I am so scared. Question about port cath

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elisa60
elisa60 Member Posts: 88
edited July 2018 in Just Diagnosed

Hello again. I was diagnosed with breast cancer July 19 2018. I have to go back in a few days to have a port cath put in my chest so I can start chemo. I know so little about this procedure. I have had a heart attack two years ago and I was diagnosed with atrial fibrillation and I have five heart stents. I take my medicines daily but the doctors told me to stop taking Coumadin and plavix until the port cath is done. I am scared of having a heart attack while having this procedure. The doctors are talking about putting a tube down my throat but they will wait until the put me to sleep to do it and remove it before I wake up. I hope I will wake up. I want to know how long does this outpatient procedure takes? Can someone give me some answers please?

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  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    I have never had heart problems and hopefully won't from my treatments, but I have a port a cath put in twice. The first time they numbed me up and gave me something to relax me. I remained awake and they had finished before I realized they started. The second time, same anesthetics and so on but I was sleep deprived and tired and fell asleep.

    I am wondering if they want to intubate you as a precaution so they have an airway if you do experience heart problems. I would ask about this.

    As far as going off the blood thinners, I am not telling you this to scare you, I just want you to know what I wish I knew at the time. My grandfather had a clotting disorder that made him clot too easily and had to go off blood thinners to have a pacemaker implanted. The surgery went fine and they kept him over night. I called him the next day and his speech sounded slurred. I asked if he was on pain killers and he said no. I asked him why he sounded like that and he said he always sounded like that in the morning (I wouldn't know because I typically called him in the evening), ok, whatever, maybe he didn't have his bridge in.

    They sent him home the next day. The next day we discovered he had been taken back to the hospital by ambulance as he had formed a blood clot while off the blood thinners and had had a massive, hemorrhagic stroke. It was only after this that his girlfriend divulged that the hospital violated good standards of care and sent him home when could barely walk, which was not normal for him. I realized that the slurred speech and walking problems were actually from the blood clot, before it lodged where it did finally did and caused the bleeding. Here is the thing. His doctor, who was on vacation at the time this transpired, said if caught early enough the hemorrhagic stroke could have been preventable but he would have had to have been at another hospital a few miles away.

    So the take away from this is, don't forgo a port a cath if you need one but be sure to discuss clot concerns with your health care providers and that they will monitor you properly and what the plan is if you develop signs of a clot. My grandfather didn't have an instantaneous massive stroke. There was a 24 hour window of opportunity in which he could have been saved and the hospital completely failed to realize he was having a stroke when they discharged him and he couldn't walk. They have since educated their staff on what the signs of a stroke are and have posters on it in the ER.

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2018

    elisa..I wasn't put under during the very short procedure. I was fully awake but little graggy.

    Good luck to you if you need details or have specific question send me a PM.

    I can tell you one thing for me port was God sent....

    Sheila

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    I wasnt put to sleep for my port either.

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2018

    I was in "twilight sleep" for the installation, but functionally, I was asleep.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    WC3- I am so sorry to hear that about your grandfather. I will discuss it with my doctors. I were in shock when the doctors told me I had breast cancer and the questions I should have been asking I did not, my mind just went blank from the bad news. I know the port a cath will be a good thing to have to do my chemo but I wonder is there any other alternatives I can get instead of the port a cath . I been off my blood thinners since Friday July 20 and suppose to get the port on July24 but they put it off until Friday July 27 and I ask them were that to long to be off my blood thinner and they said no. This is scary, I am going to call them first thing this morning and thank you WC3

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    sheila888- Thank you. Your reply made me feel so much better.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    mustlovepoo- Thank you but have you ever hear a doctor say they will put a tube down your throat just to do a port a cath? I do not believe that doctor knew what he was talking about.

  • elisa60
    elisa60 Member Posts: 88
    edited July 2018

    ksusan- Thank you but how long does it take? I never asked the questions that I should have in the doctor office, I guess I my mind went blank.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    elisa, I've not heard of anyone being anesthetized for a port cath. Usually they give some light IV sedation. Many people will fall asleep after this medication, but they have not been "put to sleep". The only reason to put the tube in would be if they believed they might need an airway. In which case, you WOULD be anesthetized (put to sleep.)

    My port insertion was very easy, after they gave me some sedation. I was aware of what was happening, but I didn't care. Just drifted along until it was over.

  • BigPeaches
    BigPeaches Member Posts: 266
    edited July 2018

    I was completely knocked out for mine, but he did say when they take it out, I will be awake. I don't think I'll ever get it out though.

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2018

    Couple of hours from admission to leaving. No intubation, no catheter. I had both for the BMX.

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