Trying to stay calm

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adgnola
adgnola Member Posts: 18
edited July 2018 in Waiting for Test Results

Hi everyone, this is my first post here. After "lurking" around a bit I am so grateful to have found this forum.

I had an annual mammogram which resulting in a stereo tactic biopsy, which ended me up with a DCIS diagnosis. I decided to go to another (better) hospital for treatment. After reviewing all my records the doctor wanted to do an MRI. The results of that yesterday have me now going for another needle biopsy today and there was a little talk of an unusual lymph node. The spot the MRI picked up is different than the DCIS and was in a place that no mammogram would have detected, nearly in my armpit.

I go this afternoon for the biopsy and I'm freaking out. I had just wrapped my head around DCIS and now this?

I'm wondering how often these things happen? I feel like I've jumped down a rabbit hole and one thing keeps leading to another. When does it stop?



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  • Ingerp
    Ingerp Member Posts: 2,624
    edited July 2018

    Stay calm. MRIs have a high false positive rate--they are so sensitive. Wait until you have more information. Then you can take another breath and see what (if anything) comes next.

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  • adgnola
    adgnola Member Posts: 18
    edited July 2018

    Thank you for your reply, Ingerp. I've been reading a lot but I guess I won't have answers until I have them :(

    The waiting has been really difficult, but it seems like I'm really lucky and blessed that they are doing these things right away and I don't have to wait long for appointments.

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  • Egads007
    Egads007 Member Posts: 1,603
    edited July 2018

    I had the same happen. I got a last minute call for yet another MRI as something vague was seen during one of the many US. The MRI included biopsy, and it turned out to be nothing. The in between waiting was horrible, and the tests just kept on coming, all with long wait times. As you said I felt blessed that they were being extra vigilant, better to know, but the wait....yeah that sucks. As Ingerp said, try to stay calm and not panic until there is something to worry about. This process sure does let you know what you're made of.....strong stuff. Sending positives your way for a clear MRI, keep us posted!

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  • adgnola
    adgnola Member Posts: 18
    edited July 2018

    Got my results today, I have IDC and DCIS. The preliminary results of the node biopsy are negative so that is good. I also got my gene test results and that was positive for breast cancer and colon cancer. I'm waiting now for the hormone receptor info and a stage. The prognosis is good though. It's weird, but I feel so much relief! Now I know what I am dealing with and I'm ready to take it on and do what needs to be done!


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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited July 2018

    Good to hear you are ready to rock and roll! Let us know how we can help.

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  • adgnola
    adgnola Member Posts: 18
    edited July 2018

    Thank you Georgia!

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  • Okkate75
    Okkate75 Member Posts: 151
    edited July 2018

    It feels so good to have a plan! Sending good vibes to you, adgnola! (I used to live in NOLA--I miss it so!)

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  • Cindymb
    Cindymb Member Posts: 206
    edited July 2018

    adgnola,

    Yes it does feel better the more info we receive and once a plan is in place. We will get through this!

    Once your surgery is scheduled, if its in July, come over to the July Surgery thread.

    Prayers for you, Cindy 🤗

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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited July 2018

    you caught it early and you know what your dealing with now. You will get through this. Good luck. We are here for you

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  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2018

    Dang! I was so hoping you'd have good news. Well, at least you didn't have to wait until Monday. Most of us felt better once we knew what we were dealing with. It's the waiting and not knowing that's terrible, IMO

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