33 weeks pregnant and just diagnosed

Options
Ninsquad
Ninsquad Member Posts: 3
edited July 2018 in Just Diagnosed

Hi,

Im 31 year old and I'm 33 weeks pregnant and have been diagnosed with er positive invasive ductal cancer.

Awaiting more imaging to see how far it's spread and if it's also pr positive.

I'm wondering if there's anyone out there who has been through this while they are pregnant I can connect with to see how treatment was managed...

· Share on FacebookShare on Twitter

Comments

  • Anna-33
    Anna-33 Member Posts: 192
    edited July 2018

    Me... I was diagnosed stage 3 while pregnant, when I was 31... That is one and a half year ago. Went through two surgeries while pregnant, then c-section, then 6 months of chemo, then rads, then aromataseinhibitors, zoladex and then zometainfusions every sixth months... My little «baby» is healthy

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited July 2018

    Hi there, Ninsquad. We are so sorry that you're here and dealing with this, we know how difficult it is. We do have a thread of other members who were diagnosed during pregnancy. It hasn't been active in about a month, but you can post and connect with other members who've been in your special circumstances: https://community.breastcancer.org/forum/27/topics...

    The Mods

    · Share on FacebookShare on Twitter
  • Ninsquad
    Ninsquad Member Posts: 3
    edited July 2018

    Wow. That's scary to read. Thanks for replying. I'm trying to be positive but I'm a palliative care nurse so my mind keeps moving towards worst case scenario.

    I'm glad your little baby is well.. are you well now?


    · Share on FacebookShare on Twitter
  • Anna-33
    Anna-33 Member Posts: 192
    edited July 2018

    yes... no evidensed disease in me either !!! There is a lot of hope!

    · Share on FacebookShare on Twitter
  • star2017
    star2017 Member Posts: 827
    edited July 2018

    I’m so sorry you are going through this too.

    I was diagnosed last September (about 29-30 weeks pregnant), had my mastectomy in October at 34 weeks, while pregnant. I took steroid shots to help the baby's lungs develop, in case labor started early, but baby was fine. There was an ob team and a neonatal team in the operating room just in case. I did have some contractions after the surgery but they went away.

    I recovered from the mastectomy then delivered the baby at 37 weeks via csection. I was able to nurse baby for about a week from my other breast (also supplemented with formula).

    About ten days later I had to do a ct scan, bone scan, and an echocardiogram. I weaned baby completely before these scans bc I was given radioactive dyes.

    In late November, Three weeks after the baby was born, I started chemo. 8 infusions total, every two weeks.

    I also decided to get my other breast removed as a preventative measure, but I did that after recovering from chemo. I also had to do six weeks of radiation.

    Please don’t hesitate to reach out. I’m happy to help in any way I can

    · Share on FacebookShare on Twitter
  • Hhhhjjp
    Hhhhjjp Member Posts: 3
    edited July 2018

    Hello, so sorry to hear about this. Thoughts and prayers are with you, and your baby.

    · Share on FacebookShare on Twitter
  • Ninsquad
    Ninsquad Member Posts: 3
    edited July 2018

    Thanks for your replies.

    Have found out today it's pr positive and HER2 negative.

    Awaiting more imaging to see extent of spread and I guess we will get a plan from there.

    The waiting is excruciating!

    · Share on FacebookShare on Twitter
  • star2017
    star2017 Member Posts: 827
    edited July 2018

    ninsquad, once there’s a plan in place, you’ll feel a bit better

    · Share on FacebookShare on Twitter
  • windingshores
    windingshores Member Posts: 704
    edited July 2018

    You'll probably have an Oncotype Dx test done to guide treatment, since you are HER2- and ER+.

    One small suggestion, if you have a mastectomy: I was able to minimize pain meds and to some degree anesthesia by having a paravertebral block, an injection in my back just before the surgery.

    You will have more information that will help make a plan and then it is just a matter of getting it done.  The initial waiting can be the hardest part. So far, you have gotten good news.


    · Share on FacebookShare on Twitter
  • Lula73
    Lula73 Member Posts: 1,824
    edited July 2018

    Ninsquad-yes the waiting is excruciating but it's buying you more time for your sweet baby to grow. Did the pathology report give a grade or a stage? Being ER+ is good because it means estrogen can be blocked as a treatment path. PR+ is good because the progesterone acting at the PR receptors actually helps slow the growth and proliferation of the cancer cells. HER2 is - and that's a good thing. If the grade is a 1 or 2 (slow growing) there should not be any problem waiting for surgery until baby is born when the baby is ready. Many of us wait that long for surgery and we're not even pregnant-were just waiting on all the tests to come in and the surgeon's schedule. This gives you time to get genetic testing done and the results to come back which can greatly help whenever making surgery decisions (takes about 3 weeks). And you have time to decide on lumpectomy w/rads, uni or bilateral mastectomy, reconstruction or not, and what type of recon (implants or natural tissue). There is lots of information on these boards and lots of women who are here to help. Just let us know what you need.

    · Share on FacebookShare on Twitter

Categories