Exchange City

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  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    I hear you Rachel. Maybe others that have been through chemo will chime in too. And please don't think I was inferring you were making a bad decision either. I"m not . We are all here to look out for each other. You may do just fine. I trust my PS and he flat out said he would not touch me b4 6 weeks. At 6 weeks he would have done it if I insisted. I just can't do that because to some degree he is the boss. It just seemed right to wait as bad as I wanted this behind me. I'm sure he is basing this off previous experience. I'm thinking it's because chemo has a cumulative effect and the further out you are probably decreases the chances of infection. He is also one that wont do fills during chemo. It was hard for me to wait because I breezed through chemo. If you proceed maybe you can ask for an extra lab draw a day or 2 before to be sure your counts are still good? We are in this together girl!

  • rachelcarter35
    rachelcarter35 Member Posts: 368
    edited August 2018

    DebAl: auh the limitations of writing. I didn't take it that you were saying I was making a bad decision. I want to make an informed decision and appreciate all input.

  • Maggie2
    Maggie2 Member Posts: 247
    edited August 2018

    I have my exchange, fat grafting, and port removal next Wednesday. It will be 7 weeks post chemo. The breast surgeon, oncologist, and plastic surgeon all prefer to wait 6 weeks after chemo. Throughout this entire process, I’ve been surprised at how doctors have such varying opinions on every step of the treatment

  • Scrafgal
    Scrafgal Member Posts: 631
    edited August 2018

    debAL


    My PS said the same thing...I didn't want any issues so I did it at Week 9 post chemo. FAC was rough on me. I wanted to be strong going in too. Infection risk is higher than average with exchange surgery...reversing gets messy.

  • Maggie2
    Maggie2 Member Posts: 247
    edited August 2018

    Scrafgal, my PS said mastectomy with expander placement has about a 10% infection rate, whereas the exchange surgery is about 1%. Again, different doctors and such different opinions. It has made each decision so stressful, not knowing if there is a definitive “right” answer

  • Scrafgal
    Scrafgal Member Posts: 631
    edited August 2018

    I was treated at a large cancer center where they see a population that might be more at risk given the treatments. Maybe my doctor's view was skewed because of what he sees a lot.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited August 2018

    Deb, I didn’t have drains, even with gummies. He said there was the smallest chance I could have them, but it wasn’t necessary. I only had drains in for 6 days with bmx. I too chose spring break for my ex. We get 2 weeks so I had plenty of time. Just like others said, no lifting, pulling, pushing etc for at least 2 weeks. I had some pocket work on one side but not too bad.

    Remember, “Just because you can doesn’t mean you should “. Be careful! You don’t want to disturb anything. Follow your doctor ‘s orders to the “T”. It is easy to do too much.

    I wore s soft front close bra, no underwire, 24/7 for a long time. It just felt better to keep them put.

    Take care,

    Robin


  • Maggie2
    Maggie2 Member Posts: 247
    edited August 2018

    DebAL, I believe that today is your exchange surgery. Wishing you all the best and an easy recovery. When you’re feeling up to it, please check in and give us an update. As I’m up next Wednesday, I’ll be interested to hear how you’re doing. Best wishes

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    Good morning! Exchange is over and feeling pretty good. Thanks Rachel, I need to look into a more supportive bra in the next few days. Never did find the "perfect" one even after my mastectomy. I love your quote about not doing just because we can. Everything went well. I believe I have a 450 high profile round mentor implants. I peeked briefly lol pretty bruised. My belly is REALLY bruised from the fat grafting but he warned me. Can't wait to see how it looks by the weekend lol. I look 4 months pregnant even with my spanx on. My surgery went 3 hours. Reason being I'm relatively thin and he mentioned its tedious work to lipo and collect the amount of filtered fat needed. He managed to get what he needed but I will count the holes and let u know! . I believe there is a suture in each one. Like others said I feel like I've been punched HARD. More of a soreness than pain and way easier than mastectomy in my opinion. Just walked a slow mile and a half around the block but it felt good. Plan on a few cat naps today. Not looking forward to 4 weeks of spanx in August. I got the ones for just the belly area. Maggie, Best wishes to you too!!

  • Debsmisto
    Debsmisto Member Posts: 171
    edited August 2018

    Ok question, why do they wait 8-12 weeks after last te fill to do exchange?

  • Scrafgal
    Scrafgal Member Posts: 631
    edited August 2018

    Sometimes, to give your skin time to adapt to the size of the fill volume...

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    agree with scrafgal. My PS waits 4-6 weeks from last fill.

  • ljm33
    ljm33 Member Posts: 46
    edited August 2018

    Mine waited 5 weeks which she acknowledged was quick but but she was changing practices and I was only filled to 330.

  • Maggie2
    Maggie2 Member Posts: 247
    edited August 2018

    DebAL, it’s great to hear from you so soon after your surgery! That was quite a walk you’ve already had, even with your swollen belly and spanx.

    Debsmisto, myPS also waits 4-6 weeks after the last fill, for the exact reason Scrafgal said.

  • Debsmisto
    Debsmisto Member Posts: 171
    edited August 2018

    I'm asking because my PS wants to do exchange right after my last fill, reason is their practice won't do radiation if you have te's in only after the exchange and I need to start my radiation asap but I have to have an axillary node surgery first, it's a mess.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited August 2018

    Debmisto - I had radiation with my TEs. Exchange was scheduled 6-9 months after radiation to allow skin to heal (it loses elasticity). What will your PS do if your radiated side shrinks/contracts or the implant moves (as it often does)? Would you have another surgery? I thought that part of the exchange to implants surgery included correcting unwanted affects of radiation.

    Lanne

  • star2017
    star2017 Member Posts: 827
    edited August 2018

    Debsmisto, My PS preferred doing the exchange before radiation as well, so I did my exchange four weeks after chemo and about 6 weeks after last fill. He said he prefers not to operate on radiated skin due to healing issues, so if I was able to delay starting radiation by a couple weeks, then he would rather do the exchange. I talked to my oncologists, and they felt the timing was fine, so that's what we did.

  • Skiboots42
    Skiboots42 Member Posts: 21
    edited August 2018

    I will be having my exchange in October. Reading most of the posts it seems most are getting fat grafting. Does that help with hiding the pec contacting with exercise

  • VegGal
    VegGal Member Posts: 507
    edited August 2018

    No, I don't think grafting will help that. It will help hide ripples and fill in the upper poles or other places that need more coverage. 

  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited August 2018

    Skiboots- if you are concerned about animation deformity (boobs looking weird during exercise), you may want to see if you’re a candidate for pre-pectoral reconstruction. In this type of reconstruction, the implants go on top of the chest muscle and the recovery is faster. It is often used in women who are very active.

  • SimoneRC
    SimoneRC Member Posts: 419
    edited August 2018

    Hi Skiboots!

    As ReadyAbout mentioned, prepec is a good solution for animation deformity if you are a good candidate. I had it done. My exchange from the tissue expanders to the implants was July 3. I have no animation deformity. I do not think fat grafting with sub pectoral would help with at all with animation deformity. Good luck!

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    agree with the above posts. I am 4 days out from fat grafting and exchange. I was told I would bruise a lot but talk about ALOT my belly is bruised all the way around. Ended up being 3 hour surgery. However he did warn me that as a runner and not having a whole lot of fat that it would take awhile. Swelling is down some. Now I actually like the feel of the spanx which I did not the first couple days.

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited August 2018

    Skiboots- I talked with two PSs at my Kaiser's Plastic Surgeon dept--one who only does pre-pec and the other who only (so far) does traditional. Both said that fat grafting will not fix animation. This is why I am strongly considering having my implants re-done. I have rippling, plus my right implant is moving over into my underarm, plus I have terrible animation. They both said pre-pec is the way to go. I wish I'd lived here (near my current Kaiser) when I had my exchange b/c I would've just done pre-pec. Now I need to have it done all over again b/c of the animation issue. Both PSs told me that a switch of my implants to pre-pec was the way to resolve it. Also, I don't have too much fat for grafting anyway.

    I agree with checking out the pre-pec thread-- you might find it helpful.


  • Jadalulu
    Jadalulu Member Posts: 57
    edited August 2018

    Just had my nipple reconstruction today and I am having a lot of pain with this. I feel like I’m having more pain than when I had my exchange surgery. Has anyone else had this experience? My doctor said I would not need pain meds but since the local wore off at about 2 pm (surgery was at 11am) I’ve taken 2 extra strength Tylenol, 1 extra strength Aleve and I just took 1 hydrocodone and it has not even taken the edge off?

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    minute, I'm sorry you may be looking at another surgery but you need to be happy. I can't imagine dealing with all that animation even when trying to open a jar. I'm 5 days out from pre pec exchange. Still bruised and swollen. I also don't have much fat to transfer but he needed some to target certain areas to get the best cosmetic outcome. As an active person I just couldn't go with subpec. Even if it's not perfect due to my "thinness" i will take function over look any day. Best of luck to you. So frustrating I'm sure

  • Leslienva
    Leslienva Member Posts: 489
    edited August 2018

    Jadalulu I didn't have any pain from my nipple recon because I don't have any feeling in my implants. It sounds like you might still have some feeling, which overall would be a good thing

  • Maggie2
    Maggie2 Member Posts: 247
    edited August 2018

    Two days ago, I just had my exchange surgery with fat grafting and chemo port removal.  I can echo what so many others have said about the surgery. The donor sites for the fat are much more uncomfortable, swollen, and bruised than the actual implant incisions.  I can't comment on nipple reconstruction and the associated pain with that procedure.

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    hang in there maggie! Rest and recover this weekend.

  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited August 2018

    Anyone told to stop Tamoxifen before exchange surgery? Mine is coming up and no doctor has told me to stop. But my PS office is very disorganized so this is a ball they would totally drop.

  • star2017
    star2017 Member Posts: 827
    edited August 2018

    ^ Yes, I've heard they tell you to take a break for a couple weeks, and then you restart a week or two after. My MO said he doesn't think there's any actual need for it, but surgeons usually prefer you stop.

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