Excision of abnormal breast tissue

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Anonymous
Anonymous Member Posts: 1,376
edited August 2018 in Waiting for Test Results
Excision of abnormal breast tissue

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  • Kimc319
    Kimc319 Member Posts: 12
    edited August 2018

    Hello. I'm 50 y.o. Been having neg mammograms since age 40. No fam he of breast cancer. Well one month ago at yearly got call-back—I had crap mammogram of left breast with nothing being visible on ultrasound. Stereotactic Biopsy showed probable benign tissue or Radial Scar. Was advised to remove tissue as may be hiding cancer or turn into cancer. Had SAVI-clip placement prior to surgery to show precise location of mass. Has anyone else here have this diagnosis? At moment, I have a sore, quite swollen, very bruised breast left) breast with approx 2 inch incision. Feeling miserable. Advice if have had this please

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2018

    Kim, use the search function-there are lots and lots of threads on radial scar a/k/a complex sclerosing lesion. I believe there is about a 10-20% chance of having an "upgraded" diagnosis with your surgical biopsy. The surgical biopsy was actually easier than the core biopsy for me. Hang in there.

  • Kimc319
    Kimc319 Member Posts: 12
    edited August 2018

    Thank you will do! Still learning to navigate this site just new today

  • 88tina88
    88tina88 Member Posts: 12
    edited August 2018

    I have a radial scar too. Myexcisional biopsy is Monday. I had a rough time after the stereotactic biopsy, I attract uncommon complications... this one has got to be better! Did you get results yet?

  • Kimc319
    Kimc319 Member Posts: 12
    edited August 2018

    Good luck to you Monday! I had a benign lesion called Atypical Ductal Hyperplasia. Good news is no cancer! Not so good news, because of ADH finding my BS recommends Tamoxifen for five years to reduce my risk of breast cancer to < 10%. Well, I caught my Internist up on all of this and she would like for me to get a second opinion just because it is my health! So I see an Oncologist this Thurs because my internist said Dr... a great surgeon but may not be up involved the latest treatments for such. I will let you know!

    Words of advice before your excision: wear comfy sports bra! You will never be so glad to wear a bra 24/7 x 2 weeks! Using ice helped me to need less pain med. Heat about 5 days later felt nice for me too! Don’t overdo it! Also your breast will more than likely be very bruised like dark purple underneath and side to yellow on top depending where your incision is. May feel lumpy also as fluid moves around. Just FYI as I was no i was warned at all about this! Prayers for you

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited August 2018

    Kimc319 -


    I just noticed your post. I had a radial scar and some atypical cells were found (atypical ductal hyperplasia). I am 58 y.o. though. I asked my breast surgeon do I need to be on hormone therapy and he says no. He says it has too many side effects. I have read up on it though and am not sure. Of course I don't want to take that medication (Tamoxifen) as it can cause uterine cancer and eye problems. My sister died of a form of uterine cancer (uterine leiomyosarcoma) at the age of 40, they have no idea what caused it. I also have a bad back (lumbar spine). I had an epidural steroid injection into my lumbar spine last summer (Kenalog 40) a steroid and 10 days later I had abnormal bleeding after being menopausal for over 4 years. The shots are known to cause abnormal bleeding in premenopausal and in postmenopausal women. I had to go to get a trans-vaginal ultrasound to check my uterine lining as my doctor freaked out when I called the office. So I no longer will get those shots, the one I had didn't help anyway. (My uterine lining was fine and the bleeding stopped after about a week). My last gyn exam was fine in March. But it makes me think that my uterine lining is sensitive to certain medications...who knows?

    I keep worrying about whether I should be on a medication though. I have to go back for another mammogram in 4-5 months. My mom is 81 years old and she never had a bad mammogram, she just had one 2 months ago. They told her everything was fine. She had no living sisters (one died at birth). My father's sisters never had bc, one of his sisters is still living and is about 88 years old. His other sister died of kidney cancer in her 80's. My dad died of a heart attack young. This is really stressing me out wondering about these hormone therapy medications though. I also read the A.I. hormone therapy causes joint pain....I already have severe arthritis in my lumbar spine with bone spurs (osteophytes).


    p.s. I also had the "savi-scout" put in the week before surgery, they injected it with a big needle. My breast was sore afterwards. They removed it during the lumpectomy. I read it in my surgical pathology report. (I asked for the report before my doctor ran out the door). Doctors today don't spend much time with you from what I notice. (I also recorded the convo on my phone because he talks so fast and then runs out the door). Wanted to make sure I got all of the information down and wasn't about to start taking notes. They also made a mistake on my MRI report, I told the doctor about it and he said he would have if fixed but I bet it's still on there. The place is like an assembly line.

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited August 2018

    88tina88 -

    I had a radial scar removed in June, it was benign. I did have atypical cells though unfortunately. Hoping you have good news...


  • momoschki
    momoschki Member Posts: 682
    edited August 2018

    Jenn, I was dx’ed with ADH over 7 years ago at 53. I was perimenopausal at the time and turned down tamoxifen as I had had some prior endometrial hyperplasia. I waited until I was fully menopausal and then started taking Evista (also a SERM) which does not impact the uterus. In November it will be 4 years and no significant sideeffects. I do have some insomnia and hot flashes, but I had those before. You might want to ask if this is an option for you.

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited August 2018

    Thanks, momoschki.

    Do you notice any joint pain or back pain? I have severe spinal stenosis in my lumbar spine. I have to use a cane to walk with (or hold on to a shopping cart in stores) because the nerves in my lower back are compressed and it has affected my foot strength. I have trouble walking. This condition came on very suddenly when I was 50 years old and messed up my life. I have friends who have had back surgery and they complain about the results so I never rushed to have back surgery. It's one thing after another...

    I also had an ovarian dermoid cyst removed when I turned 50 when I went to the ob/gyn he found it while doing an ultrasound. Luckily it was benign. I also had a much larger dermoid removed from the other ovary, along with the ovary when I was a teenager. I'm still having hot flashes since I went through menopause and I also have nerve pain from my back issues. I actually thought that the nerve pain was hot flashes as I had never had a hot flash till I turned 50. I also get nerve pain in my face, why I have no idea. Maybe fibromyalgia or something. I also have some kind of internal tremors which comes and goes, the neurologist doesn't know why. She gave me some gabapentin but I didn't want to take that stuff it makes me feel dopey.


    update: I looked it up and unfortunately it can cause blood clots. I had a DVT when I was pregnant 26 years ago...I don't know if they would give me that drug. I never took birth control pills before or after I got pregnant and my doctor never gave me HRT due to my blood clot risks. So I don't know...(my first ob/gyn misdiagnosed the DVT it could have killed me, I went for a second opinion at the time and they sent me for a ultrasound). Put me in the hospital immediately on Heparin on an IV.

    https://www.breastcancer.org/treatment/hormonal/serms/evista

  • Kimc319
    Kimc319 Member Posts: 12
    edited August 2018

    Jenn,


    So sorry for your and your family’s experiences! I’m getting second opinion by actual breast Oncologist tomorrow as I’ve seen only breast suergeon who is also a general surgeon but does NOT specialize in Oncology: tbh whole thing happened so fast and I was so scared I just wanted to get ‘whatever’ out of my body! Had no idea if benign would be recommended to take Tamoxifen! While I ‘could’ lessen my chance of BC to < 10% x 15 year protection hopefully but also has some nasty side effects. I’m scared not to take it and scared to take it.

  • momoschki
    momoschki Member Posts: 682
    edited August 2018

    Nope, no joint or back pain with the Evista. You are right, however, about the blood clot risk. I hope you find a viable option. It does give me some peace of mind to know there’s something I can take to lessen my risk

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited August 2018

    momoschki -

    I think that they all have blood clot risks. Not sure. That is a big problem for me unfortunately.

    I developed a DVT in the 7th week of my pregnancy. They later did all kinds of blood tests and could not figure out why it happened.

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