Advice on telling family
I am really wanting some advice on telling my family. I am single, so no significant other. So here is my story.... I am going for a core needle biopsy Thursday. My mammogram and ultrasound report left me with a BIRAD score of 5. I am super anxious about telling my family. I only told anybody the day I read my report, and that was a close trusted friend. My initial thought was to wait until biopsy report, but I will be going to work Saturday after the biopsy with lifting restrictions. I work in an ER so pretty much all of my coworkers will need to know I am on lifting restrictions. I just feel like it will be too stressful to try and be evasive about WHY I have lifting restrictions. So that leads me to thinking I need to tell my family about it on Friday after the biopsy. I do not want them finding out by someone I work with asking them how I am doing (it is a small community) I was just trying to delay their worry until I had all the answers. So here are my questions since I am rambling......
1. Is it ok to tell them over the phone? Is that selfish of me?
2. Would it be ok to just send the info by text to friends?
3. How to deal with the guilt I have for having to tell them this at all.
4. If there is a freaking manual for how to do this I need it
Thanks again for listening. I am thankful to have found this forum.
Comments
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you tell them how, Where and when, and especially WHEN you feel comfortable. This is up to you. I was obviously in your shoes once. I told my family... some in person, some over the phone. There's no right or wrong way. There will be no easy way but it has to happen. Don't feel guilty.. this was not your fault. Will they be upset? Of course, because they love you. But believe me, you will need to lean on them. So, IMO, I say the quicker they know, the better. Best of luck to you. Will be thinking of you.
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Could you call in sick? That's what I did the day of my biopsy and the day after. I didn't want to tell anyone other than my husband until I had the full diagnosis. But Robin is right, it's really up to you and what makes you most comfortable. I did end up telling some people via text because it was just too hard to talk about it at first but it gets easier. Best of luck to you.
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So sorry you're going through this. I was only diagnosed a month ago myself. I absolutely agree it is up to you how and when. I haven't told many people yet, but for family and those closest to me I told some people via text, some on Skype and some in person. I also really liked the advice I read here about letting others do the work of telling for you. I had my partner tell my MIL, and while it was not the plan, I ended up being quite glad my older daughter told a few school friends who told their mothers -- they have been my biggest support so far!
Best of luck to you!
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Agh this is the toughest part. I can't really tell you how to tell your friends and family but I can tell you how I told them. Maybe that will help?
I'm 32, single with stage 1 IDC. I was officially diagnosed a month ago but I had been waiting to get a biopsy for months. When my MRI showed the mass I only told a couple of my friends. I'm a nurse and so are most of my friends so it was easy talking to them and asking for advise before my diagnosis. I didn't want to tell my family until the results came back.
After I got my official diagnosis I told my mom and it was the hardest thing. My mom is in the medical field as well and her first reaction was to take me to all the oncologists she knows (she knew quiet a few of them). As annoying as that was I knew it was her way of coping and I wanted her to feel like she did everything in her power to help. She still will call me every day and tell of a new treatment she heard about or a new diet. I just listen since I know she's really scared.
I let my mom tell my dad and of course they were heartbroken. I've lost my aunt to breast cancer a few years back so this is terrifying for them.
I'm a very private person and only share my personal problems with very few people. After my diagnosis I would come home from work and just stay in. I stopped seeing my friends, going out and even texting anyone. After two weeks I realized that’s not healthy and I started telling one person at a time. It was the best decision I made. It feels so much better talking to people. I'm still breaking the news to some of my friends and still haven't gotten the heart to tell my sister (she's very fragile and lives far so I don't want to worry her yet).
Anyway, however you tell them it's going to be tough but after you're done with it, you can move past it and start caring for yourself.
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Don't tell anyone until you know what you are a facing. The staging, if positive, could help you tell them. Only my family and a couple of close friends know. Millions of women undergo treatment for this condition and do just fine. You might worry your family needlessly, and yourself too.
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I told my family & friends I was going for diagnostic mammogram and then later for biopsy. I was just matter of fact about it. I told some people over the phone, some people in person, some by text/email - just whatever way it came up. I found during the testing & biopsy stage, most people weren't that nosy or concerned. Lots of people get call backs and need further tests etc and I didn't say what they were looking at specifically - just that there was a mass and they're trying to diagnose it.
Once diagnosed, I told people quickly - again whichever way was more convenient, and i also told people they were free to tell other friends & more distant relatives. My only caveat was that I didn't want phone calls and I didn't want visitors. And I only answered texts and emails when I felt like it.
I didn't see the point of keeping it secret & even during the testing stage, I appreciated the friends who were supportive, encouraging and hopeful. No reason to stress alone about it if you have kind friends who can help with emotional support. -
I think a lot is in how you present it. At this point you don't know anything for sure, right? I'm big on, "Oh I just have a little breast thing going on." If you don't make telling them a big deal, it won't be to them.
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No matter the results, it will feel good to tell someone before. You’ll want to celebrate if its benign and not having anyone know how relieved you would be would be kind of a let down (same idea with a new job, if no one knows how bad you want it, they aren’t gonna pop confetti for you when you find out —- sorry if that’s random, it’s in a book I’m reading about vulnerability and authentic relationships). Same for not great results. You can at least call and just start crying if they know you’re waiting for possible bad news without needing explain much.
Having a point person was great. My mom handled all my family knowing, only a few knew right away that I was having lots of appts to figure out medical stuff but once I had a plans/surgery date she went ahead and sent an email with my address if anyone wanted to send a card but that I may not be up to visiting about it.
People I saw more often I told. I wasn’t broadcasting it but not keeping a secret either so they didn’t need to feel bad if anyone else brought it up. I did tell some friends via text or email starting with “this really sucks to tell you this way, saying this out loud is hard to do right now but wanted you to hear from me ....”
And for work/lifting restrictions, you can just leave it as a medical issue. I’d hope most people will understand you didn’t offer more info because that’s all you wanted to say. If they are concerned or dense enough to probe, you can judge if the moment is one to share or leave it as “I don’t have enough answer so for myself yet to share
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Thank you all SO VERY MUCH. These suggestions have been a tremendous help for me. I really appreciate everyone who took the time to respond! I am still trying to hold onto hope for good results, and mountainmomma you made a great point about that! And same for not so great results, it would definitely be harder to start from the beginning at that point. I value all of these suggestions and it has eased my mind about how to handle this part of a crappy waiting game I am in! I think I needed to feel I had "permission" to do what felt right for me, I am not always good at that.
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The waiting part is rough. My biopsy was surgical and I had to wait 2.5 weeks for my results because they got another opinion on them. I’m not sure if a core biopsy is tested different, or may depend on your local facilities, but there’s probably a little more waiting ahead

At that point for me if it was bad news I just needed to know what the plans were to fix it (which I’ve since learned varies soooo much for everyone, so even that isn’t an immediate decision but you at least start in a direction other than unknown).
Your body and mind will figure out a way to armor yourself while you wait so don’t think too much. It’s also okay to check out a bit and Netflix a series with 76 episodes in 2 weeks

Hugs to you, keep us posted
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I live alone and did the whole thing by myself. Didn't tell family because they are high strung anxieties and know it alls. 3 years later and reading how it can go here, I plan on keeping quiet for my mental health. No kids, no so, no obligations.
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Well I got telling my family and a couple friends out of the way regarding my testing process. I do feel better telling them in a way but I got some reactions I wasn't expecting. One friend sent me a link to a video on a diet that cures cancer! Most said just focus on the 5% it can still be benign. I get that they are trying to be positive and I swing from one end of the hopeful spectrum to the other dismal end. I am frankly terrified at some points. I really needed someone to say "that sound f-*** scary, how are you holding up" It made me think for a second I was being overly dramatic, but holy crap BIRADS 5 reading really does seem legitimately scary. I appreciate everyone on here that takes the time to read this. I had my core needle biopsy Thursday and they said the results will probably be in Monday.
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Interesting the comment about sharing for both good and bad. I felt exactly that way when I had a miscarriage. I had been waiting until 10 weeks to share "just in case" and that's when it happened. So almost no one got to celebrate with me - they just heard the bad and I had to tell them.
You will find a lot of not so great responses from lots of people. Some mean well, some just don't know what to say, some are helping themselves by staying positive. I sometimes feel that the people on this site are the only ones that really get it. We know what it's like to have hope one minute and the next be planning a funeral.
Hang in there. We're all pulling for you. And we'll celebrate if it's good news and try to help if it's not.
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I just got the call, they stated "they did find cancer cells" and they set up an appointment for tomorrow with a breast surgeon. They said they are doing more stains of the tissue and will have more detailed results then.
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I'm sorry you got the sucky news

Glad you're seeing the surgeon tomorrow. It gets better once you have a treatment plan.
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Dani444 - so very sorry you got the news nobody wants. As moth said above, it gets easier when you know
what you are deaing with and when you have a plan in place.
I find there are two kinds of cancer patients - ones that tell everyone, and other ones that are really private and
don't want to tell anyone anything. It is totally up to you. Whatever makes you feel most comfortable.
I was single and got through it.
Some women start a private Facebook page only including friends or family that they want to give updates to...
that works for many as it gets too tiring to tell a broad range of people.
All my best wishes to you! You can and will get through this!
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Moth and Denise-G, Thank you for responding and for the support.
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Sorry to hear the diagnosis. I hope the visit goes well and you're able to get the information you need to make the best decisions for yourself.
I found that getting second opinions for practically everything helped to answer my questions and make me feel more confident in my decisions.
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I can't tell all family members they are neg and use this to try and control me and my life but there may be some I can tell and they support and help me go through the battle anyways I only seek God 1st and hopefully being connected to you all is my comfort my daughter is so out of control with my diagnosed that she trys to tell the Drs what to do for me I just get tried of her anyone no how to reply to this please do so
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I can't tell all family members they are neg and use this to try and control me and my life but there may be some I can tell and they support and help me go through the battle anyways I only seek God 1st and hopefully being connected to you all is my comfort
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I agree Because we need to learn how to cope with all this ourselves then tell a few who encourage support and love you
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Johned9:
You might just have to tell your daughter to back off even though she is well intentioned. I had to tell my sisters that to some extent. They had decided where I was going to have my treatment before I had a chance to think about it and were pressing me for a confirmation. Meanwhile my father was insisting I not go to the place my sisters wanted me to go because the hospital associated with that facility made a mistake that resulted in the death of a family member.
The only people who could give me concrete compelling reasons as to where to go were the doctors.
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