Suffering From Monkey Brain

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Due to my inability to turn off my mind and fall asleep beginning last August, my primary care physician put me on .25 mg. of Xanax. My MO wants me off this drug and told me to taper off completely over a 3 day period. I began last Friday night and took my last pill on Saturday night. Last night, my mind would not turn off. Thankfully at some point during the wee hours I got some sleep, but I am dragging badly today. My brain goes into overdrive, bombarded with thoughts, people, songs, words, etc. I am so tempted to get back on the Xanax. I just can't live like this. Five years out from my treatments, my bladder is more active at night and I have pain in my arm and chest wall burning, all of which wake me up throughout the night. Does anyone else suffer from feeling like I do? I am desperate!

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  • SimoneRC
    SimoneRC Member Posts: 419
    edited July 2018

    I have been taking the exact same dose of Xanax at bedtime since 2002. None of my doctors have any issue with it and it enables me to sleep. Obviously consult with your own doctors. I am curious why your MO is opposed.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2018

    Antidepressants do a good job on rumination and they are not addicting, or at least they do for me. Prozac turns off the "round and round" in my head..

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    Interesting. Prozac sets my brain of FIRE. I mean, it just whirls non-stop and i dont sleep at all.

  • honeybair
    honeybair Member Posts: 746
    edited July 2018

    Thanks, everyone, for responding back to me. I don't know why my doctor thinks I should get off it. My mother-in-law, sharp as a tack at 89,. has been on two doses of this drug for many years. My doctor must think that it will cause dementia. I need to find out what her thinking is.

    My daughter, who suffers from anxiety, and is a nurse practitioner thinks that I have anxiety which causes me to have trouble falling asleep without Xanax. She has to stay on a medication to function and is doing well now.

    I don't feel anxious or nervous. I just have trouble turning off my brain. I also am unable to take daytime naps. Alll this is new for me, beginning about six months ago. I will take my pill tonight. I cannot funtcion with so little sleep.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2018

    Mustlove, I think there are probably newer antidepressants that work better for this. My experience with it was quite some time ago.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2018

    honeybair, what you're experiencing sounds like a carbon copy of me, except that I've been having trouble sleeping for many years. I haven't slept well for all the reasons you mention.

    My doctor prescribed .5mg Lorazepam and it works, but only for about half the night most nights. So I've given up the fight and just sit up two-three hours, then back to bed and eventually fall back to sleep. Fortunately, I'm retired so I can sleep as late as I want in the a.m. if I have nothing on the calendar.

    I don't know why your doctor thinks you should get off the medicine but perhaps the info in this article is the reason:

    These Pills Could Be Next U.S. Drug Epidemic, Public Health Officials Say

    The article mentions Clonazepam (traded as Klonopin), diazepam (Valium) and alprazolam (Xanax)

    As an aside, I've stopped taking Lorazepam nightly on my own. I found that my sleeping pattern is the same with or without the med, though this is not the case for you. Not saying I'll never take another one of these pills again, but I don't really want to do so regularly.

    I wish you well.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2018

    Xanax is a benzo. It's addictive, so it bears watching.

    When my brain starts revving at night (bladder, cat on bladder, positional pain), I listed to an audiobook or meditative music on my ipod (after the bathroom trip).

  • honeybair
    honeybair Member Posts: 746
    edited August 2018

    Again, ladies, thanks for your insight and responses. I will begin lymphadema treatment beginning next week which should help to control the nighttime pain while in bed which contributes to awakening me. And I need to discuss the use of an antidepressant in switching off the monkey brain. I thought I had dodged the lymphadema bullet, but five years since surgery and radiation, it has snared me. Wishing everyone the best weekend possible.

  • edwards750
    edwards750 Member Posts: 3,761
    edited August 2018

    So sorry for you honeybair. There are ladies in my church support group who have lymphodema. I know it’s brutal. They report the pain is really bad so all of them go to a lymphodema specialist. We had their specialist speak to our group once and she said most people believe if you are going to get lymphodema you will in the first years following treatment.

    Obviously that’s not the case. One of the ladies said she is a very active person and she did too much. She remodels houses.

    I recall my MO telling me I didn’t want to get lymphodema so don’t lift 50 pounds and also you don’t have to have multiple nodes removed to get it although the ladies I know did.

    Diane
  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited August 2018

    As i have said, i have a long history with insomnia. Many nights i would just lie there with my brain in a whirl, thinking: "I'm not sleeping. OMG, I'm not sleeping! What if I can't sleep? OMG! I need to sleep. I need to sleep, but I'm not sleeping!" These thoughts would run in an endless circle for a couple hours until my brain finally shut off.

    I have learned to do positive self-talk when my brain starts up.

    BRAIN: "OMG OMG, I'M NOT SLEEPING! OMG!"

    me: "its okay. You know you'll fall asleep eventually"

    BRAIN: "OMG OMG SLEEP STOOPID BRAIN! SLEEP!"

    me: "You're okay. Nothing bad is happening. You will fall asleep, i promise."

    Brain: "But what if i don't fall asleep? I need to sleep!"

    me: "You will. Trust me, you will fall asleep."

    Brain: "But what if i don't?"

    me: "Well, then we'll just lay here a while. Nothing bad will happen if you don't sleep. You're okay."

    brain: "okay, but..."

    me: "Its okay. Just lay here with me."

    Believe it or not, this actually calms me. Occasionally it may take an hour or so for me to relax enough to fall asleep, but i no longer FEAR the insomnia. I know from experience now that nothing terrible will happen. And eventually i do fall asleep.


  • Amica
    Amica Member Posts: 488
    edited August 2018

    I would ask your MO why she wants you to go off of the Xanax. That's the lowest dose I believe.

    Plus, three days is too fast a taper.

  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    I'm a night person and if I stay up past a certain point, my brain will go in to overdrive and dumb things on the internet I typically have no time for become immensely important in my overtired mind. So my first rule of falling asleep is to try to do it before I get that "second wind".

    Second, I've discovered that if I take a hot shower and get in bed before I am too tired, the drop in my body temperature causes me to get sleepy enough to fall asleep. Additionally, my sister insisted I started taking melatonin before bed...about 3mg, because an oncologist she knows recommended I take it. I've found it has cured me of myoclonic jerks that used to wake me as I would be falling asleep.

    I have one more trick. Sometimes as I am laying in bed I will start to make a video blog about whatever is on my mind. I never finish them. I get too drowsy. Apparently I find myself boring :-)

  • honeybair
    honeybair Member Posts: 746
    edited August 2018

    Enjoyed hearing all of your remedies which help you to sleep. I honestly think that insomnia is more of a female issue. My husband conks out as soon as he gets into bed and he wears a mask and uses a CPAP machine. I have slept in my good old stand-by Lazy Boy recliner for the past two nights and because I don't have lymphedema pain while sleeping in that chair, have had two nights of wonderful sleep. I feel normal again.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited August 2018

    I have used Xanax in the past. I use it now if I get into a bad sleeping pattern. First you must address the pain. Good luck with your LE therapist. I have it too. It stinks.

    My best home remedies are listening to piano music and holding my thumb. I usually have a cup of sleepy time tea and spray my bed with lavender.

    Good luck!

  • honeybair
    honeybair Member Posts: 746
    edited August 2018

    thanks, Zills. Your remedies sound great. I received my first compression wrap today and have to wear it until Wednesday. While I am grateful for my therapy, this si going to take some getting used to. Lymphedema is new for me. Thought I would not get it..

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited August 2018

    I got wrapped today too. It is a challenge. Glad you told him your fears and are getting it checked out!

  • honeybair
    honeybair Member Posts: 746
    edited August 2018

    Zills. I was able to sleep in my bed pain-free, thanks to the wrap, but it is a struggle using that arm. I return today. Hope the swelling is down. Wishing all of you a pleasant day and a peaceful night's sleep,

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited August 2018

    it's down half a centimeter. Wahoo. Maybe only two more days wrapped. It's driving me insane. Just ordered new gloves and sleeves from lymphadiva.

    Very hard to function and even less patience with my kids.

    Glad you slept. That's s big deal.

  • Mucki1991
    Mucki1991 Member Posts: 294
    edited August 2018

    My neurologist said that burning pain is nerve pain. I'm taking anti-inflammatory and it stops my burning pain which is really bad at times. Wishing you peace!

  • honeybair
    honeybair Member Posts: 746
    edited August 2018

    Tthanks, ladies, i am sleeping much better lately and the lymphedema therapy sessions and the wraps are greatly helping. Hope all of you are sleeping well.

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