thinking of you and wondering if you’ve had your biopsy yet, and how you’re doing. Any news?

    Hugs,

    April

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Hi, April! You are awesome!!

    My biopsy is in a few days. The closer it gets to the date, the more scared I am (of the procedure itself, of the results & consequences, of it being early in the morning & me going to the procedure sleep deprived). I try not to think about it and just be my happy self and focus on good. My insomnia has kicked into overdrive though. I usually have insomnia at night, but now it's more like insomnia++ lol.

    I have been trying to come up with "logical" excuses not to have the biopsy right now, like whatever is there could just go away by itself by the time of my next mammogram, or waiting until I know the genetic risk by DNA. But I think that is just my fear trying to find a way to get out of this. So, I am going for it and going through with it, because really I should know and they say early detection is very important. But I worry I'll make it spread due to biopsy if something is there and if I have the genetic issues, and if I have a bad genetic issue then it might make sense to just get rid of everything right away.

    Anyway, my mind has been racing and running away with me.

    Apologies to any of you reading this and thinking that I am a crazy person, but awesome April asked me and I am answering honestly.

  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    Oh my f'ing goodness, you guys! Just spoke to my doctor. And..

    None of the stuff they sucked out of my breast had cancer cells - just normal breast tissue - totally benign.

    The genetic test results are in too. And...

    None of the crazy markers they tested for are there.

    I am shocked, but in a great way. Yay!!!

    I cannot believe it. I am so happy and surprised by the results.

    Because of my mom and stuff, I still have increased risk, and it's important to stay on top of my mammograms and stuff, but that is all for now. 😊

  • AprilMay
    AprilMay Member Posts: 44
    edited September 2018

    I’m so happy for you! Please give yourself a pat on the back for following through with something that clearly frightened you significantly. What a relief it must be for you to know the status of things

  • Rizz
    Rizz Member Posts: 72
    edited September 2018

    oh wow thats a very good news.I was following your thread its really good to read that biopsy came back benign.so happy for u

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited September 2018

    Congratulations! Thanks so much for coming back and letting us know. So good to hear positive news!


  • DeezBreasts
    DeezBreasts Member Posts: 13
    edited September 2018

    April, your kind words helped me through this process a lot. My mom didn't fully go through with the biopsy, so I was extra scared I wouldn't be able to go through with it and so on. So for me it was an extra big deal to get it fully done.

    Rizz, thanks a lot for your response and for keeping abreast of my story. We are definitely very happily shocked by the results. My husband is worried though that they gave me the wrong results or something and that we could be lulled into false sense of relief and then they'll give us the scary news. But I think they got the right results. They took a bunch from my breast for the biopsy. And they took a bunch of blood from my vein for the genetics test. So, I think I am fine. I just need to be vigilant about mammograms and all that good stuff, and hopefully stay healthy. My husband and I discussed the follow through of bad results so much in these past few weeks that he is afraid to let down his guard about it. And with my mom and stuff, we totally thought my odds were really bad. I am taking the good news and running with it, while I ice my boobie to help it heal from the biopsy. 😉

    Sjacobs146, thank you! I am very glad that the news I got to post is good news. And this community and wonderful members here helped me a lot through a very stressful, scary time, so of course I wanted to write my update here as soon as I got the news.

    Thanks for everything, you guys, and everyone else who ever responded to me. I really appreciate each one of you a lot. You guys are awesome and special! ♥️👍

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