Saw doc today.

Options
Jadedjo
Jadedjo Member Posts: 469
edited July 2018 in Just Diagnosed

Let's just say they were a little off on them saying really early.its early detection but not that early.

It's IDC

2cm mass on ultrasound.

No ER/PR yet.

I'm broken.

· Share on FacebookShare on Twitter

Comments

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    I'm sorry you got bad news. It does sound like it's early and treatable. Don't give up.

    My mass was 1.9cm. Originally, i was planned to have lumpectomy with radiation and hormone suppression. But then my hormone status came back as ER+ PR-, a more aggressive type. So, then it was chemo and rads. Then we found gene mutations. So, that bought me a BMX and hormone suppression for 10 yrs. Foo!

    In the end i am satisfied that I have done everything possible to prevent recurrence. I am so far 3 years NED, and have no SEs from the Femara. If it recurs, then it does and I'll deal with it then. Today is not that day.

    I wish you the best. Hopefully, this will turn out to be a "garden variety" BC with goid treatment options.



    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited July 2018

    Thank you.

    I think it's hitting me harder because they way they were talking it was Dcis.

    Now it's this.

    And I'm still in a holding pattern because treatment options and tests are going to be done by the breast surgeon I don't see him til end of first week of august. My birthday is end second week.

    I wish this would have happened in September.i could have handled it better in september.bad things always happen to me in september.

    Congrats on being Ned for 3 years.hope it lasts a lifetime.

    Blessed be.

    · Share on FacebookShare on Twitter
  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    Jadedjo:

    Sorry about the news. Do you know what the grade is and when the receptor typing will be back? Can you call a breast center directly and explain your results and see if one can get you in sooner?

    Perhaps there is a member in your area who can help you expedite the process.

    When I originally couldn't get an appointment for an MRI for three weeks (which you need an order for in the U.S.) I called other facilities, found one that could see me sooner, called the breast surgeon's office for the order and then the receptionist and I argued about it for a while until eventually they said they would give it to me but by then my sister had called another breast surgeon I had consulted with and they had placed an order and had already set up the appointment.

    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018

    Thanks @WC3

    I've been bursting into tears off and on. From the way they were talking Friday  I really expected it to be dcis.

    They are hoping that the receptors are available when I see the surgeon in august. I will probably be sent for a CT at some point because for some reason they don't do breast MRI's here just CT's. Seriously the blasé attitude I'm getting from all of them is driving me into a rage.its like they forgotten there is a human being who just found out they have ivasive breast cancer behind those files. 

    So I'm still in that stand still of just being diagnosed but not knowing how bad it really is yet. I've already accepted bmx,I was planning to go that way if it had been dcis.its being flat I'm going to have difficulty with .i will accept it because I have to but I'm going to look like a beer guzzling  trucker expecting twins and THAT is what I am having difficulty with.i have no money for any new clothes to help hide it. I barely have enough money to pay bills and groceries. I don't meet criteria for most reconstructions available here.


    If today taught me anything it is don't get my hopes up and don't believe a word they say until i see the results with my own eyes. What's very early for me and what's very early for them are two totally different things.

    Unfortunately the province I live in you move on their time which means your appt is when it is and you wait as long as you wait. We only got the one breast centre in my city and they are busy.

    If I am not able to find a better deal like I had for internet I will be losing that to Which means no coming here after September and right now the only reason I'm keeping my sanity is being able to come here I got the cheapest plan for my phone and  not much data.

    Ok this is in the paperwork:

    Diagnosis: right breast 8pm position,invasive ductal carcinoma ER/or pending-report to follow.

    Comment: this appears to be Nottingham grade 1 to 2 carcinoma with grading to be deferred to final pathology (whatever that means) 

    so at this point I don't even know the grading. All I know is that it's idc and there were no abnormal lymph nodes seen on ultrasound. But I know that doesn't mean anything it could be in beginning stages just not obvious yet.


    · Share on FacebookShare on Twitter
  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2018

    Bummer Jadedjo -unfortunately doctors probably should not speculate on the DX and just wait for confirmation. My BS was stunned when they found a micromet in my SN. It showed up on the Path report. I was devastated because I thought that meant chemo. Fortunately my MO ordered the Oncotype test and my low score allowed me to dodge chemo.

    My point is nothing is for certain until the Path report comes back.

    We all agree the waiting period is brutal. Once you know more the process should move quickly.

    Diane
    · Share on FacebookShare on Twitter
  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    Sent you a PM.

    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited July 2018

    @edwards750

    I do not know anything right now.

    I think that's the problem.like they can't even give a proper grade.

    At this point in goignnin expecting the worse because the crash when it ends up being worse then I thought is more then my fragile mind can handle.

    · Share on FacebookShare on Twitter
  • bluepearl
    bluepearl Member Posts: 961
    edited July 2018

    That 2cm may end up being much smaller as an infiltrating cancer. Mine was measured at 2.5, but when they did surgery, the actual cancer part was 1cm. It is a terrible time for you as it has been for all of us, but you will get through this and it is much better when the treatment plan is in front of you. Wishing you all th best! (((HUGS))))

    · Share on FacebookShare on Twitter
  • Scrafgal
    Scrafgal Member Posts: 631
    edited July 2018

    Jadedjo

    Sorry to hear your news but know that many of us had IDC and are standing strong to support you on your journey. Keep that same fighting spirit. Pester your doctors until you get all of the info you need. It is true that the diagnosis is only final after a final post-surgical pathology.However, you can get a lot just by finding out hormonal info etc.

    Stay strong. DCIS and Stage 1 and 2 IDC are all early stage.

    · Share on FacebookShare on Twitter
  • Polly413
    Polly413 Member Posts: 124
    edited July 2018

    I am sorry you are facing this. Like someone said above, don't write things down in your mind until after the surgical pathology report. I am not sure why you are ruling out lumpectomy. I would think that is a treatment option that your breast surgeon with discuss with you. This is such a hard part -- waiting and worrying. We've all been there. When you have a treatment plan it gets less stressful. Polly

    · Share on FacebookShare on Twitter
  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    Jadedjo:

    Can you go to a facility in a different city? Are there breast cancer support groups in your area or breast cancer support organizations or charities that are active in the region or provide services in Canada that can assist with treatment related things you can't afford? I would try to really make use of any resources like that that might be available.

    Is there any place in your area with free wifi/internet access?

    If not, one thing you might look in to are small 3rd party wireless providers. They buy space on the towers of larger carriers and often offer cheaper rates but don't advertise widely.

    Here are some links you might find useful:

    Canadian Cancer Society Support Services

    Breast Cancer Society of Canada

    Here is a page of links to Canadian Breast Cancer Resources

    Canadian Breast Cancer Organizations


    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018

    @blue pearl

    Thank you and I really hope that happens that it's smaller then it appears.

    @scrafgal

    Pretttyvmuch the gist of what I'm getting is nobody is going to tell me anything until after I see the surgeon.

    @polly

    Thank you.

    I asked myself what would be easier to live with no boobs or the constant fear everyday that it would come back. I know it could still come back after mastectomy.Right now for me I could live an easier less stressful life with no boobs.i alteady got enough stress from everything else. Also the other breast is active with cysts...I hope they are cysts....so I would live in a constant state of fear whenever they act up. 

    @WC3

    Thank you for the links I will certainly be looking into them.it doesn't appear that they have support groups for people like me who are right in the beginning of diagnosis.they have some for people who have already gone through it and for women who's cancer has metastasized but not people like me. I think I even lamented about it today.

    My counselor is actually going to ask another co-worker who specializes in women with breast cancer if she can talk to me about resources that are available to women starting on this journey.

    I was given numbers to places I can call but already warned there are waiting lists.So right now I'm in a holding pattern like at an airport and will be until I see BS in august.

    Grateful for the support,all.

    · Share on FacebookShare on Twitter
  • oxygen18
    oxygen18 Member Posts: 164
    edited July 2018

    Jo,

    I'm so sorry this isn't what you expected, and that there are delays in getting the details. It still does seem to be early stage.

    Altho the bureaucracy is frustrating to deal with, I am thankful that money for medical treatment is not something you will have to worry about.

    I hope you can continue to have internet access. In any case, when libraries are closed, if you have a tablet computer, even a $50 kind, you may be able to use the free wifi at your local Starbucks. You can sit there for a while, especially at the less busy times, don't have to consume anything.

    We'll continue to wait along with you...

    Sending hugs.

    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited September 2018

    @oxygen18

    Yes I am one of the lucky ones that way,also in the fact that I am close to the breast clinic and hopefully they will be sending me to the offshoot cancercare just a short walk away rather then the main one .

    It's going to be hell on the finances but I called my internet provider explained the situation and asked what the best deal I could get because the internet was my main connection to people and the outside world. He managed to find one that seemed feasible to me though like I said things are going to be tighter then ever financially around here. It's worth it for the ability to escape the nightmare for awhile even if it's just reading stuff like fan fiction online or playing on the game apps. i will find the money somewhere.

    Thank you


    · Share on FacebookShare on Twitter
  • beach2beach
    beach2beach Member Posts: 996
    edited July 2018

    Jadedjo,

    It does sound early, don't be fooled by the size. Things as crazy as it is, will fall into place and you will have a direction you will be moving in to get passed this, Hope your hormonal factors come back quickly as that is a big piece of the puzzle too. Hugs

    · Share on FacebookShare on Twitter
  • Jadedjo
    Jadedjo Member Posts: 469
    edited July 2018

    Beach2beach

    From what I'm learning about where I live unless your gonna die in two months if you don't get treatment your put at the bottom of the pile.

    Thank you for the support 

    · Share on FacebookShare on Twitter

Categories