faslodex

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kkjenkins
kkjenkins Member Posts: 5
edited August 2018 in Hormonal Therapy - Before, During, and After

I am unable to take any of the inhibitors and tamoxifen due to severe side effects. So i started the Faslodex injections. Has anyone had severe dry eyes?

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  • rleclerc
    rleclerc Member Posts: 1
    edited August 2018

    Hi there!

    I am looking for some information on Faslodex from someone's personal experience. It has been presented as one of three options for stage IV metastatic breast cancer. There isn't a whole lot of information out there but I found your posting. If you wouldn't mind, I'm curious what pros and cons you might have experienced yourself?

    All the best,

    Robin

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  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited August 2018

    Hi Robin,

    There is a thread dedicated to Faslodex in the stage IV area (Faslodex Girls 2014 I think). You'll find a lot of information there as many of us are on it.

    Pat

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  • kkjenkins
    kkjenkins Member Posts: 5
    edited August 2018

    Hi Robin, I'm a stage IIA and Faslodex is my last resort. I couldn't tolerate the other medications (Femara, tamoxifen etc). So far i don't mind it but i've been also working with a Naturalpatic Specialst as well. The only concern I have is the cough and feeling of a heavy chest. I can deal with the tiredness, nausea and have the neuropathy in my feet under control with supplements. I'm concern that the feeling of 'heavy chest'.

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  • TwinkleCat
    TwinkleCat Member Posts: 85
    edited August 2018

    I just started on Faslodex for stage IV, and I have been having problems with dry eyes. But not sure if it is from the faslodex or from the whole brain radiation?

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  • kkjenkins
    kkjenkins Member Posts: 5
    edited August 2018

    hello, i'm on my 4th round of faslodex. Dry eyes - yes, i invested in a 'True Tear' it is quite expensive but our health insurance reimbursed us. You can only purchase it from your eye dr., it is a small simulator that you put inside your nose and it simulates your tear ducts to actively produce tears naturally. i decided this route because i'm tired of all of the chemicals i put in my body. i am Stage IIA who has tried all of the drug inhibitors including tamofen and could not tolerate them. We flew down to seattle and met with a specialist and he suggested Faslodex to my Oncologist. So here I am - so far i have a smokers' cough (i'm not a smoker), extremely dry skin (coconut oil is my best friend), dry eyes (true tear), joint hurts - i take a lot of supplements. I am on my 2nd year of cancer free and just want to hang in there and be able to do this treatment. ugh!

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