Taxol side effects

Options
Gwinnettgirl
Gwinnettgirl Member Posts: 28
edited August 2018 in Managing Side Effects of Breast Cancer and Its Treatment

I just started taxol yesterday. I was hoping it would be easier that AC dense dose.

I had a rash before I left office. Now a light sunburn effect today.

When can I expect to get tired and Loose appetite? On AC it was pretty much 24 hours.

I feel pretty good today ..hope it lasts!

Btw I iced my hands a feet. It hurt but will be worth it I hope!

Txs fir sny comments.


· Share on FacebookShare on Twitter

Comments

  • randrgirl
    randrgirl Member Posts: 83
    edited January 2018

    hi there- just wanted to say icing the hands and feet totally worth it. I started getting neuropathy after my first treatment so I started icing for all the rest and so far it hasn’t gotten worse. Best wishes to you as you go through the Taxol treatment. I just finished a week ago today

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    Yipee! Glad u r done!!

    How was your appetite and fatigue level??

    AC was rough and I lost 12 pounds:(


    · Share on FacebookShare on Twitter
  • TabzIsMyAngel
    TabzIsMyAngel Member Posts: 62
    edited January 2018

    I'll be following this thread as I also had my first of 12 weekly Taxol & Herceptin infusions today. So far, 12 hours later, I still feel great. Crossing my fingers that this will indeed be easier than AC.

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    did u consider icing your hands and feet?

    We packed the gloves and slippers on dry ice nite before and rotated every 25 minutes. We borrowed the equipment.

    Looks like we on the taxol train together

    · Share on FacebookShare on Twitter
  • TabzIsMyAngel
    TabzIsMyAngel Member Posts: 62
    edited January 2018

    I'm unemployed with no income, still waiting for public assistance & possible soc. sec. disability, so I really don't have any extra funds to purchase multiple pairs of gloves & slippers. Cold capping isn't offered at my local cancer center, so I'm certain they also don't have hand & foot icing equipment available. I've been taking biotin (Nature's Bounty Hair, Skin & Nails) 2500mg daily for a couple years now & just a few weeks ago changed to 5000mg VitaFusion Hair, Skin & Nails, so I'm hoping that will help.

    Thanks to the steroids, I only got about 3 hrs sleep this morning. Went to bed at 4am but didn't fall asleep till at least 6:30. But so far today I still have good energy & a good appetite. So, so far so good!

    · Share on FacebookShare on Twitter
  • bravepoint
    bravepoint Member Posts: 404
    edited January 2018

    My experience with Taxol was much better than with AC. After about 48 hours, I would get a bit achy mostly in my hips but a long walk helped ease the pain.I never lost my appetitie or felt nauseous. The fatigue was the same as with AC. I didn't ice my hands and feet.

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    So sorry about lack of income. I asked at infusion center and they had a phone number to borrow equipment. It is not FDA approved so few ppl know about it.,

    I am sore in my hips today but feeling pretty good. Hope u have a great day

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    I am sore today I was wondering about that!

    Txs for telling me:

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    Borrowing the gloves and socks were a blessing. I could not afford them for sure.

    I am sore today but hungry so that is a plus! My tongue alittle sore tho. Was hoping to leave that side effect behind. Have a great day!!

    · Share on FacebookShare on Twitter
  • GenevaC
    GenevaC Member Posts: 47
    edited January 2018

    I’m done 4x AC and starting 12x taxol&herceptin Tuesday. I so need it to be easier. I’m freaked out just thinking of going back into the hospital.

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited January 2018

    will u be icing hands and feet? I hear frozen peas works too... hang in there!!

    · Share on FacebookShare on Twitter
  • TabzIsMyAngel
    TabzIsMyAngel Member Posts: 62
    edited January 2018

    I slept better last night. Took one 5mg melatonin before going to bed "early" at midnight. Still took me an hour to fall asleep and I woke up several times but fell back to sleep fairly quickly. Lazy day today, but good appetite & no side effects thus far.

    · Share on FacebookShare on Twitter
  • sophiaporter
    sophiaporter Member Posts: 2
    edited February 2018

    Has anyone experience nose bleed while being treated with taxol? I am experiencing the nose bleed for six weeks already and l am tired of it. Are there any suggestions to help the bleeding to stop completely?


    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited February 2018

    Hi! I had crusty bloody nose and got an antibiotic to clear it up . But no active bleeding... maybe a humidifier close to your bed at night? Is it cold where u live?

    Hang in there

    · Share on FacebookShare on Twitter
  • TabzIsMyAngel
    TabzIsMyAngel Member Posts: 62
    edited February 2018

    Similar to Gwinnettgirl, I wake up in the morning with the dry, bloody crusties in my nose, but no actual nosebleeds. So far, that's the only side effect I've had after 4/12 Taxol/Herceptin, aside from not needing much sleep at all the night of infusion. After the first three, I only got about 3 hrs sleep but energy has still been fairly good, MUCH better than on AC (I was never a real high-energy person to begin with), and appetite has been really good. Last night I took a Xanax & had a cup of Sleepytime tea w/valerian before bed and managed to fall asleep much quicker. I still woke up after only 3 hrs, but after getting up to go to the bathroom I fell back asleep after about 30-45 minutes & got another 3 hrs sleep. So I think I've finally found my new chemo night routine. So far, Taxol has been a cake walk compared to AC. Being optimistic & hoping the minimal side effects will continue so well as the weeks go on.

    · Share on FacebookShare on Twitter
  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited February 2018

    I also use Flonase and saline drops. Crusties gone. I too have trouble sleeping. Taxol gives me rash so I have a few more days of steroids...my house is cleaner than when on AC :

    · Share on FacebookShare on Twitter
  • yellowb
    yellowb Member Posts: 131
    edited July 2018

    I have had ome success with a moisturizing nose spray w/ aloe, and a neti pot with saline. The pot can be a little gross, but I am much more comfortable afterward.

    · Share on FacebookShare on Twitter
  • yellowb
    yellowb Member Posts: 131
    edited July 2018

    Anyone else get lactose intolerant on Taxol? I'm so bummed. It's ice cream cone weather!

    · Share on FacebookShare on Twitter
  • moth
    moth Member Posts: 4,800
    edited July 2018

    yellowb - I'm vegan. There are lots of dairy free ice creams on the market, including ones made by Ben & Jerry's https://www.benjerry.com/flavors/non-dairy

    and Bryer's https://www.breyers.com/us/en/non-dairy-frozen-des...

    For a healthier option, I posted these on another thread earlier today:

    For no sugar added summer desserts, vegan banana ice cream is lovely. I find the food processor works better than my Vitamix. You can have it plain or flavour it up https://chocolatecoveredkatie.com/2016/08/22/banan...

    also the DIY Dole Whip http://kblog.lunchboxbunch.com/2015/05/copycat-dol...

    enjoy your cool summer treats!

    · Share on FacebookShare on Twitter
  • nellnell90
    nellnell90 Member Posts: 2
    edited July 2018

    I read on the forum that Taxol may cause joint/bone pain. Are these side effects amplified by Neulasta? I get the onpro and get really sore 2-4 days later.

    · Share on FacebookShare on Twitter
  • moth
    moth Member Posts: 4,800
    edited July 2018

    nell - yes, the neulasta or neupogen shots themselves cause joint and muscle pain. Did your oncology team give you a list of what you can take? I could take tylenol and ibuprofen so long as I took my temperature first and didn't have a fever. I was also seeing a registered massage therapist regularly and having baths with epsom salts. Walking helped too.

    My nurses said that if this didn't work to control the pain, the doctors would prescribe stronger pain relievers. I hope somethings works for you.


    · Share on FacebookShare on Twitter
  • nellnell90
    nellnell90 Member Posts: 2
    edited July 2018

    I take motrin, but with no luck. I'm going to try an anti-histamine, get my butt off this couch and talk to my oncologist if it gets unbearable. Thank you!

    · Share on FacebookShare on Twitter
  • MaddieH
    MaddieH Member Posts: 5
    edited August 2018

    When I started paclitaxel (a taxane), my Onc. didn't tell me about neuropathy, so I didn't take any precautions such as icing my hands and feet. So now I have CIPN with stocking glove distribution, up to my elbows and knees. Now I have balance problems. I'm 75, so this puts me at increased risk for falling. I believe they can change your drug delivery protocol, but I also read that it doesn't help much. I take gabapentin for the pain, but I don't even know if I have any pain.

    · Share on FacebookShare on Twitter

Categories