Has anyone changed their mind after they had the implant?

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vlorsong
vlorsong Member Posts: 36
edited September 2018 in Breast Reconstruction

Ladies-

I am almost 6 months post implant surgery and am not totally convinced I made the right decision. I had a lumpectomy and radiation in 2006 and had a mastectomy, reduction on other breast, and TE in December 2017 for a new cancer. The implant surgery was in March of this year. There is considerable scarring from the previous procedure and radiation and the look and feel is not so hot. I wasn't expecting anything great, but I feel as if this implant is trying to exit my body via my armpit! My surgeon has assured me that the rippling and pulling from the scar can be relieved with another surgery. By the end of the each day I feel as if I am wearing a bra that is too tight and it feels awkward and uncomfortable. I am not convinced another surgery is going to help all that much and I am considering just having the implant removed.

Has anyone decided to remove the implant and do you think you made the right choice? I would welcome all and any comments or opinions.

Thanks!!

Comments

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited August 2018

    Vlorsong, are you considering going half flat?

    It's different from your situation, but I had my tissue expander removed due to a local recurrence. I'm half flat now. My TE was under my pectoral muscle, and while I didn't have any major pain/complications from the TE, I am much more comfortable now that it's out. There are some challenges that come with having one breast though. If you haven't already, you could check out the half flat thread. https://community.breastcancer.org/forum/82/topics/861492?page=4#idx_100

    There's also autologous breast reconstruction, which might eliminate some of the problems you're having from the implant. Hopefully others can chime in about that if you're interested.

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2018

    Hello V, I had a dear friend who was like yourself, uncomfortable and unsure about the implants...she had 2. She eventually gave up trying to get comfortable, and had them removed. She did not regret that decision. She loved being flat after being miserable. I have one implant, I lost the one on my affected side. It became incapsulated, painful. It is gone, I have one. I am good to go!

  • vlorsong
    vlorsong Member Posts: 36
    edited August 2018

    Thank you for the info. It's something I am definitely considering. I have a follow up appointment with the cosmetic surgeon next week so I will see what he has to say. He has been very good about listening to my concerns. It's not like I have to make a snap decision, so I will keep my mind open and see where we go.

  • vlorsong
    vlorsong Member Posts: 36
    edited August 2018

    Meadow-I think I am seriously considering having it removed. I just have a feeling that down the road it's going to give me trouble. I have an appointment with the cosmetic surgeon next week and I am going to see what his opinion is, but I know at the end of the day I have to be comfortable with my decision. Thank you for your response-it's exactly the kind of input I was looking for!

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2018

    So glad to help! Keep us posted.

  • Lula73
    Lula73 Member Posts: 1,824
    edited August 2018

    many women who have those same problems with implants choose to explain and do Natural tissue recon instead. Most if not all get relief with this strategy. Radiated tissue does not do well with implants and they can travel into the armpit, up in the collarbone area, down in the abdomen. Natural tissue recon uses your tummy or butt tissue to form a breast mound and you get a tummy tuck or butt lift too. If you had a skin or nipple sparing mx all the tissue would be transferred into the breast skin. The result is a breast that looks and feels like your natural one. I went with DIEP because the risk of traveling implants was too great. Love the results. Note that not all PSs are qualified to do natural tissue recon and only a PS who does them is qualified to tell you if you are or are not a candidate.

  • Mom-mom
    Mom-mom Member Posts: 44
    edited August 2018

    I had a unilateral MX last year —recurrence after lumpectomy with rads in 2008. TE then exchange surgery on June 25 of this year. I ended up with a bad post surgical infection — recently finished up 2 weeks of IV antibiotics— but seem to be okay now. However, like you , I’m not entirely happy with result. The look is okay, but skin and Foob feels tight and uncomfortable. Especially at night. And there is an area on my side (side boob area) that is numb after the exchange. Was not numb before.

    I didnt expect to be constantly aware of the presence of the Foob. Disconcerting.

    It’s early days for me still, since I’m not yet 2 months out from exchange and had the infection, so I need to give it more time, but I’d be interested in following your thoughts and decision.

    Good luck with whatever you decide.

    Peace to you and yours,

    M



  • vlorsong
    vlorsong Member Posts: 36
    edited August 2018

    Lula- I wasn't a candidate for DIEP. I am confidant and comfortable with my surgeon in that we went with the best option at the time for my situation. Like most situations; sometimes it works out and sometimes it doesn't. It's not like I have to make a decision tomorrow so I will continue on. Thank you for responding and sharing your experience!

  • vlorsong
    vlorsong Member Posts: 36
    edited August 2018

    Mom-mom; I thought I was crazy in that it felt more tight and uncomfortable at night! It definitely does! My side and foob are numb but I didn't have much sensation in that area prior to the most recent procedures so I don't fee like that is anything new. It's just uncomfortable and I have this niggling feeling that it is going to cause trouble down the road. I will see what the surgeon says this week and will go from there. I appreciate your response and sharing your story!

  • katiegrey
    katiegrey Member Posts: 79
    edited August 2018

    I have exactly the same feeling - like every day I'm wearing a bra that is too tight. I'm 4 years post-reconstruction and have often thought that my implants are too large and that maybe smaller ones might relieve the pressure. But here I am, 4 years later, wishing I had done it sooner. But I just feel like my body has been through enough, and I'm still not sure I'm up for another surgery. Also, I still feel numbness around both breasts that extends into my upper back.

  • Shades5blue
    Shades5blue Member Posts: 19
    edited August 2018

    HI, I am two months out from my reconstruction surgery. I had the air expanders that I could inflate with a remote. There was a huge miscomminucation and I am twice as big as I wanted to be. In fact, after the removal of my breast I felt more comfortable. The tightness is horrible. I am looking at changing the out the implants for smaller or maybe doing the flap surgery. I have time to research this time around because the cancer is not in my body! I just don't know how to go about looking for a surgeon that does all the techniques? I'm in the middle between Phoenix and San Diego. I have an appointment tomorrow with my PS and hope he will be open to my concerns. Any advice would be appreciated.


  • AliceKo
    AliceKo Member Posts: 151
    edited September 2018

    I am 9 months after implant exchange surgery. I am not comfortable. I feel the presence of the implant 24/7. I must wear some type of supportive bra 24/7 and sleep in it too, otherwise it is worse. It is especially heavy and tight in the morning and in the evening. I can't exercise my upper body, PT did not help me with pain. It's cold. It's hard to swim, open the heavy back door of my SUV, just a heavy door, carying a purse. I developed post mastectomy pain syndrome and went to pain clinic, dr said nothing will help me, but he was open to doing some things if I wanted. I did not. I wanted a dr who had hope for me. Did not even put a postmastectomy pain syndrome on my chart, I called and called about it. Nothing. At least a validation that this brilliant new treatment and amazing reconstruction has had a pretty debilitating side effect.

    Just feel disabled and sick. I am 42 and I was not sick prior to this. But! everytbody else is so glad I am doing "good" and they can see that because I look like nothing has happened to me (just my world crashed, nothing major). The implant is not for me, it is definitely doing wonders for strangers, for friends, for family members. I would like to have something for me.

    I had terrible time with expanders and I was told my PS and another PS that I will feel good with the permanent soft silicone implants. I was not a candidate for over the muscle placement, what they did with my skin, it was not going to be strong enough to support that type of implant. Implant was no my first choice, but the industry is swaying women more to implants, it's an easier surgery for them and for you and reimbursement is 300% vs much lower for autologous. I am still looking in autologous. I am concerned about heart damage during surgery and further brain damage, I got serious chemo brain. I just don't know that a PS is prepared to discuss things like that, vs specific plastic surgery outcomes.

    And just in case anyone is wondering, I am super greatful that my treatment has worked and my small kids have a mommy.


  • Shades5blue
    Shades5blue Member Posts: 19
    edited September 2018

    Your words ring so true for me also! I am grateful, but not happy? You are so right about other people not understanding.

    Just got my records in order to go see a new PS. I was devastated at how there were many things missing, it was misleading and felt like CYA. Made me very glad that I’m not going back.

    Please know you are not alone! This journey is difficult but we will both find pain relief and peace.

  • AliceKo
    AliceKo Member Posts: 151
    edited September 2018

    Shades: Thank you. I just want to heal and it seems that I am not healing with it.

    To those who have gone on with autologous, how many years did it takes from initial surgery to final nipple reconstruction and tattoo and your scars fading to white?. I am figuring it could easily be a few years.

  • Lula73
    Lula73 Member Posts: 1,824
    edited September 2018

    I did DIEP last Feb. You can do all stages in 1 year provided you don't have serious complications. My last surgery was Nov 2. Had my 1st yearly breast MRI post diagnosis on Tuesday and the tech said, “I just have to ask who did your reconstruction because I can't see any scars!" Some of the scarring depends on your skin and healing but a huge part of it is the surgeon. Choose wisely. Know that you'll likely need to travel for the surgery. Insist on seeing before and after photos of their personal work. Be sure to look at not just the breast but the abdominal/lower 1/2 of the body in the pics as well. If you wouldn't be thrilled to have the results you see, cross them off your list and move on to the next PS. You are worth finding the best PS for this surgery not just the first one you come across who has results you can live with. Note that TRAM and Lat Flap both use muscle that you need especially as you get older. Stick with muscle sparing options. I had mine at NOLA and would do it again in a heartbeat!

    www.breastcenter.com

  • Shades5blue
    Shades5blue Member Posts: 19
    edited September 2018

    Lula 💛 thank you! I’m trying to get in for several consultations in different cities. People think I’m crazy, but wanting to feel normal and mostly pain free is a huge motivator. Hearing your success stories gives me hope and encouragement.

  • Lula73
    Lula73 Member Posts: 1,824
    edited September 2018

    NOLA will do a consult over the phone and pics via email..

  • AliceKo
    AliceKo Member Posts: 151
    edited September 2018

    Lula, thank you for your response. So maybe in 1 year both stages. So then + 3 months for nipple reconstruction + 3-6 months for tattoo. I saw the NOLA website and it sounds good. The pictures from the DIEP after non nipple sparing mastectomy are not a pleasant sight. That would be my situation. That means lots scars for me, but it is so strange that I am seeking physical improvement from a plastic surgery and NOT the look.

    Lula, did anybody talk to you about heart damage and decline in cognitive functioning as the result of 5 hrs surgery

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