I'm past the 2 year mark which is when most recurrences occur according to my doctor. I was also told that the recurrence risk drops significantly after that but I won't be relatively home free until the 5 year mark. I did not receive chemo, radiation, herceptin or hormone therapy.

New to all of this. Waiting for surgery is very stressful. Tumor is 1 cm, +++, grade 3. I don't know lymph node status until after surgery. Docs have said surgery, radiation, chemo and Herceptin. With HER2+ is Herceptin and chemo the commonly recommended treatment? Any chance I'll be able to avoid those?

This is awesome. I sure wish researchers would do this - and more.

Thank you for this unscientific tally, dancetracer.

Had an abnormal mammo last week so it was followed up with an ultrasound. Got the results back on Monday and it was determined that the nodules in the images were just fluid filled cysts, thank God. 8/18 will be my 3rd year NED.

I was told they had to get approval to give me my chemo therapy because my tumour was only 0.6 cm...and it was not usually given if tumour was that small. Received approval and had the following.....

I had 12 weekly TAXOL treatments in combination with getting HERCEPTIN every other week during that 12 weeks.

Once Taxol was complete I am continuing with HERCEPTIN until I have a total of 17 HERCEPTIN in all.

Began FEMARA for 5 years for ER+/PR+ once I completed Taxol.

I chose to have a Bilateral Mastectomy as I know I would be a wreck worrying about recurrence. Still awaiting Genetic Testing.

PS ..I am in Canada.

I forgot to check in (almost) I just celebrated my 11 year cancerversary on March 7th!

My Her+ was only 1.2mm- very tiny- but bigger then a microinvasion (DCIS was 1.5cm) At the time my Onco recommended Chemo & Herceptin only because she had no guidelines to go by...still 11 years later & it is a grey area.

I did not have any treatment (No Chemo No Herceptin) I did have a bilateral mastectomy- my decision

Congratulations, Dejaboo

My treatment has yet to be determined. today I found out my sentinel lymph nodes were negative, thank goodness.

I have 1.2mm IDC, high grade, HER2 +( grade 3). This was found when doing lumpectomy of a small high grade DCIS in one breast. I am pre-menopausal and 50 years old.

I meet with MO, BS and they are taking my case to the Tumor Board, all on Thursday.

To me this is a roller coaster ride never knowing what to expect. My BS seems to think radiation will be the recommendation but wanted to go to the Tumor Board and me go to the MO.

I am grateful to have found this group and to have others in my situation. I feel an immediate connection since this helps me to feel like I am not alone.

Good luck to all and thanks for all the sharing.

Thanks for the reply DogMomRunner!

I did have the lumpectomy already. Our situation looks similar except for the menopause and my tumor is smaller.

I think because the invasive tumor was small they are uncertain, but glad to have my BS going to Tumor Board and to see MO as well. It truly is hard to know the 'right' thing to do I feel. In reading through the board so many have had multiple times they have gone through, it does concern me and will talk to MO about that.

I really hope to have a plan soon as it is stressful as you know. I am grateful for this group so I can see how all are being treating around the regions of the US!

I am also a dog mom and runner! I truly miss running right now as I did have oncoplastic surgery with my lumpectomy so limited on activity still.

Good luck to you and your treatment! Prayers coming your way.

Hi rlws- your DX is similar to mine in 2008. I am 1.2mm- Though my Her2+ IDC was grade 1 (which isnt very common) 45 at DX

I started with a lumpectomy (Only because my PS was not listening to me- I told him from day 1 I wanted a double mastectomy- just my choice)

My IDC was also found during my lumpectomy for DCIS-grade 3

I did go on to have a double mastectomy 6 weeks later so no RADS for me. 11.5 years ago they did not know what to do with me- they still are not sure- since our tumors are so small- yet aggressive.

I did not have Chemo or Herceptin. I hope you have a plan soon. It is a Rollercoaster! I will be interested to see what they recommend

March 8th showed by biopsy, a 3 mm grade 3 and triple positive tumor. We had been watching it for over a year with mammograms every 6 months as it was very small. It was thought to be benign, even on the day of the biopsy. The phone call by the BS was difficult at best. I decided to attack it as aggressively as possible. On March 21, I had a lumpectomy with the path report showing a tumor 9mm in size. Chemo was started on April 29 with 12 weekly taxol and herceptin. I am currently doing radiation for 16 sessions with 2 more left. The herceptin continues until March 2020. Aromatase is planned for 10 years. Time will only show if it was enough. Blessings to all!

Saw my MO and BS and my case went to tumor Board. I will be doing radiation and take tamoksofen for 5 years. Decision was mainly because of the smallness of my invasive tumor.

Glad to know the plan. Meeting with Rad Oncologist to set me up Thursday next week. Feeling grateful to just have a plan!

My tumor was 6 mm IDC and 1,5 cm DCIS

ER 30 % PR 40 %

HER 2 POSITIVE

Ki67 30 %

Mastectomy

4AC AND 4 TCHP

AROMASİN

ZOLADEX

I AM 39 YEARS OLD .

I AM AFRAID OF RECURENCE

I HATE ...

Hi all,

Wish I had seen this a few months ago, the experiences shared would have helped. Anyway here is my story, originally told DCIS back in April 20 after having pain and a hardening. Got my head around that as was told 'pre-cancerous' started on Tamoxifen as they weren't sure if there would be a delay in surgery due to Covid. When removed at Lumpectomy 2.5mm focus of invasive grade 2 er/pr + her2 +. I then had to wait 6 weeks for Lymph node removal, thankfully nothing found there. My oncologist then left the choice with me over Chemo/Herceptin, nothing documented either way to quantify the benefits.It was such a difficult decision, I felt well and really struggled with how having chemo would make me feel. I decided though to go with the treatment, finished chemo this Thursday just gone, still about 9 months of Herceptin to go but after reading here I feel so glad I went with the treatment. I cold capped 🤞 I experienced minimal loss from my head, hardly any eyebrows lol and minimal body hair. I’m just waiting now for start date for radiotherapy.