Food woes - What are you eating during chemo?

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WC3
WC3 Member Posts: 1,540

I buy things and can eat them one day and then I can't the next day. I've had to let a lot of food go to waste because of this and it's a financial burden.

At this point it's cheaper for me to eat out but then I don't control what's in the food.

Comments

  • moth
    moth Member Posts: 4,800
    edited July 2018

    Are you nauseous and not keeping food down or just not liking it? Frankly, nothing tasted good during chemo for me. I just ate because I knew I had to. Anything that didn't actually feel like it was going to come back up at me, it stayed on the menu if it was a part of my healthy meal plans & I just forced myself to eat.


  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    moth:

    At the beginning of my cycle I get acid reflux...I could probably control that better, but I also get a very tender esophagus. When that starts to go away I develop stomach cramping to certain things. I made a batch of soup before infusion 2 , which I tolerated fine after infusion 1, and froze it and after infusion 2 my stomach would cramp within three minutes of eating it and I would get the runs. Sometimes I just get the cramping but it can go on a while.

    I made a mashed potato last night thinking that would be safe and it was too hard on my esophagus.

    And then I have the no soy, no dairy restriction on top of that.

  • moth
    moth Member Posts: 4,800
    edited July 2018

    Oh that sucks :(
    Which chemo protocol are you on again?

  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    moth:

    I'm on TCHP.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited July 2018

    I've been eating a lot of protein (red meat and protein shakes), but the one thing that tastes normal to me is sweet stuff. I've never been much of an ice cream eater but have been going through it like crazy. I just need to remember this is temporary so I don't keep eating all of the sugar once I'm done with tx!

  • Krissi_Cat
    Krissi_Cat Member Posts: 10
    edited July 2018

    hi Ingerp

    I notice youve had Taxol - & I wonder how it felt ?? Im rather anxious as ive heard things about peripheral neuropathy and bone & joint ache and all sort of things - some of which aren't necessarily reversible ? can you let me know how it was for you ?

    Ive had 4 rounds of E.C. (Epirubicin Cyclohosphamide) which has been pretty nasty in terms of nausea tiredness and hair loss (Im using excruciating cold cap) that was every 3 weeks - now Ive got 4 rounds each fortnight of Taxol beginning this Friday

    Id be so grateful for any thoughts

    thank you so much

    Krissi

  • Ingerp
    Ingerp Member Posts: 2,624
    edited July 2018

    Krissi--I've tolerated Taxol really well. A tiny bit of neuropathy has shown up the last couple of weeks but really not bad at all (sitting here typing I don't feel any). I haven't had any bone or joint pain. I also haven't had any nausea, although was taking some of the prescription anti-nausea meds for the first day or two after tx just because I had them here (plus I think the compazine helped me sleep following the steroid). I'm really not doing even that any more.

    That said, I'm absolutely convinced (having spent a lot of time on BCO the last couple of months) that women who do Taxol after another chemo (like you are) have worse SEs. I think your body is in tougher shape going into it so you might feel it more than I have. I also don't think I've seen anyone who didn't think Taxol was easier than their other chemos. You shouldn't expect you're going to have a tough time with it. As my MO reminded me, women who do pretty well during chemo are probably under-represented on these boards.

    The one thing I might recommend that seems to be working well for me is to increase your protein intake. We're eating red meat 5-6 times a week, plus I drink a protein shake most days. My blood counts have been really good--mostly within normal range (even my WBCs). I don't think it can hurt to push the protein while you're in chemo.

  • moth
    moth Member Posts: 4,800
    edited July 2018

    WC3 - oh, you've got perjeta. I asked because it seems in several threads diarrhea was strongly associate with perjeta.

    Maybe it's not the food, maybe it's the frigging chemo & you just might need more drugs for it because if it is that, tweaking food will only make a small difference.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited July 2018

    WC: For the acid reflux, my MO recommended Prilosec OTC and Pepcid AC (also OTC). My acid reflux started soon after round #2 and continued until I finished chemo. I couldn't drink carbonated beverages until 4 weeks after I finished chemo -- the burning feeling was just too painful.

    As for food, my taste buds would vary during each cycle. At times flavors were really intense, like sweets were TOO sweet and salty things TOO salty. I also developed a sensitivity to food textures. But during the cycle, things would improve before the next cycle.

    My go to foods when things tasted really terrible were applesauce and bananas. Citrus products (like lemon cake), tomato based products, and mexican food usually tasted pretty good to me.

  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    moth:

    Yeah it's the chemo. I was told I would probably get diarrhea but so far that only happens when I have a lot of liquid. As long as I stick to solids things stay that way but I still get cramping one way or the other. My GI tract really doesn't want anything in it at the moment. Chemo colon I guess. It wouldn't be such a problem except that I'm losing weight which is causing problems with the port.

    BellasMom:

    I've become acutely sensitive to food textures. Everything has a rough, scratchy feel and the tip of my tongue is irritated from feeling the back of my teeth.

    Funny you should mention acidic things because that's exactly what my taste buds want. Lemons and tomatoes and marinated things. They have it out for my throat and stomach.

    I had a dream I ate pizza. It was a good dream.



  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    On TCH, I had all of the taste and texture issues. My tongue felt burnt, and I also got mouth sores that were super painful. I made split pea soup and had vanilla milkshakes or chocolate Boost shakes, but I see you can’t do dairy. I did have the reflux and diarrhea, only after the first round, though. I remember dreaming about food, as well as going to the kitchen, looking desperately for something appealing, then crying when I couldn’t find anything. Or crying because I was too weak to open the packaging-that was really depressing.

    Nuts were good when I didn’t have mouth sores.

    Good luck!



  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited July 2018

    I ate whatever I could choke down that day. NOTHING tasted good. Water tasted like dirt. I had chemo colon pretty bad too8 rx Imodium wouldn’t stop it. The nurses recommended Activa yogurt. It would go down, but it took me about a year to look at it in the store.

    I lost 34 pounds during that time. I had 4 rounds of a/c. MO said taxotere would be easier on me. It wasn’t, but that’s another story.

  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    I managed to get a small burrito down today. It was the worst burrito I've ever had. A little spicey, a little salty, a little bitter, and a little dry and scratchy, and absolutely nothing tasty about it. But that is entirely from the chemotherapy. It's funny. It's easier for me to eat things when I know they actually taste good and I just can't taste it due to the chemotherapy than if they may actually taste bad.

  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    I accidentally deleted my post.

    I had managed to eat something a few days ago and shortly there after most of my eating related issues resolved.

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