Has anyone gotten lymphadema on their non cancerous side?

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AnnE16
AnnE16 Member Posts: 241
edited July 2018 in Stage IV/Metastatic Breast Cancer ONLY

I am noticing fluid buildup on the side of my right implant that goes into my underarm and towards the back of my bra. Last ultrasound and scan was clear. I do think wearing bra's is not helping. But I always thought you had to have lymph nodes removed in order to get lymphadema but apparently my lymphatic system is going to shit! Just curious if anyone else has noticed this? It is very mild and no one would even be able to tell but me. 

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  • scoobie
    scoobie Member Posts: 30
    edited July 2018

    I have edema in both arms (surgery side and non-surgery side) and also both legs. The hospital insists on calling it lymphedema where my nodes have been removed and edema otherwise, but they feel the same to me. I take a daily diuretic (Dyazide) which helps quite a bit.

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  • AnnE16
    AnnE16 Member Posts: 241
    edited July 2018

    Hi Scoobie, 

    Do I need to have my oncologist prescribe Dyazide or is that OTC? Do you have to get labs with that to monitor kidney function or anything? What do you do to manage legs and arms? I have some lymphadema in one of my legs as well. My therapist had me get some compression socks. 

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  • scoobie
    scoobie Member Posts: 30
    edited July 2018

    Yes, Dyazide needs a prescription. I don't think it requires any labs, but I have regular labs anyway so I'm not really sure. I found the compression socks pretty useless but I know they work for some others.

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