Chicken out of getting my port-a-cath

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elisa60
elisa60 Member Posts: 88
edited August 2018 in Just Diagnosed

Got cold feet the day I were to get my port-a-cath on July 24 2018. Just needed little more time to pull myself together, I am so scared and I know I need to get this done. I am just worried about my heart and will I get through this ok and the doctors still talking about putting a breathing tube in my nose or throat I do not know where the doctor will put the tube but still cannot understand why I need a tube, because nobody else said the had to have one. The doctor told me to go back taking my blood thinner and made me an appointment for July 31 2018 to talk to the doctors and reschedule everything again. I am sitting here depressed and feeling very lonely. I just want this cancer out of me so I can move pass all this. I am afraid of everything including the treatment like chemo. I am praying that God will give me courage and strength. Everybody please pray for me.

Comments

  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    Hi Elisa,

    Sorry you are so scared. Having the port placed is a very basic procedure, and it does make chemo sooo much easier. Chemo is hard, but you will find so many people here who endured it, with and without complications. Coming to this site and sharing stories is a big help. I believe you have the courage and strength inside you. It is a very hard thing for everyone to face at the beginning.

    Is the breathing tube thing during the port placement procedure? Or is there another reason for it? If they are putting you completely out to place the port, you won’t even know it’s there. Are you fearing the feeling of choking? Let them know exactly what you are afraid of, and they can help you feel as comfortable as possible.

    Best to you as you start out on your treatments. However lonely you feel, we are all pulling for you here.

    XO,

    L.



  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2018

    Bless your heart. I didn’t have chemo but friends did. They are doing fine now.

    Ask your doctor why you need the breathing tube. You are on blood thinners - is that maybe the reason?

    You can do this. We are all testaments to that.

    Keep us posted.

    Diane

  • ColleenS80
    ColleenS80 Member Posts: 271
    edited July 2018

    Elisa,

    I’m sorry you are scared and you will be in my prayers. I was nervous about my port too but now I don’t even think twice about it. And leatherette is right-chemo will be sooo much easier with it! They will probably offer you lidocaine (sp?) cream to put over itbefore you go to your treatments. Actual chemo days were easy for me because with the port and lidocaine cream, you don’t even feel the stick!

    I hope that makes you feel a little better. Post as often as you have questions. This is a wonderful community I couldn’t do without.

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2018

    God be with you this treatment is tough to say the least.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    I don't blame you for putting on the brakes until they give you an answer. You deserve better than this. If they really need you to start chemo, they can always give it through an IV. In fact, some people just go with the IV and never get a port. Something to discuss with your doctor next week.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited July 2018

    Many of us are doing chemo with no port. In fact my MO prefers that her patients try it without—one less surgery, one less scar, one less reminder. How many treatments are you getting? Is there some reason you can't try regular IV?

  • star2017
    star2017 Member Posts: 827
    edited July 2018

    Elisa, I would have been scared too if I hadn't seen my mother use it for chemo (and a friend too who recommended it). So I didn't really think much about it. I didn't really register it as a "surgery," given all the bigger stuff I had gone through. But then I was in the hospital and going through all the pre-op procedures, and I started to get nervous and stressed because it was beginning to hit me.

    It was fine, but I was definitely scared and may have chickened out too if I had dwelled on the whole thing more.

    Don't be too hard on yourself. What you are feeling is totally understandable. Wishing you the best, whatever you decide.

  • Downdoggie
    Downdoggie Member Posts: 59
    edited July 2018

    I was scared of the port too. But I've had it for 5 months now and prefer it over IV because my veins are not always easy to find. This is all very scary and overwhelming, so normal to be worried. Reading different posts on this site can be reassuring and comforting. Hang in there. You are not alone

  • IntegraGirl
    IntegraGirl Member Posts: 147
    edited July 2018

    I walked out of my port procedure because the nurses were incompetent and the surgeon looked hungover. Had 8 rounds without it and never once regretted my decision. My MO wasn’t fussed and said if we needed to look at options down the road we would but not having a port wasn’t the end of the world

  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    elisa60:

    If you need the port I think you should get it but do try to get all of the answers you need to feel ok about it. The procedure itself is very quick though and I felt nothing with just local anesthetic.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    Leatherette- Thank you. I know by what I have read that having the port will be easier to take my treatments. I am afraid more of the tube, I guess I think that it might damage a vital organs. When I go back I will talk to my doctor and explain my fears and other alternatives but I know they will still insist on the port. I just want that part over with and than I can focus on the next step like chemo, radiation or what treatments they decide to give me.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    edwards750- Thank you for your comment. I will ask my doctor why I need the tube. I have a feeling its because of my heart but I will keep you posted. Thank you so much.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited July 2018

    I had a chemo needle put n me every time and was very 

    painful, I never knew why. My prayers are with you. 

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    colleenS80- Thanks for your prayers. I will discuss other alternatives with my doctor but I know it will be the port I will get. I know the port will be the best for me. I cannot believe just over three months ago when I examine my breast they were ok and than all at once this big golf ball size irregular shape mass come into my right breast and seem like my whole life have changed. I never thought this will ever happen to me and I thank BCO for all the loving and caring people like you and the others who are so kind to me. Thank you.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    Meow13- Thank you so much.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    mustlovepoodles- Thanks that is why I put it off because I just never fully understood and have a lot un answered questions I need to address.

  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2018

    Don’t know much about ports but my friend loves hers. Never had one but with my tiny runaway veins if they offered it next time I would seriously look into getting one. So sick of nurses poking around trying to find my tiny vein. I have to warm up area with hot wash cloth then rub vein to get it to raise ,tie off area, etc. Too much work to have them runaway. Even anetheiologis couldn’t find vein in my foot.

    One physiologist said”feel the fear and do it anyway”. I like that saying. I heard ports are easy to put in and not major surgery. You can do this if you decide. Your stronger than you realize.


  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited July 2018

    Elisa, what kind of chemo will you be having? I went through TC with no port, but I got a nasty "chemo burn" on my arm where the iv was every time. (Sorry I don't know the technical term for that.) Anyway, when I had my recurrence and did AC chemo they put in a port, which I still have. If you want to ask your MO about going without the port, ask what the pros and cons would be for your situation.

    If you do in fact need a port, there are many upsides. The port makes getting chemo much easier, and they usually draw blood from the port for your labs. It can also be used if you need iv contrast for imaging. It's also safer for some chemo drugs to be delivered to larger veins, since some chemos are so caustic. My port has never caused any trouble, and now I don't even think about it anymore.

    Anyway, I know how scary this is... The summer before I was first diagnosed I was up all night having anxiety because I had to get a routine blood draw the next day. I chickened out of that, and had to go back the following day, much to the annoyance of the lab staff. Then a few months later, bam! Breast cancer. I never thought I could do the things I have done, but somehow I did, and I'm okay. It's okay to be scared, but you are also brave and strong. :-)

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    buttonsmach- I do not know what kind of chemo. All I know when I went back to see my biopsy report the my doctor just told me that I had breast cancer and gave me appointment to go have a port-a-cath. I do not know what stage I have. The doctor only told me that the cancer has not spread to my lymph node and it just still in my breast. I am hearing that the port will be much easier than any other way. I also have fears of the breathing tube an being put to sleep, I am afraid of not waking up or fear of bleeding to death when the doctor remove my breast. I guess you all must think that I am crazy. You are so strong and I am praying for strength to get through this too and thank you so much for understanding the anxiety th.at I am going through with. I will keep you posted

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    hugz4u- Thank you I am going to just do it. I know I can and after my doctor visit because I do not want to wait to long. If its God will wake up and I know once this is done that part will be over with and I can worry about the next part the treatments and thank you so much.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018
    • footprintsangel - Everybody keep telling me the port is better than getting poked every time with a chemo needle. Thank you. I am considering the port.
  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    IntegraGirl- I do not blame you would have walked out to. You said that you had eight rounds without having the port. What did you get?

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    Downdoggie- love your comment and thank you so much

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    elisa, I've been a nurse for 40 years, long enough to know that no healthcare professional is going stand by and allow you to bleed to death or not wake up, if it is humanly possible to prevent that. Lots of people are fearful of surgery and procedures. Talk to your doctor about your specific fears. He/she should be able to explain your risks.

  • oxygen18
    oxygen18 Member Posts: 164
    edited July 2018

    Elisa, I had a very nice anesthesiologist, he talked to me before the procedure, answered all questions, made me feel at ease, made sure I was comfortable before we got started. I wonder if you could talk to such a person beforehand.

    What I hated was having to read a stack of consent forms just minutes before going in. I wished it had occurred to me to ask to read those at the time I made the appointment.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    mustlovepoodles- Thank you so much for. I feel so much better since you explain that to me. I will talk to my doctor about my fears.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    oxygen18- I did talk to an anesthesiologist but when I just heard the words you got cancer my mind just went blank and I never realized that I had a lots of questions I should have asked until days later. On July 31 I will get the answers I need. Thank you so much. I will keep in touch.

  • msphil
    msphil Member Posts: 1,536
    edited July 2018

    yes I will definitely pray for as I pray for Us All here sweetie the port placement wasn't difficult at all to be in and this is without putting me to sleep. But please do ask why u need a tube for port it did make getting chemo do much easier..Stay Positive that is what got me thru and Hope family too. I am now a 24yr Survivor this yr so you can do this..I Praise God for my 24yrs. ms Phil idc 3mo chemo before n after Lmast got married cause I was planning. Our 2nd marriages then rads 7wks then 5yrs on Tamoxifen.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    msphil- Thank you so much. I love your comment. Thank you so much for your prayers I really need it. Congratulations on your 24 years survivor I hope I will be as blessed to not only for myself but everyone who is going to similar situations to. I am going to see my doctor today and I have so many questions to ask. All I understood was the breathing tube will be taken out when the port is in and I will not remember it ever being put in. I will stay positive and I made my mind up to get this port placement put in and get it out of my way. I know I have you and a lot of people at BCO praying for me and I know that God will be there with me. I will keep you posted. Thank you so much.

  • knittingPT
    knittingPT Member Posts: 156
    edited August 2018

    You can do this!!! The port was the best thing for me. I did 16 rounds of chemo and I had both arms/hands free to do other things (I like to knit) during chemo without worrying about an IV stuck in my arm. They also used it for blood draws and I much preferred it. All the new things are so scary when you are probably still trying to wrap your head around a diagnosis. Hang in there and be honest with your team about your worries. They may be able to to give you more info to decrease your fear.

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