Highly suspicious of malignancy

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  • Misha13
    Misha13 Member Posts: 240
    edited June 2018

    I appreciate your warrior attitude as I feel more defeated than anything. I’ll find out more on Monday morning when we visit the breast surgeon. Doc said it looks bad but you never know what pathology will come back as. Have a good sayurday!

  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    Results today: Aggressive cancer, probably triple negative. I will have a port placed on Thursday or Friday and begin chemo. Hope you got better news! Praying for us all

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited July 2018

    I’m so sorry Misha! I get my port next week. We will fight this together my new friend! I’m scared for my bone scan this week. Don’t know how long it takes to get the results. Anyone know? Even though here in Southern Oregon we are as slow as a horse and buggy! I can’t remember did you already have a mastectomy

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited July 2018

    Bone scan takes about 2 days. Good luck, ladies! You can do it

  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    No mastectomy yet. They want to do chemo first to shrink the tumor. They may even start chemo before they finish all the scans. I literally just started this adventure 6 days ago. Glad I have a new friend!

    I learned from a friend of a friend that I have an awesome surgeon so that makes me feel a little better! Let us know about the bone scan! Good luck

  • CindyNY
    CindyNY Member Posts: 1,022
    edited July 2018

    Nicole1966- I had a bone scan on 6/27, MO hasn't called yet to go over results. I'm not sure if the results are not in yet, or she's on vacation. I should call, but will wait until 7/5...so nothing rains on my parade, so to speak.

    The procedure is easy, but it wastes a good part of the day. I had injection at 8 AM, allowed to go home; back by noon, on the table for pictures by 1:13; out by 2:20 or so. I did get to watch a good portion of it while it's happening, tech pulled the viewer down for me to see. Best of luck to you!

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited July 2018

    Nicole and Misha very very sorry for the news! Praying for you both!! Stay strong!


  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited July 2018

    I got a call Monday saying my results were benign. I went Tuesday to the surgeon's office where the nurse confirmed this and gave me a copy of the report. She pointed out the important words and did a quick exam of the biopsy site to check healing and we were done! Made my appointment for follow up in 6 months and left very happily relieved. As I read the report in depth later on, I noticed a specific detail in the report about the tissue samples that make me and my husband very concerned as to whether the samples reported on are actually mine. Now we have to wait until Thursday to even ask anyone due to the holiday - going to make us crazy with worry. Hubby confirms my line of thought because he was there at the test and saw the x-ray of the samples on the screen as well as I did, and agrees the discrepancy noted in the report is very concerning. Now, I'm not sure if I really have accurate results or not.

  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    SoMany hopefully you do have the benign results! Keep that thought and have a plan to call tomorrow morning. This could be the docs using terms we non-doctors are not privy to, so know that you may be worrying over nothing.

    I am sorry you are going through this and pray you are indeed cancer free!

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited July 2018

    Misha - I am very sorry for the results. We are here for you and you're going to get through this stronger and better than before.

    Somany - I hope everything will be ok. Stay strong.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited July 2018

    Hard week. Not sure why. Testing that should have been easy. MRI, CT scan, Bone scan, echo. Probably the easiest part of this journey and I started getting a panic attack at the end of my last test. Felt the tears coming. Sat down outside and cried then went to my car and cried some more. It’s just so much. I’m better now and tomorrow is a new day. I just want to be real with all of you. It feels safe here

  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    Nicole I concur! I had my port placed today and I’m so tired and pretty sore. I have the PET scan and MRI on Monday. It is a lot and I’m not looking forward to Monday.

    All of this sucks and then we have our regular lives that still need to be lived on top of that! I don’t know if you are a religious person, but God must think I can handle way more than I think I can!

    Anyway, just wanted to let you know I can relate.

  • CindyNY
    CindyNY Member Posts: 1,022
    edited July 2018

    Nicole1966- I called for my bone scan results today. A nurse called me back late, I made sure to be sitting down, but all is good, no mets. Arthritis in all sorts of places but I'm good.

    So for you, stress over multiple testing is more than normal. Tears get shed, then we regroup to kick cancers ass! Its OK. You are safe here, no one knows more about stress than this group of warriors.

    Wishing the best for you. HUGS!

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited July 2018

    Nicole, Misha, believe me, beginning is the hardest part of this particular journey. Once you settle into the acknowledgment of your new normal, it will become somewhat easier. The thought that you are actually doing something, as opposed to waiting, makes all the difference in the world. Feel free to PM me, if you want to. And don’t read people’s diagnosis on the forums. I only recently stopped doing this, and my outlook to life improved markedly. You will overcome it. It’s not going to be easy, but we have no choice at this point. Enjoy what you have right now. Have a glass of wine or a drink. Alcohol will be out of question once the treatment starts. Go out with your significant other. Take a two day trip somewhere. Try not to think of the future, we all are in God’s (higher power, supreme being, etc) hands. Thinking of it constantly won’t help you at all. Believe me, I am not just saying all these platitudes because that’s what everyone says. Each of them came to me in the same fight you are fighting. Each of them is hard won.
  • nonomimi5
    nonomimi5 Member Posts: 434
    edited July 2018

    Nicole. You need to cry and vent and get it out of your system. We are here to listen. Just know it will be over sooner or later and you will be at peace again. You will be in my prayers.

  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    Hi ladies,

    Nicole , Misha, looks like I’m just a bit behind on this ( insert colourful expletive ) journey! It’s a roller coaster ride and I keep waiting to wake up from the bad dream! I find that moment just before I fully wake up in the morning to be my favourite time...for a brief nano second everything is fine, then reality hits.

    Had mamo, ultrasound, have been rated as birad 5 ....with a 5 cm tumour. MRI was two days ago, and I meet with the “ Breast assessment” people on Wednesday for another ultrasound and possible biopsy.

    It’s hard taking this one step at a time. Thankful for So many wonderful ladies and such wisdom on this forum, and this thread .....you ladies have brought me some peace... even if it is just fleeting, but I trust someway, someday it will get easier,

    Keep strong Nicole and Misha.... I will work to do the same.





  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    InnaB, NoNoMimi, thank you! I appreciate the thoughts and advice. I know I need to stop looking at diagnoses and worrying about what mine will be when all the test results are back.

    Hubbie and I decided to go pescatarian from now on. That’s vegetarian with fish too! I have always believed food is medicine and for the past 6-9 months, have been eating like crap! So, no I didn’t get cancer from that, probably, but I can change my diet for the better.

    Welcome Canavaro, and know this has been a good place! You will find support and advice here that can’t be found elsewhere. Keep us updated on you!

  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    Misha, glad you defined pescatarian ...was about to google it!

    Also working on changing diet, cut out sugar, more veggies, ( jucing seems to help he get more veggies .. can’t imagine eating a bunch of raw kale and beets... but jucing actually works for me, ) Also started drinking matcha. Anything to feel some control.

    Wish there was someway to get off this stupid booby ride! Since getting mamo I feel every little twinge in my body and think this is eating me alive! Sometimes hard to catch my breath, but the I feel calm.

    My boobs hurt on off like I’m about to get my period, but that’s not possible as I had a hysterectomy .

    And crazy dreams ...that is once I am able to fall asleep. Last night I dream I had a fountain of milk coming out of my left nipple! Everything seems amplified... like life is in super high definition!

    Thanks for letting me vent on this thread. Hugs to all!

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited July 2018

    Misha, the test are so challenging! And yes, I wish God didn’t think I was this strong but he does so I must forge on. Hugs.

    Inna, thank you for such amazing encouragement. it’s true. This is my new normal so I have to adjust. Hugs.

    Nonomimi, I finally cried my friend. Thank you. Hugs.

    Canavaro, I’m so sorry darling. Welcome to our motley crew. We got you! We will all get through this with each other! Lots of prayers for you. Hugs.

    I’ve drastically changed my diet and life. My boobs hurt all the time. Yes like when my period would start. I also had a hysterectomy 15 years ago so it makes no sense. I’m asking my oncologist on Wednesday. Then I will find out if it spread to my bones or anywhere else. Praying 🙏🏼

    Love and hugs to you all my new family

  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    Nicole ... praying for you and that your bones are clear!

    And thank you for the welcome . This motley crew has already been a great comfort . There is strength in numbers !!!

    We got this ladies!!!! We can do it !!!!

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited July 2018

    Misha and Nonomimi, thank you!

    Misha I hope tomorrow (Monday) the PET and MRI go well for you.

    Nicole I am sending you many hugs, too, and praying for a good meeting with your onc on Wednesday for you.

    Cindy I'm glad your scan showed no mets!!

    InnaB you are a rock and so strong!

    Canavaro you too, I will be thinking of you on Wednesday and hoping it goes well!!

    Group hug...



  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited July 2018

    I got in touch with the surgeon's office to double check the biopsy report. She explained what accounted for the discrepancy in the final report, and assured me they were in fact my results and there was no mix up. So yes, my result was benign, thankfully. I have a follow up mammo in six months to recheck that it stays that way.

    I know it's crazy, but I feel horribly guilty sharing my results... I want to take you all with me, each and every one of you, off this journey, or at least onto the six month exit ramp. I hope it's OK if I check in to see how you are doing.. I will pray for each and every one of you daily - for comfort, for strength, for clarity and for peace.

    I will try to take the good out of this experience and not let the fear affect me going forward, though I must say, nothing looks the same as it did before. Thank you for the love and support you've shared with me. You all have a special place in my heart forever, sincerely.

  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    Super fantastic good news somanyquest! So glad you updated us .

    Yes, this is one trip that changes ones perspective, regardless of the path.

    Sure we would all love to hop on with you and take the turn which leads off this crazy journey!

    Thank you for the continued healing thoughts and support. It’s so good to have a group to turn to for encouragement. It’s a roller coaster for sure.

    Hugs! And happy dance !



  • CindyNY
    CindyNY Member Posts: 1,022
    edited July 2018

    Somanyquestions- Great news! We wish everyone had such good results, but know it's not possible. But we do the happy dance for anyone who gets off this journey. 💃 👍

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited July 2018

    So many questions, HOORAY! That’s so awesome! Do feel bad. We are all here for the good the bad the ups the downs. Go outside take a deep breath and be thankful!😊🌈🌞

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited July 2018

    Feeling great today! Took my grandson to an amazing breakfast at a cool trendy healthy restaurant! We went to the park and played in the creek there. Took a lot of mental and iPhone pictures! Busy week this week. Oncologist on Wednesday and port on Friday. I’m single so my best friend who is a veterinarian is coming from Arizona to meal prep and get my house chemo ready. My daughter lives with me with my 3 year old grandson. I’ve always been the matriarch so it’s an adjustment for everyone. (Me) I have a Boston Terrier Bentley and two Persian cats. Lots. I got this. This is my new normal.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited July 2018

    SOMANYQUESTIONS, congrats! Canavaro - welcome!

    Nicole - I have 2 teenage kids and a husband to feed and we don’t eat the same things. I try to cut carbs and stay mostly plant based Where I live, there are a lot of food delivery services like Postmates, Ubereats, etc. I know not every place has it, but they compete with each other to have promotions and free deliveries. Nicole, I know it’s hard to take care of your grandson and daughter and go through treatments. Don’t push yourself too much and use food delivery when you need to. You need to take care of yourself first and foremost. I also use AmazonFresh all the time. So glad your friend is coming to help you. You got this

  • Misha13
    Misha13 Member Posts: 240
    edited July 2018

    Well scanning day is done. That was not fun. No results yet...

    I’m so happy SoMany!! Please don’t feel bad, we are all genuinely happy for you!!

    I have two kids-a 17 year old daughter and a 12 year old son. My hubbie is wonderful and I’m grateful every day for our family. We have some special issues at my house that are making this diagnosis especially difficult. Our son who also has Autism, got sick in January and is now “medically fragile”. He has a trach and is on a ventilator. He uses a wheelchair but is getting stronger week by week. He should get better, but requires a lot of care.

    Nobody picks a time to get cancer, but this would have been the last point in my life, when I’m so needed, to get this. Oh and I’m 44.

    Okay, off my pity pot now.Prayers for us all and celebrations for the many things for which we all have to be grateful!

  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    Thanks for the welcome Nonomimi !

    Nicole, grandkid time is the best! I have an 11month old grandson, and watched him take his first steps today!!! So precious!!

    And Nonomimi is right, you have to put yourself first and allow others to put you first too. Super glad your friend is coming out to be with you! Not always easy being a matriarch I know. Food delivery service sounds like a great idea.

    I’ve changed my diet, not that it was bad before, but this is something I can control . So I cut out sugar ( mild head ache.. must be going through withdrawal lol,) and have increased veggies, and berries, and just basically wholesome food. It kind of feels like I’m getting in touch with my “inner hippie” haha! Even started to ride my old red 1930’s pedal bike with basket and pedal brakes to work .

    I am fortuante to have a supportive husband, we share our home with two cats, a black lab and an Irish wolfhound ! My passion is horses . It’s what keeps me sane and fit!

    We got this ladies!!! It will be a bumpy ride, but we’ve got this!

    Good luck with your appointment Wednesday Nicole. I go for another ultrasound and biopsy Wednesday. A little nervous about being poked and jabbed. Oh well, better get use to it I suppose.

    Misha, how are you doing???





  • Canavaro
    Canavaro Member Posts: 23
    edited July 2018

    I just saw your post Misha....we must have been writing at close to the same time. Happy to hear you have support at home. And very pleased to hear your son is getting stronger.

    One day at a time, and if you need a pity party, that’s okay too....I’ll bring the fruit tray!


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