Mild lymphedema after exercise

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Polly_Ester
Polly_Ester Member Posts: 34
edited December 2018 in Lymphedema

I'm a 3 yeah survivor and have started trying to exercise more. I did upper body exercise and it triggered some swelling in my armpit on the affected side.

I only had one or two lymph nodes removed so my lymphedema isn't a chronic problem. I mainly noticed swelling if I wear a bra too long. And recently, when I do push ups or weights.

The swelling and pain started in my armpit and the next day I could feel it in the back of my arm and the day after that was even lower. By the fourth day, the pain and swelling reached just below my elbow then it all started feeling better and going back to normal.

I have an appointment with my oncologist next week to try and find a solution but I'd appreciate advice and opinions from others with lymphedema.

Would a compression sleeve be a good idea for exercise, and if so how long should I wear it?


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  • gb2115
    gb2115 Member Posts: 1,894
    edited June 2018

    Hi and welcome to BCO! If you have noticeable swelling, do consider seeing a lymphedema specialist for help. You would need one to properly fit you in a sleeve (you don't want one that is ill-fitting), and they can assess and keep an eye on you. Your oncologist should be able to refer you to someone! Until then, maybe skip the upper body exercise (or keep it light), and skip the bra when you get a chance. I get truncal swelling if I wear a bra for too long, so the first thing I do when I get home from work is take it off. I also skip it when I'm home over the weekend. It's like the fluid needs freedom to drain from the area.

    Hope it all gets better!

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  • kriserts
    kriserts Member Posts: 224
    edited June 2018

    Hi, yes, I've been instructed to always wear a sleeve when I exercise. I lift weights (kind of start and stop) and I race bikes so I'm out cycling for hours at a time. I have lymphedema in my upper arm, and it's kept fairly stable. I think everyone reacts differently though. I'd get fitted for a sleeve, wear it when you exercise, and see if you still have swelling.

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  • DATNY
    DATNY Member Posts: 358
    edited June 2018

    I was also told to stop the exercise if I notice swelling. And to increase exercise intensity slowly. I was told that once the lymp vessel have increased in size they cannot go back by themselves because the walls are not elastic. Thus, the need for compression sleeves.

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  • beach2beach
    beach2beach Member Posts: 996
    edited June 2018

    I'm not a year out yet, but I noticed the same when I use arm weights. I have not gone back to doing arm exercises I used to do at the gym and since i notice swelling after using little home arm weights, I don't think I want to. I'm trying to find other ways to tone my arms. I only had sentinel node removal and i think one more on the affected side.

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  • Polly_Ester
    Polly_Ester Member Posts: 34
    edited June 2018

    Thanks for everybody's input :)

    I saw a lymphedema specialist this past week and they measured me for a sleeve. The doctor said to wear it when I exercise.

    My insurance won't cover the cost of a compression sleeve but I've found a local BC charity that will help me with the cost.

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  • Doc
    Doc Member Posts: 56
    edited July 2018

    I started doing weight training 6 weeks ago after being pretty sedentary. It has been going well and I was feeling proud of my progress, but this week it took me longer than usual to get over muscle soreness after a workout. One more day of weight lifting gave me swelling of my right arm starting around the elbow but progressing down almost to my wrist, with pitting edema.

    After realizing that it was not just my muscles getting bigger , it finally occurred to me that this was lymphedema. I am 13 years out from my lumpectomy/chemo/radiation and only had a sentinel node removal.

    I plan to see my oncologist to check things out, and get fitted for a compression sleeve. Can anyone comment about continuing to do weight training despite a lymphedema issue? Do you wear the sleeve during weight training as well as during the day? Would wearing a tight sports bra during exercise add to the problem?

    I was surprised and bummed out to have this happen so many years later.

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  • Polly_Ester
    Polly_Ester Member Posts: 34
    edited July 2018

    @Doc, we have a similar issue I think.

    My lymphedema specialist recommend I wear a sleeve during exercise and for about an hour after I get done.

    It's important to gradually increase exercise. For me it's been trial and error figuring out how much I can do and how quickly I can increase.

    In my experience a bra will make it worse. Even a well fitted and comfortable bra. I've been wearing a bra as minimally as I can.

    After you consult your oncologist for a compression sleeve, I'd suggest waiting for the swelling to go away completely before you start arm exercises again. Once you feel normal again, try just half of what you were doing for a while and see if you can do that for a while with no swelling. Then gradually increase with caution.

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  • Murfy
    Murfy Member Posts: 342
    edited July 2018

    @Cyto, glad you started this thread because I have had a question for awhile and would appreciate any input. It has been 8 mos post-surgery and I have noticed that after a day of working in the yard my left underarm area is swollen, sometimes extending to just under shoulder blade. I suspect mild lymphedema. There is no arm involvement. The swelling doesn't really bother me, but I wonder if it is progressive and if wearing a shoulder compressive bandage would be advantageous? If it isn't something that might eventually spread, can I just ignore?

    Thanks!

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  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2018

    lmurphy, hello,

    I hope you'll consider getting a referral to a well-trained lymphedema therapist. Here's how to find one near you:

    http://www.stepup-speakout.org/Finding_a_Qualified...

    The swelling you described is very likely to be lymphedema. When it's in that area of the body it's called "truncal lymphedema." More information about that here:

    http://www.stepup-speakout.org/breast_chest_trunck...

    As to your question about possible spreading, it can definitely do that if you leave it untreated. But lymphedema does more than that. It is not only a chronic condition (even if it only swells noticeably occasionally), it is also progressive. What progresses is sometimes the size or extent of the swelling, but also (and definitely) the condition of the skin and underlying tissue. Lymphedema that is left untreated results in a hardening of the tissues beneath the skin, further limiting lymph flow, and possibly arm function. It can eventually result in skin changes (peau d'orange and/or caustic lymph fluid leakage through the skin).

    Yikes! I just reread that and I sound like the Bad News Bear--sorry! The GOOD news is that with prompt professional attention and consistent self-care none of that needs to happen. (Whew!) So in answer to your questions, a shoulder compression bandage is likely to cause more problems, since it would further inhibit lymph flow to and from the area. And, please do NOT ignore this new swelling--getting help promptly will keep this to an easily managed problem. All good!

    Gentle hugs,
    Binney

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  • Murfy
    Murfy Member Posts: 342
    edited July 2018

    Thank you, Binney! That's a lot of new information and now I need to put on my 'research hat' and see what I can do for myself. I am in rural Alaska for several more months and found no LE expert within 600+ miles. SO, will see if there is an instructional youtube video that might help. You've been very helpful!

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  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2018

    lmurphy, here's a good instructional on youtube. Just remember the touch for this "massage" has to be kitten-petting gentle:

    Rural AK is a challenge in a lot of ways, but resourcefulness is a big virtue there. You can do this! Please let us know how we can help.

    Gentle hugs,
    Binney

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  • PaulaAtlantaGA
    PaulaAtlantaGA Member Posts: 99
    edited July 2018

    Thank you, Binney4! I've been fitted with a sleeve by my PT who gave me similar exercises, but this is more thorough.

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  • Changed
    Changed Member Posts: 7
    edited August 2018

    Thank you for all the info. Jo-5, I am so glad to know about the bra extenders. Great idea. I just got a sleeve and really poor fit... I think... I am not exactly sure how it is suppose to fit. I actually remeasured myself and the company could not recommend a size. My lymphedema therapist has not been very helpful. Is any one else having this issue? The two times I have been there was mainly paperwork and measuring. Visit #2 was mainly looking on the internet with her to pick a sleeve. I could do that myself I think. Very frustrating. I am trying to get back to hiking but this is also when I swell the most. I do have Lt lateral trunk edema but have been offered no solid solution to that.

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  • gigibee
    gigibee Member Posts: 192
    edited August 2018

    appreciate all the info. Having similar issues , more trunk related than arm after weight bearing arm exercise and lifting weights. I so badly don’t want to give up what I enjoyed prior to my diagnosis.

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  • WAJ
    WAJ Member Posts: 11
    edited October 2018

    From my personal experience with LE for the past 6 yrs & per LE therapist recommendation a Compression sleeve is preferred for the affected extremity during exercise & afterwards. This will help keep swelling at a minimum.

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  • PaulaAtlantaGA
    PaulaAtlantaGA Member Posts: 99
    edited October 2018

    I just finished baking two loaves of paleo pumpkin bread. I was so proud that I could spend that long in the kitchen, reaching stirring stiff batter by (right) hand, lifting, filling dishwasher . . . all normal things before I had an axillary node dissection and 2/14 nodes proved positive.

    I SHOULD have worn my sleeve! I'm so frustrated at the deep, knife-like pain that followed all this in my right under arm area. My PTs haven't cleared me for exercise with my arms (double MX), but I've been doing lots of stretching and lymph massaging. I guess I need to try harder with my left hand, remember that some kinds of baking have similarities to exercise, and not need this double strength Tylenol and a back-to-bed break. It's frustrating as I'm 3 1/2 months out of radiation, but I had 28 rads since the two nodes were still positive after adjuvant chemo. I'll get over it. Just needed to vent.

    The pumpkin bread is delicious.

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  • Polly_Ester
    Polly_Ester Member Posts: 34
    edited November 2018

    I'd like to add for further reference that I've almost entirely quit wearing a bra and it's helped a lot with the armpit lymphedema.

    The compression from my bra, even though it wasn't tight (think stretchy sports bra) was obstructing the flow of fluids.

    I learned how to massage swelling out from a physical therapist which I encourage everyone to do.



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  • hugz4u
    hugz4u Member Posts: 2,781
    edited December 2018



    Paula stirring batter is not good for me as it’s to repetitive and I’m not use to itplus I just eat the batter!

    Cyto Yes anything tight bra like does me in. Must be loose jogger for me to keep flow from being cut off.better yet nothing or a tight compression tee.

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