What's it like having a natural and reconstructive breast

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sm627
sm627 Member Posts: 298
edited July 2018 in Breast Reconstruction

Hi Ladies,

I am 34 years old and have been living the half flat life for a year now. I have an appointment with a PS later this month to talk about reconstruction. I feel nervous and a little scared about the whole process of getting a new boob. Could you please share your experiences of what it feels like to have your original breast and the reconstructive one? Does it take a while to adjust to it and what would you say are the pros and cons in the short and long term?

Another question I had was what were your top 3 questions that you asked your PS at your consultation appointment?

Thank you for your help I appreciate your support.

Hugs,

Sara

Comments

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2018

    Pretty much feels the same. I had left side DIEP.

  • travelhound
    travelhound Member Posts: 67
    edited July 2018

    I had an implant placed after tissue expander in January. I told my PS many times that I wanted my breasts to be even, or if not the implant had to be smaller. I was distressed with the size and weight of the expander. He did make is slightly smaller but I am still very unhappy. My breasts were not large to begin with, and I have never had discomfort with the weight of my breasts like women with large breasts have.

    But 6 months later my implant continues to be heavy, when I take my bra off it feels like it is sagging, almost like it will fall off. It is very uncomfortable. And it got me thinking, why does it have to be so heavy? Why is there no an option for people who do not care what the breast feels like to a man. Something that just fills space with little weight.

    I had an over the pec implant. There were no complications.

  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    I was half flat for a year, and I have just had a DIEP on my left side. Too soon to tell exactly what it will feel like, but I know it will be more breast-ish than an implant when it settles. I had a tissue expander in for four months, and the assymetry of feeling between the two sides was something I could live with, but didn’t love.



  • Falconer
    Falconer Member Posts: 1,192
    edited July 2018

    I think it feels great! I just had stage two and a nipple made. Except for the stitch that is stuck next to the nip, it feels like me. I'm 47, a b cup. I'm going braless for the first time in Forever because everything is symmetrical. Good luck to you

  • sm627
    sm627 Member Posts: 298
    edited July 2018

    Thank you everyone for sharing your new breast stories with me. I appreciate all of your insight.

    travelhound: I am sorry to hear that you are still having difficulties so long after your surgery. Is your PS going to do anything to fix the problems you have been having?

    Leatherette: Wishing you all the best in your recovery from your surgery I hope things settle in smoothly for you. What was your experience like with the tissue expander was it painful or more annoying? How did you get through those long 4 months.

    Meow13 and Falconer Glad to hear things are going well for you both.


    Thank you all again for helping me navigate this new world I have entered.

    Wishing you all the best

    Hugs,

    Sara

  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    Thanks for the well wishes, sm627! The only pain I had with the expander was a corner of the crescent poking out, and that went away with a couple of fills. I put numbing cream on it when it hurt bad-lidocaine. My expander was above the muscle. I think maybe the expanders poke more with above the muscle, and fills hurt more with under the muscle? So, overall, more annoying than painful. Just tried to keep busy and wear very comfy bras to get through the 4 months.

    Hope this helps!



  • sm627
    sm627 Member Posts: 298
    edited July 2018

    Thank you Leatherette your advice helps a lot. I can deal with annoying. Did you by chance get a breast lift on your right side to make things even? I keep on reading that breast lifts are common. I know you are still getting use to things but overall are you happy with your new breast results?

    Wishing you a good weekend.

    Take Care

  • Runrcrb
    Runrcrb Member Posts: 577
    edited July 2018

    SM627 - I had DIEP flap reconstruction on the right after 15 months of treatment and recovery. I had an under the muscle tissue expander in during that 15 months. Love my DIEP breast as much as one can love a replacement. It does feel a little heavier to me than my natural breast but that may be in my head. At the end of the month, my PS will use liposuction to remove a bit of the fullness on the side as it extends a bit wide. He will do a small lift on the left one because I want the nipples even - they aren't far off but I figure that the last two years have been challenging and I ought to be able to be even. No one but the PS and I know that I'm not even - the difference is that little.

    During my consultation phase, when speaking to a top-rated female PS, she was very clear - flap can be matched to natural, implant can match implant, but an implant will never match a natural breast. Since you had unilateral mastectomy, have a very frank conversation with any PS who tells you that an implant will match your natural breast.

    I am happy with the path I chose. The main pro is that if I gain or lose weight, my breasts will fluctuate evenly. I don't expect to gain a lot of weight but should someone with an implant on one side, as the natural breast grows with the increase in fat, the implant side won't. Also, I am active and didn't like the expander under my pec muscle which is where an implant would have gone. Some patients are candidates and doctors will put an implant over the muscle but more often, it's under.

    I'm a D cup if you are wondering about size.

  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    I will eventually get my original breast lifted. So far, only 12 days in, I am very pleased with the new breast, even with all of it’s Nightmare Before Christmas stitches. It’s a little bigger, but that is most likely swelling. The shape is amazing. The tissue expander time made a big difference in their ability to make it a natural shape. I am a D/DD cup, they didn’t think they could make one that size with my belly fat, but they did it. Science/human bodies/my surgeons are amazing. My abdomen and belly button are great now as well. My giant son had stretched all of that out. I never felt bad about my body before, but they did make it aesthetically better. I am hoping this surgical nudge pushes me to get in better shape overall once I can safely exercise.

    L.



  • sm627
    sm627 Member Posts: 298
    edited July 2018

    Runrcrb: Thank you so much for sharing your experience with me I am glad you are happy with your choice. Thanks for opening my eyes about flap vs implant regarding how natural it will feel or not I didn't even think of it that way before. Your advice has giving me a better understanding. I hope your lift surgery goes well.

    Did the top female PS surgeon that you meat with end up doing your surgery? I will be seeing a male PS whom I have heard good things about, but I thought I would come to BC.org to get a women's perspective on what it is truly like to go through the reconstructive process. What was the expander process like for you? were you in much discomfort and how did you manage the pain?

    Does DIEP give you more sensation then an implant would? Thank you for sharing your cup size with me I am a D cup too.

    Thank you for your advice I appreciate your wisdom.

    Hope you have a good weekend.

  • sm627
    sm627 Member Posts: 298
    edited July 2018

    Leatherette: Wow so I guess you have your son to thank for your new boob. Was he one of those big 10lb babies. I teach preschool children and I know they never seem to stop growing they just keep on getting heavier. LOL! Was your son a good support during your treatment ?

    Your surgical teams sound like amazing miracle workers that they were able to find all the tissue they needed. Good luck with getting back into working out I know BC makes you change so many different aspects of your life some of it for the better. What do you do for work? How long are you taking off from work after your DIEP surgery?

    Wishing you well and hope your future breast lift goes well. In the meantime enjoy your weekend.

    Take Care,

    Sara

  • Leatherette
    Leatherette Member Posts: 448
    edited July 2018

    My son was 8lbs, 10.5 oz, so not crazy huge. I was on total bedrest the last 3 months of the pregnancy, so got bigger than I probably would have. Now he is 17, 6’4” and getting ready to go to college. I would not say he was a huge support, but we did have some sweet moments when he’d come hang out with me when I was on chemo or recovering from surgery. I actually had to get real with him yesterday because he’s been giving his dad a hard time. His dad has been taking care of me and his mother, who died in September, so it’s been kind of a shit year from multiple angles for him. My son is not the best at communicating on a daily basis, but we had a long heart to heart, and he’s been better since. Teens are not always good at perspective taking on their own, but they are old enough to have it explained to them.

    I am a school psychologist, so I am out of school for the summer. I purposely scheduled my DIEP for as soon as possible after school got out. I took a lot of leave last year due to chemo, so I’m hoping I can have a normal school year from beginning to end this coming September.

    I am having a good weekend, and hope you are, too. First two days I have really felt good. Of course, I’m not allowed to do anything, but just feeling good is enough.



    Question to those further along post-DIEP: I have my follow up with my surgeon on Tuesday, and typically at that visit, they will remove sutures. I was in terrible pain when they took out just one suture with my tissue expander. I’m thinking of taking a hydromorphone and some ibuprofen before, even though I’m not taking either now. Does that sound like a good plan? What was your visit like? Was there a lot of bleeding after?


    Thanks,

    L.





  • Runrcrb
    Runrcrb Member Posts: 577
    edited July 2018

    SM627 - I didn't go with the female PS as she only does implant reconstruction (her words - too ADD for those long surgeries required for flap). My PS is a male as was my breast surgeon. All of my other doctors are women! I am happy to share pictures if you want - just private message me.

    As to sensation - I have no idea if flap is better than implant. To be honest, there is little and having been recently widowed, I really haven't spent much time thinking about it. The expander was uncomfortable to me - didn't impede me in any way as I still did pushups! but I was aware of my how much the pectoral muscle is used - opening a jar, closing the trunk, etc. Seven months post DIEP and I still feel the use of the muscle on the right - significantly better than with the TE but still aware. I hope that now that it's back in the normal position, that will get better as I get stronger and farther past the trauma of surgeries. My TE went in at the time of my mastectomy. A pain level of 3 is something I just lived with for the 15 months. Occasional advil but generally, just ignored it.

    Leatherette - I didn't have any sutures that were removed. I guess all my stitching was internal. Sounds like Tuesday is 2 weeks post op? Do you still have any drains? If so, hopefully those will come out. I had mine out by 10 days; saw my PS at 3 weeks and then not again until 3 months. All the best for continued recovery.



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