Absolute basic needs after surgery:lumpectomy or mastectomy
Hello,
So I have gone through what you need for surgery at the hospital and after and am quite devestated. There are some I know I can do without but I need to know stripped down to basics what one really needs.
I'm looking at all these things that one needs to buy before surgery and to have after surgery and I'm thinking one)how am I going to carry all that after discharge? and two where am I going to find the money to pay it cause I can't even afford any of it now?
Has anybody here had to recover utterly and completely alone? Like no help coming for things like helping make meals and helping one get out of bed and bathe themselves?
From what I'm reading even people who said they did it alone had help in some places. I won't and the fear is building. There's going to be surgery for me one way or another I won't know until mid august what my options are it's the recovery where am hitting a wall. I know lumpectomy or a umx is slightly easier because it's one side but it still sounds like I can't do things that I have nobody to do for me.
The list might be great for people who are able to afford it but what is an absolute necessity for the hospital and recovery? I don't have insurance just disability so even with prescription I'm pretty sure there are things they won't pay for.i say this from experience.lots of experience.i have read the main list someone made and all I can think is I can't afford to have cancer even though most of my health care is covered.
Thank you
Comments
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For lumpectomy, recovery should be easy. Just follow your care instructions. You may be advised to wear firmly supportive bras for a time, at all times except when you are cleaning that area. The Hospital can provide you with alcohol wipes and wound dressing goods if you would need them.
For bilateral mastectomy, you would need some loose, front-opening tops with front pockets (even typical cardigans with front pockets should work well), and you would need some pull-on (elasticized waistband) pants. You would need a pen and a sheet of paper. You would need fairly small, lightweight drinking vessels. You can pick up some drinking straws at most any fast food place. You might need a short stool for the first days. You would need to have your medicines in easy-open containers placed at counter level. You would need some lightweight covers. You should have a walker (typical lightweight walker with wheels at its front/leading feet). The Hospital can provide you with a walker, alcohol wipes, and wound dressing goods if you would need them.
Have you a refrigerator-freezer?
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Thanks I will be talking to the surgeon about my lack of help and what I can do so I'm not stuck alone at my place needing help and have no one.
Yes a top freezer which I just tested.if I stand on my tippy toes I can reach the bottom shelf without stretching too far.at least stuff at the front. I will look at the thrift store the next time I have money if there are some over sized men's soft shirts with pockets for cheap.i already bought two big bags of baby wipes(there was a sale) for when I can't shower. And I got my hair cut today and asked my landlord to install a detachable shower head in my itty bitty shower.Hopefully he will do it.my biggest concern would be laundry and dishes.i don't know what range of motion is the first few weeks.
Part of me is hoping I got some time but BOTH my breasts have been in pain (more of an ache that comes and goes)since the mammogram and that was a while ago.one I can write off as cancer boob but the other acting the same way not so much,so I don't know what's going on anymore.
Thanks
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Honestly, I have read the list of things that has been compiled and, while maybe nice to have, many are not necessary. I bought nothing, but my husband did get a $10 lamp dimmer switch so I didn’t have to reach over to turn the light off. I had bi-lateral mastectomies with immediate placement of tissue expanders and a chemo port placed. I knew I would need chemo since I was Her2+, but it is unusual to have a port placed because the need for chemo is usually determined after surgery. I stayed in the hospital for two nights, but only stayed the second night because my paravertebral anesthetic block was removed late the next day so I stayed the second night because we were not sure what kind of pain level I might experience. I ended up with no issues and could have gone home, but it was better to have stayed since there was an unknown. The only thing I needed help with was showering and that was because I was a little unsteady. I did not require a lot of help - I cooked ahead of surgery and froze portions, I could get my own food and heat it in the microwave, I had stocked my house with easy to prepare and eat snacks and food - yogurt, cheese and crackers, fruit, etc. I wore track pants and zip up lightweight hoodies and pajamas with button fronts and pinned drains to the inner seams. I tracked my own meds and emptied my own drains and was by myself most of the time, my husband was at work. I napped, watched TV, read magazines. Everyone has a different pain tolerance, I needed pain meds less than a week, then switched to Tylenol. The hardest thing is that you don’t know how you will do until you’re in the middle of it. I think that people are often surprised at how well they do, and I know several single women who have managed with advance planning and minimal help. It is important to eat this elephant one bite at a time, try not to get too far ahead of yourself - I know that is easier said than done
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You are welcome.
You could -- you would -- keep your hands out of your freezer for a few days. Then you could stand on a short stool to reach some things in there. Your arm use and range should improve every day.
https://community.breastcancer.org/forum/71/topics/861298?page=1#post_5120022
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Thanks, and you just reminded me of my light issues I will need something to reach out to turn it on or off. i believe your right.its best to talk to the surgeon about my limitations including living on the top floor of a 3 floor walk up.
lcietla
Thanks for the link. Have saved it and will be going over it more carefully later.
Thank you all who responded.
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I had no idea I was supposed to get anything for my <four?> lumpectomies! I already had some soft, supportive exercise bras. They sent me home with a small ice pack to stick in my bra where the incision was. What else do you think you need?
The recovery was easy-peasy every time. Many women don’t even take any prescription pain meds—just OTC. My only restriction was to not pick up any heavy items for about a week.
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Not sure if I'm getting lumpectomy just yet. If I have to buy things to prep for before and after I have to do it in advance.
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I only had a lumpectomy, but sent the people helping me away after the first night. After anesthesia, you will need someone for the first 18 hours or so. I prepped food before surgery and schlepped my large bags of dog food home. I had 90lbs in stock. I also made up my bed fresh the day before surgery. I boarded my dogs for 2 days, since I needed to walk a 65 and 95 lb dog. I was able to drive a standard shift car within 48 hours and grocery shop and get my haircut. I took narcotics only the first night. By day 3 I was walking one dog at a time with my less dominant hand, as surgery was on my dominant side. I was told no lifting over 10 lbs for 6 weeks, but the PT cleared me at 3 weeks to gradually return to lifting. I was also forbidden to lift my treated arm over my head for 10 days.
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I had a double mastectomy and didn't need anything special. I cleaned house, put fresh linens on the bed and got food easy to make prior to surgery. I was in the hospital only one night. I went to the hospital in a loose button down shirt and comfy pants and wore them when discharged. I was able to shower 2 days after being home. I used big safety pins and string tied around my waste to hold my 3 drains while I showered. I had put a clean sheet on my couch and was very happy I did that before surgery. I found it uncomfortable to sleep in bed with the drains. I was more comfortable on the couch propped up with pillows.
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i had a bilateral. I did have a friend who dropped off meals. I walked out of hospital next day. I did not go and buy anything new for surgery, I really had no idea what to expect. I wound up using a wide ace bandage wrapped around my waist ,lightly, and I placed the drain bulbs in there. I had some very loose, big armed tank tops that I was able to wear. (had surgery last August and it was hot!) I began stretching my arms a bit as soon as I could after surgery. walked around hall as soon as they put me into a room. Wore shorts. I had a bunch of pillows propped up on the bed at home, not the most comfortable sleeping on the back but that's what has to be. I walked, but slower, anesthesia was the reason. My room is upstairs, so I spent most of my time upstairs taking short naps, had plenty of water bottles on hand, and the remote nearby. I have a shower head that is removable so I had pulled that down before I went into the hospital. I could not fully shower for 5days, per PS instructions on the stitches, but I used the shower head to wash off whatever I could get wet, even my hair as much as I could.
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Thank you all.
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