35weeks pregnant with BRACA 1 positive and now BIRADS 5.

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Naina
Naina Member Posts: 8
edited December 2018 in High Risk for Breast Cancer

Hi I have a strong history of breast cancer in my maternal family. And we r BRACA 1 Positive .

2days back I felt a hard lump in my inframammary fold of right breast. Without wasting any time I checked with my gyne and she suggested me a sonomammography. Which resulted in BIRADS5. Now waiting for FNAC done soon after meeting an oncologist.

Very Difficult ssituation because I

am 35 weeks pregnant and have no idea what to do.

Is there any hope for me to be in those 5% lucky people.

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  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited July 2018

    Naina, I’m so sorry you find yourself here when this is supposed to be a happy time in your life. I say have Hope... there’s always hope. Albeit not many, there have been a few on here that’s had a Birads 5 turn out to be benign. You just never know. Cancer definitely knows no boundaries.

    Let’s look on the bright side.. your baby is almost full term. IF you had to have any type of treatment, you won’t have to worry about the baby. And, bc treatment has come a long way.

    Whatever it is, we are all here for you. Please come back and let us know. When Is the biopsy?

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    I was diagnosed at about 30 weeks. Had a mastectomy at 34 weeks. I did the steroid shots in case I went into labor during the mastectomy. They had an ob team and neonatal team monitoring closely. Baby was ok. I delivered via csection at 37.5 weeks and started chemo three weeks later, after scans etc. I've since done chemo, radiation, as well as a prophylactic mx.


    Let me know how I can help.

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  • Naina
    Naina Member Posts: 8
    edited July 2018

    I met the oncologist today.FNAC done.. waiting for the results to come. Cystologist said it's a hard lump because nothing came out in the syringe, it was empty.

    I wish God will be on my side.. and it turnout to be benign. Keep me in ur pryers please.

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    Praying for the best, Naina. You're not alone.

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  • Naina
    Naina Member Posts: 8
    edited July 2018

    my FNAC report has come, and its not clear it's suspicious for malignancy or fibroadenoma . Report is suggested for Biopsy.

    Monday going for Biopsy.

    Please pray for me.

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  • DeepWaters
    DeepWaters Member Posts: 73
    edited July 2018

    You are in my prayers! Try hard to focus on the joy of the baby. All shall be well. Please keep us posted on your progress.

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  • Denise-G
    Denise-G Member Posts: 1,777
    edited July 2018

    Naina - saying prayers for you...

    all my best, Denise

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    hi Naina, how are you? Any update?

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  • Naina
    Naina Member Posts: 8
    edited July 2018

    Hi,

    Waiting for the results to come. Hopefully coming this Friday.


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  • Naina
    Naina Member Posts: 8
    edited July 2018

    Biopsy report is saying infiltrating ductal carcinoma grade 3 .

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    I’m sorry to hear that, Naina. This is very similar to my diagnosis. Baby and I are doing well now, several months later. Once a treatment plan is in place and you have a strategy for beating this, you will feel better.


    Please let me know how I can help

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  • Naina
    Naina Member Posts: 8
    edited July 2018

    Hi Dear,

    When do you diagnosed with BC.? and what was your treatment plan?

    Are you also BRACA positive?

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    I found out I have BRCA2.

    I was diagnosed last September (about 29-30 weeks pregnant), had my mastectomy in October at 34 weeks, while pregnant. I took steroid shots to help the baby's lungs develop, in case labor started early, but baby was fine. There was an ob team and a neonatal team in the operating room just in case. I did have some contractions after the surgery but they went away.

    I recovered from the mastectomy then delivered the baby at 37 weeks via csection. I was able to nurse baby for about a week from my other breast (also supplemented with formula).

    About ten days later I had to do a ct scan, bone scan, and an echocardiogram. I weaned baby completely before these scans bc I was given radioactive dyes.

    In late November, Three weeks after the baby was born, I started chemo. 8 infusions total, every two weeks.

    I also decided to get my other breast removed as a preventative measure, but I did that after recovering from chemo. I also had to do six weeks of radiation.


    What are your doctors recommending?

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  • star2017
    star2017 Member Posts: 827
    edited July 2018

    PS: My chemo was 4 infusions of adriamycin and cytoxin and 4 infusions of taxol. I was given antinausea and anti-allergy medications to help me, and the side effects were not too bad. I was tired after each infusion and achy after the taxol, but very minimal nausea. Do you have people who can help you and the baby?

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  • Yellow15
    Yellow15 Member Posts: 8
    edited July 2018

    stay positive always and yes you are blessed and will get thru this....

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  • Debwarrior
    Debwarrior Member Posts: 72
    edited July 2018

    Hi Naina,

    I'm very sorry to hear that you are dealing with a BC diagnosis at the same time as you are expecting your little one. I was in a similar position, although earlier in my pregnancy back in 1998 when I was diagnosed with Stage iiB, grade 3 infiltrating ductal carcinoma as well. I am also BRCA1 positive (which I didn't know until 15 years later). I'm hear to tell you that my lovely daughter is now 20 and I went through chemo and rads when she was six weeks old. You definitely are going to need extra child care to get through the first six months. But I can also tell you that the joy of having a baby helped me through it. Unfortunately, I did have cancer a second time, but I'm five years out from that, and twenty one years past my first bout. I have no evidence of cancer today and am living a happy and healthy life.

    I hope the very best for you and your family and I hope that your child will be the balm for you that it was for me. While it is scary and it's not what you would want, I'm hear to say you can get through it and having that bundle of joy will help. I got pregnant a second time, even after chemo, and I also have a healthy 14 year old son.

    My thoughts and prayers are with you and I'm sending you healing thoughts and good wishes for your delivery as well.

    Deb


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  • Naina
    Naina Member Posts: 8
    edited July 2018

    Hi Deb,

    You all r such a mental support to me, I can't explain..

    Right now just trying to figure out everything, like how to go about it and how to take care of the lil one and my self.

    Thanks for keeping in touch.

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  • star2017
    star2017 Member Posts: 827
    edited August 2018

    hi naina, how are you and baby

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  • Naina
    Naina Member Posts: 8
    edited November 2018

    Hi Friends,

    I am blessed with baby boy on 08.08.2018.

    Baby is healthy and doing good.

    My right mastectomy and C-section was done together and I am done with 5 cycles of chemotherapy and 3 are pending

    Hope you all are happy and healthy.

    Keep me in your prayers.

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  • star2017
    star2017 Member Posts: 827
    edited November 2018

    Naina, very good to hear from you. Wow, I can’t believe you had to do the csection and mastectomy at once! Mine were three weeks apart, and that was challenging enough!

    Sounds like you and baby are doing well. Wishing you well.


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  • Castigame
    Castigame Member Posts: 752
    edited November 2018

    Naina,, you truly are wonder woman.

    prayers for minimal side effects

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2018

    Wow, you women are amazing. Please keep us all posted on how you're doing.

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