Questioning Oncologist treatment plan

Options
Deamo1
Deamo1 Member Posts: 193

Here are as many facts from the path report that I have.

ER 93/PR 98, HER2-

Left breast ductal carcinoma DCIS, N0,1.2cm.

Right breast invasive lobular carcinoma, 4.5cm, grade 2/ stage 2.

All margins are clear, negative sentinel nodes.

The Oncologist wants to put me on Anastazole hormonal therapy (which I agree needs to be done) She insists on chemo (which I disagree with)

Before my mastectomy I asked why can't I just take the hormone meds and not have the mastectomy. She told me the hormone meds work great for small tumors but not tumors as large as my 4.5cm. Ok, I had the mastectomy, so why can't the hormone medication work now instead of chemo? I asked for the Mammaprint test to be run. They keep on saying it's expensive. I don't care. Am I wrong? Please let me know. I feel she is just pushing chemo.

Comments

  • moth
    moth Member Posts: 4,800
    edited July 2018

    You can put your stats into the probability calculators and see what the predictions are regarding each treatment. Your oncologist should also be able to give you her numbers and you can compare.

    The larger the tumor, statistically the higher the risk of recurrence.


    http://www.lifemath.net/cancer/breastcancer/therap...

    http://www.predict.nhs.uk/predict_v2.1/tool


  • Deamo1
    Deamo1 Member Posts: 193
    edited July 2018

    This is excellent. Thank YOU!

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2018

    Deamo - the decision is yours. It’s your body, your life. My sister had a MX and had the Incotyoe test done. Her score was intermediate. Her MO put her on Arimidex.

    It’s interesting they are concerned with the cost of Mammaprint. Personally I have no idea what it costs because I had the Oncotype test. It was $5k 7 years ago. Our insurance paid for it. Have no clue what it costs now but I would have still done it because I dodged chemo because of a low score. My score was 11.

    Do you have health insurance? I know Genomic Labs who perform the Oncotype tests will work with you if insurance doesn’t pay for it or you don’t have insurance at all.

    You can push to have either Mammaprint or the Oncotype test done. I would if I were you.

    Diane

  • Deamo1
    Deamo1 Member Posts: 193
    edited July 2018

    I do have insurance and I believe they will pay for it all. But like you, I'm getting it no matter what. It will take 2 weeks to get it. Yes, it will be my decision. It just bothers me that they keep on mentioning cost. Thank you

  • Bostoniangal25
    Bostoniangal25 Member Posts: 263
    edited July 2018

    Deamo, the size of tumor was determined after a mastectomy? What funny that my mammogram and mri detected 5 cm tumor, but after surgery path test come back it was scattered 9 mm, 5 mm, 3 mm small tiny ones. That all.

    Doing or not doing chemo depend on your age the younger you are more likely to have it. I m 41 and no history of bc, genetic test was negative.

    Maybe they want a short course chemo?

    And anyone can explain what is mammaprint? Thsnk you

  • Deamo1
    Deamo1 Member Posts: 193
    edited July 2018

    Yes it was determined with pathology after surgery (4.5cm) I'm 63 yrs old. The Dr just said chemo, never mentioned how long. Thanks for asking about that, I will ask. Mammaprint is a test they run to find out if you actually need chemo. It has been proven that too many are getting chemo when they don't even need it.

  • moth
    moth Member Posts: 4,800
    edited July 2018

    Mammaprint & Oncotype are both genomic tests that analyze the tumor and try to predict the risk of the cancer recurring or spreading.

    The Oncotype DX test gives a numeric recurrence score. Mammaprint is a similar test but only gives a binary result - likely to recur or not likely to recur.

    The recent TailorX study results showed that for women with low and some women with intermediate scores, the risks of chemo are outweighing the benefits.

    Every treatment has its risk / benefit profile. People with low Oncotype DX scores can and do have cancer recurrences - it's just that their odds of it happening are lower.



  • Deamo1
    Deamo1 Member Posts: 193
    edited July 2018

Categories