diagnostic mammo & u/s -- now waiting for biopsy
Hello! I've been lurking here for a few days, and I wanted to go ahead share my story. I had a diagnostic mammogram and ultrasound this past Thursday (7/5), and my biopsy is scheduled for 7/16. I am trying not to obsess about it, but it's hard! Hoping that getting it off my chest (sorry for the pun) will help...
I had a regular screening mammogram last November, and everything was normal. In January, I had my regular annual exam with my gyno -- including a breast exam, and she didn't notice anything unusual. Over the last few months, I have noticed that my breasts felt more tender than usual -- but I have gained some weight over the last year, so I wasn't concerned. I figured it was either because my boobs had gotten a little bigger, or because I got a new Mirena IUD in January and my body was adjusting.
But at the end of June, I noticed that my right breast was much more firm than the left, and the top of the breast was more full. While my left breast is pretty soft and squishy, my right is very firm -- it actually feels like there is an implant in it! Looking at it in the mirror, I noticed that my right nipple appears to be set farther back than the left, and the veins beneath my skin are more visible on the right than on the left. This was just after my period. It seemed unusual, but I decided to give it a week to see if it got any better.
There was no change after a week, so I called to schedule an appointment with my gyno. When I explained what was going on, the scheduling nurse she transferred me to the breast center instead. The nurse at the breast center was very nice -- she took down my history and got me scheduled for a bilateral diagnostic mammogram and ultrasound of the right breast 3 days later (7/5), and for a follow-up appointment with the doctor the following Monday (7/9). I wasn't terribly concerned -- I just thought it was a big cyst!
So I had the mammogram and ultrasound on Thursday (7/5). Mammo first, then u/s. After the ultrasound technician was finished, she explained that the radiologist would come in to talk with me, and that she may want to take another look. The radiologist came in, and she did want to take another look -- she turned the screen so I could see what she was looking at. She confirmed that there was an "ill-defined" mass in my right breast, and then she showed me my mammo images, which showed calcifications that had not been present on my images last November, and that appeared to be in the same location as the mass. She recommended a biopsy. She asked if I had any questions -- I wish I had been looking at this forum in advance of my appointment! I would have had so many questions! But because I wasn't expecting them to find anything suspicious, I didn't really prepare, and I didn't know what to ask.
The ultrasound technician then gave me a written summary of my preliminary results, and told me that the office would call me the next day to schedule a biopsy. The preliminary report is not very detailed -- it is basically just a form letter with a couple of blanks filled in, and items circled or checked. It does say that once the report is finalized, it will be sent to my provider and to my electronic record. I have put in a request for a copy of my records for this visit, so hopefully I will get it soon. So here's what's in the summary:
- the form header says "BIRADS 4-6" (so I'm guessing this is the summary form they use for anyone in that range... I assume this means I'm either 4 or 5 -- don't know which one!)
- "today's exam(s): diagnostic mammogram -- BOTH; breast ultrasound -- RIGHT"
- "based on a review by our radiologist, your preliminary results are abnormal: MASS -- RIGHT"
- "recommended next step(s): Follow up with the breast center fir a biopsy, consultation, and/or management of your breast problem(s)"
The nurse called me yesterday to schedule the biopsy -- it will be on 7/16 -- and the follow-up visit that was initially scheduled for 7/9 was cancelled (since I will be getting a biopsy instead).
The breast continues to be quite swollen, and it is painful, like a dull ache. Yesterday I discovered a swollen lymph node on the side of my neck -- it's about the size of a pea -- also on the right side. I'm trying not to freak out -- I know it could be almost anything causing a swollen lymph node! But with the timing and location...
I am 41 (almost 42), and married with no children. I have a strong family history of cancer on both sides -- although very little cancer (so far) in my first degree relatives. Among first degree relatives, my dad had prostate cancer at age 68 (successfully treated with surgery, I am happy to report!). My mom ended up dying at age 64 from a stroke -- so no cancer. I have 1 brother -- no cancer for him (so far). Among second-degree relatives... on my mom's side: grandmother had breast cancer in her late 40s -- she survived, but it returned in her early 60s and she died; grandfather had bladder cancer and lymphoma, but died from congestive heart failure; one aunt died at age 18 from a cancer that originated somewhere in her abdomen -- this was in the early 1970s, and it had spread by the time it was detected, so they did not know where it originated; other aunt died from pancreatic cancer at age 59; one uncle still living -- no cancer. On my dad's side: grandfather died from colon cancer at age 48; grandmother survived breast cancer in her 70s, with radiation and lumpectomy -- no chemo (she ultimately died from Alzheimer's); one uncle survived prostate cancer in his late 50s -- he is still living; one aunt still living -- no cancer. To date, I have not received genetic testing -- the more concerning cancers have all been in second-degree relatives, so it has not previously been recommended to me.
Anyway -- thanks in advance for any support or advice you can offer during this week of waiting for my biopsy (and at least a few days after that while I wait for the results)! If I get the final report from the mammo & u/s in the meantime, I will provide an update.
I am not generally a worrier -- I have a mass in my breast. It's either cancer, or it isn't -- whatever it is, t already is, and nothing I do or don't do in the next week will change what it already is. But it is very present in my mind -- and I feel more empowered the more I know. I hope that sharing this here will help me diffuse some fixation.
Comments
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Hey twinklecat...I'm also waiting for biopsy. Which is tomorrow.
This waiting is hard...stay strong.
Information is good but don't over do it. You sound like you have a great attitude with all this. Very admirable .
Hugs!
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canavara, my biopsy is tomorrow also. I am a wreck but trying to stay strong. Prayers for all of us.
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Laladie, I’ll be thinking of you tomorrow. Somehow it seems a bit easier when you know your not alone. Staying strong! Hang in here we can do this!
TwinkleCat will be thinking of you as well... not sure what range mean for birads. I’ve only seen one number and not range. But I also know little about all this as I am quickly finding out!
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Thank you, Laladie and Canavaro! Good luck with your biopsies today -- please post updates!
To clarify -- I wasn't given a birads of 4-6... this is just what is in the header of a form I was given by the u/s technician, explaining that I would need a biopsy. I think this is just an indication that this is the form they use for anyone with birads of 4 or higher. I haven't yet found out what mine was. The process for requesting medical records at my HMO is very bureaucratic, and takes up to 10 business days -- so I'm just going to ask the surgeon when I go back on Monday (only 5 days to go!). And if needed, I'll go to member services in person to request the copies I need.
(But I'm not complaining about my HMO -- I really like them! I've never had trouble with getting appointments or scheduling or coverage or referrals -- it's just that some of the administrative stuff is inefficient, but an in-person visit to member services usually straightens things up nicely!)
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Good luck with your up-coming biopsies. You can always get copies of your imaging reports if you have questions. You don't even really have to be strong....just show up!:) You will get through it! My friend went with me and that helped me immensely! Follow DR's orders about lifting, icing, etc. I "forgot" I had it done after I got home and caused it to bleed bc I was throwing the ball for my dog...ooops!:) Best wishes to you all moving forward.
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Keepthefaith...I like that “you don’t have to be strong.....just show up”! So true! I broke down crying in the ultrasound room with the tech....before we even started the procedure.
So....US guided core biopsy done! It was not bad at all. I think I worked myself up for nothing. Tech and dr, where super nice. And just felt a poke and some pressure. They took three samples. Told them to take as much this “f#*#*k bastard growth as they want !!
Now I wait for a week for results. The results will go to my breast surgeon. The ultrasound tech asked me who it was, and when I told her, her face lit up and she said...” wow, she is the best...not just around here but throughout the country”.
So that made me feel good....I’m going to need a great team. This thing is ugly big. I know it’s cancer...just want to identify this f@#ker so we can get a battle plan in action!
Laladie ...how did your biopsy go today ?
TwinkleCat.. ..thanks for the clarification regarding birad score. Hope yours is 4! Mine is a 5....so hence I know it’s cancer.
Thinking of you all
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Hi Everyone,
I am also waiting for my biopsy, it will be done on Tuesday. Thanks for your post Canavaro, I don't find having a biopsy so scary now. Wishing you all the best!
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Barbie T you got this!!!
Don’t let your imagination get the best of you...it’s not bad at all. Just breath!
Let us know how it goes.
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Thank you Canavaro!
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Quick update: I had my ultrasound-guided core needle biopsy today. It wasn't too bad! Everything went smoothly. Now just waiting for results -- they told me 3-5 business days, so hopefully I'll have my results my the end of the week. I did finally learn my BIRADS score -- it's 4. Also learned that it is MUCH smaller than it feels. It's 1.8 x 1.3 cm -- so about the size of a peanut m&m. Crazy that something so small feels like it's taking up half of my boob! I guess it's just pushing on the other tissue around it and making it feel more firm?
Anyway, I'm feeling optimistic!
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I am thinking good thoughts for you! You sound like a really strong person! I am having a biopsy today. I hope for good results too!
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my biopsy was postponed due to equipment issues. Had it yesterday, July 16.. Was a mammogram guided core suction. Started out ok, but became very painful. The radiologist gave me more lidocaine, but I almost passed out, literally. I was lucky that they were able to finish it.
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Thanks, odat4me! And hope your biopsy went smoothly today!
Sorry to hear that yours was not so smooth, Laladie! I can imagine how terrible that must have been!
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I had my biopsy yesterday and it went pretty well. The surgeon said he thinks there is nothing to worry about. I will get my results on the 25th. Keeping you all in my thoughts and send good vibes!
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Hi everyone -- I got the preliminary results from my biopsy this morning. I have invasive mammary carcinoma with ductal and lobular features. Still awaiting the full pathology reports -- MRI is scheduled for Monday 7/30, and I have a breast cancer clinic appointment on Wednesday 8/1, where I will meet with the breast surgeon, medical oncologist, and radiation oncologist to discuss the path forward. I'll be moving over to the "just diagnosed" forum.
Sending all of my best wishes to everyone waiting for their results! Hanging out on this forum has been tremendously helpful for me over the last several weeks.
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