Please tell me chemo gets a bit easier

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dlittkemann
dlittkemann Member Posts: 234

so I have had 2 treatments and had a bad cold the whole time making me sick the full 3 weeks thus far. So I haven't saw yet and relief. So many find that the first week is bad but then able to function? I have not had this experience yet and love to hear it does get better

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited July 2018

    d, we all respond differently, but, based on my experience, you shouldn't be feeling so bad for so long after your first treatment. It is probably bc you have a cold. I would consult with your MO and let them know how you are feeling. I am assuming they are doing routine blood work before the infusion...? Your white blood count could drop and compromise your immune system. Don't let it get out of hand. Drink lots of water, walk if you feel like it. I felt fine the first few days after infusion, then had 4-5 crappy days, then felt better again before the next round. I tried to stay as active as I could, but it was challenging at times. I worked PT and tried to keep my normal routine. My third and fourth infusions were the worst, bc my blood count was so low and it made me feel tired with heavy legs. I hope you feel better soon:).

  • moth
    moth Member Posts: 4,800
    edited July 2018

    What kind of chemo protocol are you on?

  • dlittkemann
    dlittkemann Member Posts: 234
    edited July 2018

    I'm away from home but pretty sure it's act? 4 of one then 4 of another.

  • Proud_Patriot
    Proud_Patriot Member Posts: 27
    edited July 2018

    I am on a 3 week cycle of TCHP. I just took the 4th (of 6) transfusion yesterday. My normal cycle was:

    Day 1 (transfusion day)-I felt fine. I had trouble sleeping because of the steroids.

    Day 2-I felt fine. Also had trouble sleeping. I have been going to work.

    Days 3-6- I felt crappy. Low blood pressure, low appetite, shaky, fatigued, nauseous (relieved by meds). Slept a lot. Did not work.

    Days 7-21-I felt progressively better each day. I had diarrhea some days (relieved by Immodium), no nausea, I worked a full time schedule. Some days I was pretty fatigued, appetite improved over time. I was able to do normal life activities. I have been walking about half an hour a day.


    If you are feeling sick for the entire cycle call your doctor.

  • yellowb
    yellowb Member Posts: 131
    edited July 2018

    I am on weekly treatment number four, and am much less tired than I was the first week. Lots of little SEs, but this week I actually went to the gym and ran (or rather, I ellipsed, or ellipticalled? -- carefully and not very fast) the day after chemo. So it can get easier! I'm doing my best to just enjoy feeling good and not count on it, since I imagine it could be temporary.

    Good luck!

  • dlittkemann
    dlittkemann Member Posts: 234
    edited July 2018

    wow! What chemo are you on? I'm weak full time. Can't imagine working out. I wish I could.

  • Frog-on-the-lilypad
    Frog-on-the-lilypad Member Posts: 190
    edited July 2018

    Hi dlittkemann,

    Hope the comings days are easier on you. I gather from what you wrote in prev posts that you are on Dose Dense ACT. So 4 AC every 2 weeks followed by 4 Taxol every 2 weeks.

    The first week after you take AC is going to be all sorts of yuck. Take your nausea meds on time. Do not skip or try to brave it. Just take your meds and wait for day 6. Day 6 evening is from when I would start feeling human again. By day 8 life seemed close to normal (the new normal), I could be a productive member of the family. Be kind to yourself. Drink lots of fluid and wait for day 6. It follows a very set pattern. Some of the SEs became more pronounced as I went into cycles 3 and 4, like dry mouth and acidity. Some of the SEs like ear ringing were gone

    I am on weekly Taxol, so I cannot say much about how DD Taxol will be. For starters you will be done with 8 weeks and I have to do 12 weeks. Weekly Taxol is better tolerated as it is divided in 12. That being said, I have not taken any nausea meds on Taxol. There was not much downtime on Taxol when I started. However, now as I go in for Taxol 9, I can feel that I do not have as much energy as before. Taxol had its own set of SEs. For now focus on getting AC done. If I can do it, so can you. Sending you hugs.

  • WC3
    WC3 Member Posts: 1,540
    edited July 2018

    I'm on TCHP. So far different variations of the same each time. The first cycle I had bad mouth irritation which I have not had since though.

    Day 1 sleep after the infusion...bad taste in mouth.

    Day 2 Muscle fatigue, reflux, red face, slightly swollen feet. Morning nausea, take zofran.

    Day 3 Sore esophagus, food is bland, "scratchy" and irritating.

    Day 4-7 Stomach cramping starts. Basically after this point my main concern becomes access to restrooms.

    I start to feel normal a few days before the next infusion and want to eat a lot, but my normal time window is getting smaller.

    I figured out how to get rid of the bad taste and I think I would feel a lot better if I could get more calories into me. All in all it hasn't been the most horrible experience of my life, but it's not fun either. One thing that's compounding my misery, is I've had to cut out some foods because of the type of cancer I have and the fact that


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