Radial scar and post sirgerybqiestions.
it’s been a whirlwind month. Ct found a nodilenon my breast. Ct was for kidney stones. Mammogram and ultrasoinda found a cyst and then an architectural distortion with spiculations. CNB was benign but he missed the exact spot. Needle loc biopsy last Thursday and results are radial scar. So questions.
1. I’m still exhausted lost sirgery.
2. I have sharp stabbing pains at incision site. Normal?
3 radial scar? Does it increase the likelihood of cancer
Comments
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Hi, I had a "radial scar" removed on June 12, 2018, two months ago. I still have pain at the incision site as well as below it and the surgical scar itself feels lumpy underneath where they put internal dissolving stitches. (2 inch incision above my left nipple). There is some increased risk of cancer in the future. They did not find any cancer cells in mine. There were some atypical cells. (atypical ductal hyperplasia). My doctor said it was "benign". He removed the whole area of concern which he said was the size of a grape. He is following up in 6 months with a mammogram and then with another MRI next year if the mammogram is okay.
I was tired for about 3 - 4 days after surgery, they gave me general anesthesia (I think they gave me the maximum amount). I only ate ice cream for the next 2 days, I had a sore throat from the tube down my throat. Reminded me of when I had my tonsils out. Drink water and eat lightly and you should regain your energy fast.
I recovered fine from the surgery, I still have anxiety about the future though. (My radial scar was found with a diagnostic mammogram, they saw the spiculation and architectural distortion). I had complained to my ob/gyn doctor about itchiness in my other (right) breast. That one has some benign cysts in it. They didn't biopsy the cysts though.
It's been a very stressful experience for me. I also have very bad lower back problems which affect my ability to walk. I think if I could go for long walks it would be helpful for my anxiety.
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well it sounds like our situations are similar. I hear you on the anxiety! I have rheumatoid arthritis as well so my health just sucks. Lol. I guess in my mind if we knownits a radial scar and there’s an increased risk then at least the drs are on the lookout and likely will catch it early. The cyst that started my whole journey wasn’t even biopsied. They are also watching it but he wasn’t super concerned.
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Had removal of radial scar which was actually ADH. Breast surgeon wants me to be on Tamoxifen for 5 years...I'm getting a second opinion on this: I'm BRCA 1&2 negative, no fam hx of, however, DO have dense breasts, DID have first period before age 12 (11.5), DID have first child after age 30(31).... anyway this BC surgeon not Oncologist but very good surgeon, however, with an issue such as this, I want an Oncologist's input!
As far as excision experience, not great but probably typical... a lot of purple bruising on bottom and side of breast, yellow top of breast, fair amount of swelling and now 11 days later have several quarter sized lumps on opposite side of incision which surgeon said 'may be giant hematomas she may have to remove.' Incision site fine and never much drainage. Always used ice or heat not as much now.
In meantime had to have wide excision on right lower leg to remove melanoma stage 0. Not a great couple of weeks. Know can always be worse though. Trying to be as positive as possible
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Sorry I’m not clear on this: did they remove radial scar? If so did get biopsy results back yet? I too had stereotactic biopsy with titanium clip placement. Rad felt inconsistent with image on mamm( ultrasound showed nothing?)... BC surgeon removed all as said could be hiding cancer or turn into so she acts aggressively. So I had the excision and though benign have ADH, which doubles my risk of breast cancer. As mentioned below breast surgeon wants me on Tamoxifen x 5 years. I am seeking second opinion with Breast Oncologist because feel I should for the unspoken message: ‘you don’t have breast cancer but let’s remove and treat you as if you do by taking tamoxifen as well as yearly mamm and MRI’s.’ Very confusing and anxiety-provoking.
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Hi Kimc319 -
My breast surgeon did not say having ADH doubles the risk of bc. He said my risk was 1% higher than before. (Which I found hard to believe, only 1% higher than the average woman is how I think he phrased it.) My doctor was once the head of breast surgery at MSK. I don't know why he said my risk was only 1% higher than the avg woman.
Now I know if I tell my husband we should get a second opinion on this he is going to say I'm obsessive compulsive or paranoid.
I feel like I'm going to end up getting it eventually...I'm 58, my mother is 81. If my life expectancy is roughly another 20 years that is 20 years to develop bc. Maybe I'll luck out and have a M.I. like my dad....
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Jenn, I responded to you on your other thread, but I just want to clarify future BC risk for ADH. I think you may have misunderstood- it is not that with ADH our risk is 1% higher than the average woman, it is that our risk climbs 1% each year. It is cumulative from diagnosis. My risk was estimated to be somewhere in the 25% range (lifetime). I will try to dig up a citation for this.
As far as a second opinion is concerned, I think this is always a good idea. I got a total of 3. Particularly with ADH, the dx can be somewhat blurry/subjective on the part of the pathologist. ADH and DCIS histology run along a continuum and the difference is not always very clear cut
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Momtomy5 -
Well other than the bad back and now the breast problems my health isn't that bad, at least I don't have diabetes or heart issues, although I might end up with those soon due to the lack of exercise. I did have an EKG pre surgery and there was something about my "c" wave the doctors at the hospital were discussing. Unfortunately they had given me 300 mg of Gabapentin (I swear I hate that stuff) before the surgery to 'calm me down' their words, not mine. The pill made me stupid. I never took it when my neurologist gave it to me because it gave me major brain fog. So I was unsure what they were talking about. I should go back to the cardiologist and ask him what is up with my c wave on the EKG he took....I can't stand him though. He's a braggart, he brags about his houses and material possessions and is generally obnoxious. His wife is a spendthrift and he cheated on her so he lets her spend his money like a drunken sailor so she doesn't file for divorce....they're two very shallow people. With my luck I had a silent heart attack or something.
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Momoschki -
I'm not sure I understand the risk factor. So if the average woman's risk is 12% then my risk is now 13% but it goes up 1% a year? Math is not my best subject...so then in 10 years my risk would be 22% ??? I do know that I have fibrocystic breasts. The right one has cysts in it and ectasia but I haven't noticed any discharge. That was according to the MRI with contrast I had. My right breast does feel itchy on the inside at times. I don't know why, the breast surgeon said it was fine when I asked him about it and he was only in the room for about 6 minutes. He was in a big rush.
About the ADH to dcis continuum, does this mean that ADH would turn into dcis if left untreated...that is concerning. My doctor was very cavalier about this situation, he was like "well it's all gone now, don't worry about it." I felt as though he was white washing the whole situation. Maybe he thought it would make me anxious if he told me all of the details. Plus my husband was sitting there, maybe he thought it would upset my husband. Who knows. Then in the back of my mind I keep thinking what if they missed something in the biopsy. Does that ever happen? I think it could happen and with my anxiety issues I tend to ruminate about this kind of thing. But he was very firm or confident when he said there was no dcis and it was all benign....
I just got off the phone with my mother, she has crohn's disease, it came on late in life. Just got bad over the past 3-4 years and she is going nuts about her symptoms. I can't do much to help her. She keeps going from one doctor to another. I hope I don't get that too. They told her for years that she had irritable bowel disease from all of the colonoscopies she had to try to diagnose her symptoms over the years, now they finally have diagnosed her with crohn's disease.
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yes radial scar removed. He called and said benign but I meet back for post surgery follow up and I hope to get more details. My understanding is that the finding of the radial scar increases the likelihood of cancer at some point?
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momtomy5 -
My doctor called me on the phone after my surgery and told me that the pathology report said it was "complete benign". I told him that was great news and said I would be in to see him the following week for my follow up exam.
At the follow up he mentioned the atypical duct hyperplasia. Yes, that is a benign condition. But the cells have changed from what I understand. He also said that there was no dcis, ductal carcinoma in situ - no "upgrade". No further treatment necessary.
The removal of the whole area which included the radial scar was the treatment according to him. The plan is to monitor closely, do a mammogram in 6 months and then do another MRI in the future and pray nothing else develops.
It seems to me that the equipment for detection has increased a lot over the last 30 years but they have yet to figure out what causes it and how to stop it from happening with some kind of vaccine or immunotherapy or something like that. Idk, I'm not a scientist.
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So I was thinking about when I had a large teratoma (ovarian dermoid cyst) in 1979 removed with open surgery. After I healed I tried to put that operation out of my head. I had a baby in 1993, got pregnant with no problems, etc. The dermoid cells were abnormal, I know it's not the same as ADH. I later had a second dermoid removed from my other ovary in 2011, that was 32 years later. It was found at a much smaller size. Had it removed laproscopically. The doctor had sent me for an MRI with contrast and did a CA125 test to try to find out if there were cancer cells involved. He then removed it surgically. It was benign, there was hair and teeth in it. I still have part of that ovary left. I was going through menopause at that point. Every year I go back and have another transvaginal ultrasound but I try not to stress about it too much. In 1979 the general surgeon was freaking out thinking I had cancer. There were no MRI machines back then or CA125 tests, they had just invented the ultrasound machine. I had an ultrasound in the hospital, they made a big deal. about the new technology. They also gave me iodine contrast and took xrays, there was no CT scan machine at the hospital like you see nowadays.
I just want to stop thinking about this for a few months. I have serious back problems. I just want to walk again. My husband wants to look into me having back surgery. Idk, I look at Tiger Woods, he had 4 operations and is playing golf again. I just want to go on a vacation or go for a long walk.
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