Chemo is done but have new leg/joint pain

Reina_de_los_changos
Reina_de_los_changos Member Posts: 27
edited July 2018 in Pain

Chemo finished in March, and I was starting to feel good again. Now I'm having random shoots of pain in my arms and legs, as well as joint ache in my shoulder and hip. The pain was so bad in my hip last night that I couldn't sleep, and Naproxen wouldn't help either. I'm thinking I might be overdoing the exercise (I've done some hiking). Anyone have a similar experience? I've already reached out to my oncologist, just wondering if anyone out there has had a similar experience. Thanks!

Comments

  • Castigame
    Castigame Member Posts: 752
    edited July 2017

    me too, 

    I am 4 wks PFC. I noticed that my hands became arthritic as well as burning pain  which comes and goes. 

    I have not bothered my onco since she is not that friendly.  

    I have a very elaborate routine to minimize my symptoms

    1. meloxicam?  prescription NSAID

    2. wear Epsom salt scrub for hands and feet  for about 20 min as part of body scrub 

    3. 2 TRIPLE strength fish oil capsules

    4. 2 turmeric and 2 ginger supplements 

    5. PT for arthritis started yesterday.

    6. unlimited  Arnica gel application 


    It looks Chemo flared my previously calm arthritis. It also looks neuropathy for me. I am waiting a few more wks before I see a neurologist. 

    yes chemo absolutely sucks. 

    mimi

  • Wendiwithani
    Wendiwithani Member Posts: 108
    edited July 2017

    I had SEVERE joint pain after chemo. A bone scan showed I have arthritis in most of my large joints. Also, I am taking Tamoxifen which can cause joint pain. I have found complete and total relief using 20:1 CBD oil with zero side effects. Added bonus is a great night's sleep every single night. :)

  • Reina_de_los_changos
    Reina_de_los_changos Member Posts: 27
    edited August 2017

    Thanks for the tips! I'll try them out as my leg pain is still happening

  • GiaMandy
    GiaMandy Member Posts: 1
    edited August 2017

    Hi,

    May I know more about CBD oil and the zero side effects, I am searching online for an alternative pain reliever and found this product called DOxyva? And they had positive reviews.

  • aaltiere
    aaltiere Member Posts: 4
    edited March 2018

    I am 6 months out of chemo and have major issues with joint pain all over. I wondering if this is a remaining effect of the chemo? Anyone else have this issue?

  • VL22
    VL22 Member Posts: 851
    edited March 2018

    alltiere- I am three months out from chemo and still have both muscle and joint pain. It was constant, but now comes and goes. Exercise does help me, but it is so annoying - I feel like I’ve aged 20 years. At first I was paranoid that it was bone Mets causing the pain, but it seems that feeling this way for months after chemo is not unusual. Sigh.

    Good luck to you..

  • Mygraceissufficient
    Mygraceissufficient Member Posts: 1
    edited July 2018

    Hello, good evening everyone. I am somewhat perplexed for the overall effects chemotherapy, hormonal and targeted (herceptin) therapy has for each individual. It is like a puzzle (from the onset of pain to the degree of pain and its duration, not to mention the areas of the body it affects. I was hoping to have a greater understanding overall with the long-term prognosis / trajectory of the pain, but to no avail. I had contacted Genetec who manufactures Herceptin and unfortunately there is no data that followed the women or men who received the drug. I hopefully can get more information on this and if there are any plans to begin a study on the long-term effects of these drugs on the candidates and their quality of life. For now i am taking gabapentin for the neuropathy, tylenol if the pain is difficult to bear (just to take the edge off, and I was using tumeric powder, but a woman I met in Home Depot from India, told me to get the whole tumeric root and grater to steep for a tea. I think the root has been more beneficial. I was also taking Celebrex, but I don't want the long term effects of the NSAID, however I am using Voltaren topical (which is also a NSAID, but less liver metabolism- 35%) and i only use it if absolutely necessary. I hope this helps. I have been thinking about the CBD oil, but want to give this regimen a try first. I walk/jog 1-2 miles daily (interval exercise) and plan to start strength training exercises. My son bought me a bike and hope to start back riding. The gym he goes to has a bike club that meets every Thursday and go out for various mile options. I am going for it, but I am going to pedal along the canal before I head out with the group. Another thing that helps me, is to focus on some small projects around the house, It gives me a boost. God bless each and every one of you.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2018

    Hi Mygraceissufficient, and welcome to BC.org! We're sorry for what brings you here, but we're glad you've joined us, and hope you find great support and information here.

    Thank you for sharing your tips and what's helping you deal with side effects. Related to Herceptin side effects, you may be interested in the following article from our main site: Large Review Study Confirms Herceptin's Benefits. And you can learn more about how this drug works in the Breastcancer.org Herceptin pages.

    We hope this helps! Please come back to let us how you're doing!

    The Mods

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