Just diagnosed - Can’t. Stop. Crying. (41yo)

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Sadlynew2018
Sadlynew2018 Member Posts: 222
edited September 2018 in Just Diagnosed

So here I am. I'm 41 yo wife and mom. And my world just crashed around me. My mom had breast cancer so for the last few years, I have yearly mammos. Earlier this year, I felt a node under my aerola. Gyn said it looks like fatty tissue. Mammo came back clear. Got the node out 2 weeks ago. Path report came back - positive. IDC , ER+ Grade 2. The tissue removed was 1.7 cm. I'm waiting on the size and whther its HER2 positive? Saw the oncologist immediately (last week). They drew blood for genetic testing? I am meeting with the plastic surgeon, medical oncologist and a follow up with my surgical oncologist this week. Also have a breast MRI scheduled for Friday. I'm so very scared, confused and just shattered. They planned surgery for the end of this month although we won't know what kind it will be. This is all happening so fast.

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Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited August 2018

    I'm so sorry you are joining our little club, but glad you found us. All of those tests and appointments sound right if that's any consolation. My best advice is to be sure you have an oncologist who you can talk openly with and trust. All of your feelings are normal, so come here to vent anytime.

  • Whateverittakes
    Whateverittakes Member Posts: 43
    edited August 2018

    Im sorry you have joined us, but glad you found us. I'm only 31 found out in March everything seem to to so slow then so fast. It's ok to cry, make sure you feel comfortable with your team. And please join us to talk or vent any time. Mostly all of us have been in your shoes. I wish you well wishes & calmness. Best wishes SA (it's the scariest until you know what kind, what surgery, all the details & have a plan is what I've learned). I also suffered from anxiety so bad I went to the doctor & they gave me meds to help with it.

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited August 2018

    Being diagnosed is a complete and total shock to the entire system. I am so sorry that you are here but sounds like the docs are doing all the right things.

    Hang in there, breathe, cry, spend time with your loved ones and get some fresh air, take walks. It is a process and you do not have to make any major decisions today. You have the right to take a little time to decide what you need.

    I immediately started seeing a therapist that specializes in people with cancer diagnoses. I was going to twice a week to get through the early days. It really helped me.

    Sending a big hug your way!

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    wow, thank you everyone. I can't tell you how wonderful it is to hear from others who know EXACTLY what it's like. The waiting is awful. As long as I'm staying busy, I'm ok. But once the busy stops, it's agonizing pain. The worst part is waking up in the middle of the night when, for just a short second, you forget about it all. Then you remember. My eyes have been swollen from crying for almost a week. Thanks to everyone for the warm welcome. Sending big hugs to all affected by this terrible disease.

  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited August 2018

    sadly did your doctor offer you anything to help ease your anxiety? I was given ativan and it helped while I was waiting to get my treatment plan in place...hugs!

  • Angtee15
    Angtee15 Member Posts: 209
    edited August 2018

    Oh Sadly, big big hug for you. It will get better! And I second Tresjoli's mention about getting something to help you through this part. I used xanax. Even shared a few with my fiance (now husband) lol!

  • tsoebbin
    tsoebbin Member Posts: 474
    edited August 2018

    This part is SO Hard! I hope you get the medical team together soon and your plan in place. The tears are so natural and healthy. I cried every night and slowly I felt stronger.

    Hugs to you.

  • Kiso20
    Kiso20 Member Posts: 31
    edited August 2018

    Sadly I was diagnosed a month ago and I can tell you I didn’t stop crying the first few weeks. I’d get in the car to drive to work and I’d just keep driving because I couldn’t stop crying. It really was agonizing but it gets better, I even manage to make jokes now.

    I agree that the medical team is very important. Most of my anxiety was coming from the fact that I didn’t have a way of contacting my medical team to get my questions answered. I was finally connected with a social worker who told me about all the resources available to BC patients. Let me know if you have any questions.

    Think positive! It gets easier.

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited August 2018

    Sadly - I'm new to this whole whirlwind too and your age. :( You're not alone.

    I'm sorry you're here but all of the appts/tests/scans you have going on sound like an echo of the ones I just finished up last week.

    I will have my Lumpectomy on 8-30. Up until yesterday I had no idea whether I would have a to have a bi lat mast or a lump. The not knowing and the waiting is the hardest part like others have said. I felt so much relief just knowing the results of my BRCA panel and knowing I could safely choose my surgery at this point. I do feel better that there is a plan of surgery but it's all so scary.

    Come here and vent whenever you need. I do hope your team will give you something to help calm your nerves a bit while you are waiting. We're here for you! Hang in there.


    (((((Sadly)))))

  • Careninnj
    Careninnj Member Posts: 53
    edited August 2018

    welcome to the group. It sucks. But there are thousands of us going thru the exact same thing. Im 43. Diagnosed with IDC in june. Im brca2+. I lost my mom to breast cancer over 20 years ago,so it was always in my mind it would get me one day too. Im having my surgery TOMORROW. Im nervous. Sad. Scared. Everything, but i have 2 kids and a husband that makes all this shit seem doable. We are all here for you.

  • DebAL
    DebAL Member Posts: 877
    edited August 2018

    caren, hang in there. You will get through this. I had BMX with TEs. Just had my exchange last week. I know how scared and sad you are. I will be thinking about you and please lean on all of us for support. Hugs

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    Caren, thank you for your kind words. My husband has been amazing but I’m Day 6 post - diagnosis and am getting mad? Is that normal?

    But more importantly, tomorrow is your day. It’s going to go just fine. I’ve only been a member of this site for a few days but it’s helped me so much and will you too. I will say a big prayer for you. Big hugs headed your way.

  • Snickersmom
    Snickersmom Member Posts: 926
    edited August 2018

    Caren - hang in there, girl. We've all got your back and you are going to come through your surgery with flying colors. You will be amazed at the amount of strength you have deep inside. Lean on your family and your friends for support, too. You're going to be fine.

    I'll be saying a prayer for you and in the meantime, here's a huge cyberhug from Florida.

    Ann

  • Snickersmom
    Snickersmom Member Posts: 926
    edited August 2018

    Sadly - yes, I think it's pretty normal to be mad. I had a BMX last year and have been on Zoloft ever since to keep myself on an even keel. I also am seeing a therapist, since I apparently have not really come to terms with this whole thing. She said that we all suffer from PTSD in one form or another. I know I am angry and still have not grieved, but I'm trying to let it out. It's hard, so don't think you are alone!!

    We are all here for you. You can say anything, rant and rave, etc. We have all been there and we know exactly what you are going through.

    You will draw deep inside for strength and come through this just fine. Just take it one step at a time.

    Sending big hugs and encouragement,

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited August 2018

    Sadlynew, I'm approaching 1 year anniversary of my DX. I was 40, no family history. I had genetic testing and have no mutations. They did Invitae 42 genes (I saw this is what they did for you), and since no mutations were found there, I could expand to 90+ panel, and also my counselor was able to customize it for me - we added a few melanoma genes, because even though I have no BC family history, my father had melanoma twice.

    Anyway, what I wanted to tell you is that things do get easier. First few weeks are pure hell, though. I remember I would wake up every day, and as soon as I remembered what was going on, I would start crying. I would walk around like zombie and mumble "I can get through it" like a mantra. It actually helps, because saying things helps keep your mind occupied. Prayer helps too.

    I got Ativan (lorazepam) prescription filled the day of my biopsy, and took my first pill the day I was supposed to hear results. I used Ativan a fair bit during the first month or so, until we had more information and my treatments started. Then I felt more in control and didn't need it as much. But it saved my and my hubby's sanity.

    MRI is a good idea - my DCIS on my "good" side was found via MRI, which solidified my decision for BMX. Not saying it will happen to you, I hope not, but we are young, our breasts are dense, so my Grade 1 DCIS wasn't seen on mammo, only on MRI. I remember when they told me I have DCIS on another side, in addition to invasive cancer, I got so angry!

    I had chemo first, so in a way, I had more time to process before surgery happened. It may very well be that you won't need chemo, just wait and see what the results show. I also saw therapist and a host of alternative treatment providers. It helped. I developed some techniques of dealing with this s..t. None of us has it all together at all times, but you are in the worst part of it, and it will get better. Hugs.

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    just met with the medical onc. She said I’m ER+ and Prog +. They are waiting on the “FISH” test results on the HER2. Surgery scheduled end of this month. I’ve decided on a bilateral mx. I asked them whether I would need chemo and there were so many unknowns. IF my HER2 are negative and IF my nodes are negative and IF my oncotype score is low. Ugh. This time period of waiting is agonizing. My sweet husband is only trying to help and now I’m just mad at the world. I think if I can get past the surgery, maybe I’ll feel like I’m moving in a direction. I’m 6 days post diagnosis and can’t tell you what I ate yesterday because I’m in complete shock. Sorry for venting. This is my one “out” , sharing with those who understand. This. Is. So. Tough.
  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited August 2018

    Big hugs to you. What you say about chemo decision sounds right.

    Even thought you've decided on BMX, I would still push for MRI, I hope it is not off the table. It will give your surgeon a much better picture of what you are dealing with.

    You will find that sharing with those who understand really really helps. Friends and family will try to be helpful, but they often don't know what to say or ask. For me, the world is now divided in those who understand, and those who are sympathetic.

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    farawaytoo, you are so right. I truly find that talking to people who understand (everyone on here) is so therapeutic. The sympathy wears me down. I know my husband is trying so hard - I think he's still in denial. He treats me so delicately and I can handle that from him. But not sure about from the “others". Ugh.

    MRI is still scheduled for Friday. To make sure nothing is in my left breast (which apparently would necessitate testing the nodes on that side)? I'm hoping and praying for answers. Good ones. But it's really all in God's hands and I need to give it to him. I may talk to my dr about prescribing something for my emotions now. It seems like that has been a common theme to a lot of the responses I received. I am an emotional wreck. I go from being courageous to hopeless 100x a day.

    The dr called and said the actual tumor was 1cm but that there could be more still in there. (When the tumor was removed, it was thought to be benign). Not sure what that means about some still being in there - I assume more cells? Ugh. I am so mentally, physically and emotionally exhausted.

    I've heard that a positive outlook makes a difference. I'm trying. Really really hard. I saw a bracelet online that said “Keep F**king Going". Yes. Bad language. But it's exactly what I probably need right now.

    Sending hugs to all.

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited August 2018

    Erm, about that "positive attitude". Don't feel like you HAVE to be positive. Because, let's face it, this crap happened. Your life would be so much better without it. People who tell us to be positive often haven't gone through the same thing.

    Positiveness will come. You will feel better after surgery and when you have more info from MRI.

    A year ago I couldn't imagine my life now. I am much more positive now, and so will you. But don't feel like you are "failing to be positive". Feel what you feel.

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    thank you so much for your words. Just hearing them gives me hope. How I wish I was one year out from this. My second meeting with my Surg onc is tomorrow following by the MRI Friday followed by a lot of waiting. Well, a little over a week. Then surgery. In just a few days, ive met such incredible people on here. I’m just hoping to soon have the courage everyone does. I know it’s somewhere. Going to dig deep. :-) Big Hugs to you.
  • odat4me
    odat4me Member Posts: 66
    edited August 2018

    Just sending you a hug! I am right there with you

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited August 2018

    thanks odat4me :-) right back to you.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2018

    It gets better Sadly. Geez I was an emotional wreck when I was diagnosed. Couldn't believe this crap was happening to me. I'm 4 years out now and I hardly think about cancer.Hang in there you're going to be just fine. Hugs

    Nancy

  • Meow13
    Meow13 Member Posts: 4,859
    edited August 2018

    Sadlynew, I wouldn't hestitate to ask for anti anxiety meds to get through this. It helped me, I felt like it saved me from a nervous breakdown.

  • LinnyG
    LinnyG Member Posts: 44
    edited September 2018

    Hi Sadly - me too! Diagnosed 8/23. Having L mastectomy 9/25 with TE. Sometimes I can talk about it without tearing up. Other times not so much. The closer my surgery gets, the cleaner my house - so much nervous energy. Keeping as busy as possible. Waiting is so tough. This site is like one great big hug. Who knows better than those going through this?! Keep us posted.

  • edwards750
    edwards750 Member Posts: 3,761
    edited September 2018

    You are right Linny who knows better than us about the anxiety of waiting and the fear factor but it does get better. Once your surgery and treatments are compleyed you won’t be focusing on it so much. Time does help. I’m 7 years out last month.

    This forum has been my lifeline since I was DX. We are all here for the same reason in various stages, grades and treatments.

    You can do this. Breast cancer doesn’t define us.

    Diane

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited September 2018

    I know exactly what you mean Linny! Some days I am strong but others can be unbearable.

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited September 2018

    Sadly, I am 45 years old and was diagnosed in March. I think I was crying non-stop up until last month. It gets easier once the treatment starts, but then some chemo meds cause mild depression as well. Ask for Ativan, psychologist, anything to make you feel more optimistic. Try expressive writing as well. It helped me. For awhile I was writing anything that came into my head every day for about 10-15 min. Nobody has to see it. Even you don't have to read it. The point was to get everything in my head out of it on paper. Sort of psychological emetic. It really helped me. Also, try acupuncture, it works for me as well. Feel free to vent. We know exactly what you are going through. For all I know, the people on this web site made the difference between a quasi-normal life and a psychiatric institution for me.

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited September 2018

    innaB, thank you for that helpful suggestion. I tried to do that the first few days and then stopped. Oddly enough, I am getting ready this morning for my ALND this afternoon. The path review during my bmx showed nodes clear but one node was found to be positive post surgery. Ugh. Wish me luck. I am so ready for treatment to begin so I can begin battling back. My appt with my MO is October 1. I suspect I will have AC-T. I see you do/did too. How is it going? You may have already completed that?
  • PaulaAmy
    PaulaAmy Member Posts: 12
    edited September 2018

    I was 38 when my first lump was found. I was super fit, a non smoker and my diet was perfect. My youngest kids were 5 and 6 when I heard the bad tidings, it was TERRIFYING.

    But after much sobbing and swearing, I started chemo, had all the operations and 22 years later I am still here.....I am stage 4 now but my oncologist rolls her eyes and says: don’t plan your funeral cos stage 4 is just a chronic disease.

    You will be fine.

    Watch comedy, confide in your friends, exercise, eat well, spend time in the sun, ditch miserable people, hang with other cancer patients, ask questions and do your research. Knowledge is power.

    Take care

    Paula


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